Leiomyosarcoma - LMS Research UK

03/05/2026

May the Turd!

Today is year 3 since a sarcoma diagnosis that was never ever expected. Since then, it has been a journey of pain, worry, healing, self discovery, worry, loss of friends, worry, guilt, personal development, charity building, more worry, but…. forever gratitude.

Gratitude to my family and friends for being there and their continuous love. Gratitude to the community who have shown support and lift me and others up when down.

Most of all…. Gratitude to life and being alive.
Never take your days for granted.

The worry never goes, but no one knows how long they have got. One day you are here, the next day you might not be. So live with no regrets. Live your life to the fullest.
Create the best memories. Because that is what others will remember you by and those will be your own last thoughts.

Love and light to you all. ###

Leiomyosarcoma Research UK

We are still continuing to fundraise for LMS research and development. If you’d like to help support us, please see

29/03/2026

Update from our Chair of Trustees on our R&D projects for Leiomyosarcoma - LMS Research UK

29/03/2026

An update on our research and development activities.

Please do feel free to ask any questions or let us know if there is anything else we can do further.

We thank the community for all their continued support.

(Transcript of the video is in the comments)

26/03/2026

This looks like a stunning hike! Anyone fancy giving it a try and raising sponsorship for Leiomyosarcoma Research UK too? 💜

https://www.bbc.co.uk/news/articles/crm1zmj1y8no

The long-distance Coast to Coast route which stretches across the Lake District, Yorkshire Dales and North York Moors is now an official National Trail.

15/03/2026

We really appreciate this post from Maggie's Centres which we’re sure will resonate with so many members of our community. Sending love this Mothering Sunday. 🪻

Today we're thinking of all mother figures who have faced cancer. 🧡

We know that Mother's Day can be a difficult day for many reasons. Whilst many may be in a celebratory mood, you may find yourself feeling down, and that’s OK. No matter how you mark this day, we're here with you. If you need to talk, just come in to speak with one of our cancer support specialists. Our centres are open Monday to Friday, 9am to 5pm.

For everything they’ve done, you can leave a dedication today: https://brnw.ch/21x0Kv6

09/03/2026

👏👏👏

The Rare Cancers Bill has received Royal Assent and is now law.

This is a historic moment for people affected by sarcoma and other rare cancers.

For too long, those affected by rare cancers have faced fewer treatment options, less research investment and limited access to clinical trials, with 82% never offered a trial place.

The Rare Cancers Bill becoming law is a vital step towards improving clinical trial access, driving research and ensuring rare cancers are treated with the urgency they deserve.

Thank you to Dr Scott Arthur MP , campaigners, partners and everyone who shared their story to push this forward. Your voices have helped create real change.

09/03/2026

Great to see things moving forwards.

Moving at Pace - The UK Government has began the implementation of my Rare Cancers Act.

08/03/2026

Can we take a moment to appreciate the outstanding efforts of the outstanding Gail Redpath who recently hosted a party to raise funds for us? Gail’s party raised over £7,000!!! Thank you Gail, your friends and family for working so hard to help find a cure.

08/03/2026

We are delighted to share that we are now members of Cancer52 - the common voice for rare and less common cancers - who (amongst other achievements) were influential in the crafting of the Rare and Less Common Cancers section of the recently published Department of Health and Social Security’s National Cancer Plan. Together we are stronger as we fight to find a cure.

05/03/2026

28/02/2026

Since 2008, Rare Disease Day has created a global community on the last day in February to raise awareness for those affected by rare diseases—including sarcoma. Please share this post to raise awareness of sarcoma cancers! www.sarcomaalliance.org