
05/09/2025
September is Hirschsprung’s Disease Awareness Month. Meet Ffredi, a cheeky, energetic little boy who loves climbing, dogs, and dancing. Ffredi also has a rare condition called Hirschsprung’s disease, which affects around 200 babies each year in the UK 👶
It’s a serious bowel condition that’s present from birth, caused by missing nerve cells from part of the bowel. This prevents the bowel from working properly, leading to blockages, infections, and other complications. Research at Alder Hey is looking into ways to improve the treatments available for those born with Hirschsprung’s Disease.
Ffredi had surgery here at Alder Hey last August, where he was fitted with a stoma. Since then, the family has made many return trips between their home in Anglesey, Wales and Alder Hey, as he needs ongoing care. Ffredi’s surgeon Ms Almond explains; “While Hirschsprung disease is a life-long condition, with appropriate management, patients are thankfully able to live full, active lives.”
Ffredi’s dad Arron said: “The team, especially the surgical staff and stoma nurses have been amazing. Thanks to them, we feel confident looking after Ffredi, even when he’s unwell. His stoma is now just part of everyday life, and he’s growing into the funniest, cheekiest little boy we know.” 💙
To say thank you, this month, Ffredi’s dad and his friend Jacob are raising money for Ronald McDonald House, which became a lifeline for the family during their many hospital stays.
Head to www.hirschsprungsdisease.co.uk for more info ❤️