Find a cure for mighty max, Liverpool (2026)

14/03/2026

I've had a few people asking me about the walk for Max on the 29th March, so me and Tony went to do it today to get more details 💜

We done the steep walk on the way up, which took around 45 mins with a few stops on the way to catch my breath and avoid having to call mountain rescue 🥴

On the way down we decided to do the easier route so that we could compare and that took around 40 mins down, so im going to say about an hour up. But that took us to another car park a bit further up from where we had parked. It was an extra 15 mins from there to the car park we had parked at and on the way back it started to hail stone the biggest stones I've ever seen, definitely our Max playing with us 💜 It really made me smile and then we were greeted by a little robin when we got back to the car 🐦💜

Unfortunately we have had to cancel the coach transfer, as we don't think it would be able to get up there. There are a few places up to the car parks that are a bit tight and one track roads, so apologies for this.

So the details for the walk on Sunday 29th March are...
Meeting at Bwelch Pen Barras Car Park at 11am.
We will then do the easier route round the side and up to Moel Famau so that its a bit more accessible for everyone.
The path up/down can be unsteady in places and there is a lot of loose slate, so make sure you have decent shoes on for this.
Although we did see kids walking up in wellies and trainers.
It was also alot colder going round the side than it was going up the middle, so layer up.
To finish off we will be meeting back at for a well deserved drink which will be around 2.30/3pm

Things to remember..
Bring snacks and water.
Suitable clothing
Dogs need to be kept on a lead in certain places due to wildlife and farm animals. So please read the signs.
Also the clocks go forward the night before, so dont forget to set your clocks to the correct time so we dont miss you.

Looking forward to seeing everyone and raising awareness for The Mighty Max Johnson Foundation 💜

Please dont feel that you need to raise money just to be apart of what we are doing, your presence and helping us to make awareness is more than enough 💜

27/02/2026

My sister in law sent me this video of Max last night. It was after his first reccurence, 4 months after he had finished 13 months of aggressive chemotherapy. His gorgeous hair was just starting to come back and we were waiting to find out if we would be excepted for Proton Beam therapy.
This was 7 years ago and still nothing has changed. Same protocol, same amount of children loosing their childhoods to brain cancer. More needs to be done to save these children 💜 This is one of my goals when I am able to set up the new charity in Max's name. A huge part of it will be to help raise money for research into Ependymoma's 🦋

Be Brave
Be Courageous
Be Kind
Be Mighty like Max
🦸‍♂️🦋💜

26/02/2026

Last July about 4 weeks before Max fell asleep forever, we took him to France to make some memories with him.
We were given a campervan to use, as we were ment to be going back to Germany for Max's next lot of treatment, but that got postponed until he had fully recovered from the seizure, and we were going to take him to France during the journey to Germany.
So as we had already booked some accommodation and paid for tickets, we decided to still go to make memories with him. I am so glad we decided to do this, as Maximus never made that next lot of treatment and we wouldn't have got to make his final wish come true, which was going to Paris to see the Eiffel Tower and where Cat Noir and Ladybug lived.
So we left early on Saturday 12th July and headed to Dover to catch the ferry to France, where we stayed in a few campsites before we spent a few nights in a little house with a hot tub for Max and Maizie to play in. But unfortunately he started to get headaches and we had to bring him home to get checked out at a hospital in Kent, where they told us the tumour had started to grow again 😢

25/02/2026

I got sent the most beautiful poem before from Max's girlfriend's mum. Penelope had written a poem along with Max's freind Brooke and one of his teachers Mrs Londsborough 💜 It was just beautiful, and so lovely to hear how they all thought of him and how much he meant and still means to everyone 💜

I also saw the most amazing rainbow on a walk today with my dad and it wasn't even raining. It was a whole rainbow, we could see both ends. I have never seen anything like it in my life, it was just beautiful and then we had a visit from a little robin while we were having our lunch. Been getting quite a few signs from our baby the past few days, picking me up and helping me 🌈🐦🚚🦋

Love you Maxi baby 💜🦸‍♂️

21/02/2026

Thankyou to everyone who has donated and shared the new go fund me to help get the charity started. We are extremely grateful.

