PKU awareness Uk & Ireland with PKblUe

19/11/2025

Having a bit of a clear out and found a whole load of the leaflets we had made when we were at the Tywyn food festival. Raising pku awareness and honouring the history of the pku discovery and treatments, thinking about the future and what possibilities the new treatments could bring.

12/11/2025

https://www.cambrian-news.co.uk/news/tywyn-man-and-mp-campaign-for-better-pku-treatment-850604

Mark Edwards, a Tywyn resident with PKU, along with MP Liz Saville Roberts, are pushing for improved treatment access and awareness in Wales.

11/11/2025

All here for one thing. Campaigning for the revolutionising developments for pku care.

11/11/2025

29/10/2025

'This shows better, more promising signs of results and at least 60% of the population will respond to it but it is a lot more costly... very much so' https://tinyurl.com/ynrassp9

25/10/2025

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23/10/2025

Welcome to all our new followers :)

23/10/2025

Homemade garlic bread is always the nicest! To make this we mixed garlic purée and parsley in butter, spread it on to the low protein bread and heated up in the oven. Goes even better with a warming soup during the cold winter days.

22/10/2025

Snack before work! Very filling.. we mixed nutricia penne pasta with stir fry veg and poured over a veg stock cube!
Won’t need to eat for a week now (not liturally it’s just very very filling 🙂)

02/08/2025

So we were sent samples of the new Echigo rice which is available at the Promin webshop. We tried it the both ways the cooking suggestions recommended but found the boil in the bag to be the best. The rice at first is very sticky but once put into a sieve and worked on under hot running water it became a lot better, there is no after taste, the only thing missing in this photo is a good curry 🙂

Looks a lot like the rice you get in the supermarkets which is good so if your pkuer is put off by the other rices which look manufactured this is by far a lot better.