I also want to say a huge thankyou to everyone who helped and donated money to help us get Max treatment and just want to be completey transparent with what that money was used for.
Although we did not manage to complete all the treatment for Max, unfortunately we still had to pay up front before we started, knowing that we would not get any money back if the unimaginable happened, which it did 😢💔

The majority of the money went on treatment, which cost approximately £140,000, travel and accommodation costs, supplements and alternative treatments for Max, such as hiring the hbot tent, which was £450 a month, buying an infrared sauna blanket and getting frequent private blood tests as the NHS would only do a small panel and we needed a larger one to make sure we weren't over/under supplementing him. Private consultations, urine tests which detected mold and metals etc in his system so we could detox all of these out of him.

We also used some to make memories with him, like taking him to cbeebies and Disneyland in Paris 4 weeks before he fell asleep 💔

And after all of that we still have a small amount left over, which i have since sent some to help other children affected by this horrible disease, and the rest will be going in to the new charity.

So thankyou again so much to everyone who has supported us and continued to do so and if anyone has any questions about the new charity, gofund me and fundraising ideas or even previous treatment and alternatives that we did with Max, then please get in touch as all I want to do is help others, like Max would want, in anyway we can do 💜

Be Brave
Be Courageous
Be Kind
Be Mighty like Max
🦸‍♂️💜🦋

18/02/2026

6 months without my baby 💔

It has felt like an eternity, people say it gets easier, but it doesn't, it gets harder! It gets easier, if you have lost a grandparent or much older relative, but not a child, not your baby 💔

I go to bed and if I'm lucky I see him in my dreams and get to talk to him and hold him and hear him laugh. Then I wake up in a living nightmare, realising he's not here and its like groundhog day, repeating the same thing every morning.

I need to do something to help me live through this nightmare, so we are setting up a charity in Max's name where he will always be remembered and will continue to help others, just like he did here in our world.

I have set up a new go fund me, with the link bellow to help get us started and explain what we want to support with the charity.

Our first fundraising event will be on the 29th March, where we will be doing a Mighty Max sponsored Easter walk. We will be walking up Moel Famau in North Wales, everyone is welcome, but please be aware it might not be suitable for everyone. If you don't drive, then we have arranged for transport, just let me know, so I can pop your name down for a seat. I have made sponsor forms, so send me a message and I will get one sent over for you to print off.
I will post more details in the next few days, but if your free and feel like getting your steps in while raising money for charity then stick it in your diary.

Be Brave
Be Courageous
Be Kind
Be Mighty like Max 💜🦋🦸‍♂️

https://gofund.me/b137656f9

14/02/2026

When being a hoarder pays off ❤️ Our valentines cards to each other from last year ❤️
Miss my snuggle buddy more than words can say 🥰💜🦋

11/02/2026

February memories 🐵💜🥰
Flowers by Miley Cyrus keeps popping in my head out of nowhere, Maximus loved this song, I sang it on the karaoke with him in Turkey 🎤 maybe its him acknowledging that i buy flowers for him all the time and placed them next to his school photo on the window ledge. Always purple for him 💜 💐

09/02/2026

Mighty Max's lorry spotted out and about in Liverpool 🚚💜

16/01/2026

Making memories with Max 💜

Last year not long after we were told the tumour had come back and they couldn't remove it all, while we still had hope with planning treatment in Germany, we also started to make more memories with our beautiful boy and made sure his life was filled with fun, laughter and lots of love 💜

28/11/2025

It has been amazing to hear how Max's school have been honouring him and looking after the children. Celebrating his birthday and giving the children a save space to talk about him and their feelings. We are forever grateful we trusted to look after our baby 💜

28/11/2025

Thankyou to everyone who wished Maximus a happy birthday, and also for all the messages, cards, gifts and flowers. We really did not expect it and it is so thoughtful and lovely 💜

We celebrated Maximus’s birthday by going bowling with our family, this was where Maximus had his last birthday, so we thought it only right to continue on celebrating his birthday here.
We took a picture and a butterfly heart urn with some of his ashes in with us 💜

The night before his birthday we wrote out cards to him, done a canvas with his hand print and ours on and watched cars together. Hopefully he was sat with us and we done him proud 💜

Tomorrow we will be doing a birthday walk around Maghull and Lydiate in honour of our baby boy 🦸‍♂️🦋💜

Find a cure for mighty max

14/03/2026

27/02/2026

26/02/2026

25/02/2026

21/02/2026

18/02/2026

14/02/2026

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28/11/2025

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