The Nerve of My MS

16/08/2024

Happy Birthday to Me! Another year around the Sun for this Leo, for this Summer baby girl. As I enter Chapter 38 I thank God for supportive family, supportive friends and a supportive MS medical team. I’m in sunny Spain with the familia so raise a glass of Sangria or Ribena😜and say a prayer for me ☀️🌞🌤️🙌🏽🙏🏾😎

17/12/2023

27/01/2023

Here at The Nerve of My Multiple Sclerosis CIC we will continue to build a supportive environment where people of black heritage can feel comfortable and safe to express how they feel. Combating cultural stigmas and social challenges such as health inequalities, racial bias and under representation will be the many crosses we will bear in order to reach our community goals but the black MS community is worth it. We are excited to make connections and relationships along the way through community building.

03/01/2023

So here it is 2023! I’m looking out of my window and appreciating a rainy day. Appreciating the sound of the rain hitting my window and feeling so grateful to be alive to see it.

I loved reading and watching so many 2022 reflection posts and videos on Instagram, so much so that I almost did one myself. But as I looked through my camera roll and saw all the lovely photos and videos I captured in 2022, I started crying happy tears because I know I came so close from having it all snatched away from here. I shouted like a crazy person “I shouldn’t be here!!!” and bust out laughing and then cried again (yep it happens a lot 😂) “Thank you God, I hope I deserve it”.

My MS was so aggressive and in 2021 my MS tried to finish me. There was no guarantee that the Stem Cell Transplant would work so I almost gave into this cruel disease. I thank God I didn’t give in, I thank God for giving me the strength to take a chance with no guarantee but hope all the same. I truly lived 2022 in gratitude and I hope to continue that way for this new year.

HAPPY NEW YEAR 2023 EVERYONE! You survived and you get to survive all over again 🙏🏾

#2023

14/11/2022

13th November : 6 years of Multiple Sclerosis
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Every year since my MS diagnosis in 2016, I never forget the moment in my Neurologist Office when I was told, in front of my MS Nurse, who had just been assigned to me that the tests confirmed that “I HAVE MS”.!!! What the hell? I have a 5 year old daughter and I just gave birth to my son just 2 months ago! How dare MS take that moment from me.

The sound left my ears and I could see myself slipping into the darkness, with no idea of how MS was going to mess up my life in the coming years. Looking back I really feel sorry for the Natalie in 2016 because she had a hell of a journey in front of her. However, all was not lost because she will soon learn how strong she really is.

Every year is the same, as soon as the 13th November starts, I go quiet and my mind time travels back to that moment when I’m told that I have this awful disease. My breathing goes shallow and I feel numb, playing the same video over and over again in my head, “You have MS! You have MS! You have MS!” I try so hard to stop feeling stressed about it because stress makes my MS worse! Natalie wake up and stop reliving it! You don’t live there anymore! Wake up!

But this year something amazing happened. The 13th November passed me by and I didn’t notice it. My daughter asked me what the date was yesterday and I said “it’s the Sunday 13th November darling” and yet it didn’t click or trigger a memory. Wow what a day to be alive.

When I woke up this morning I had a sudden urge to check my calendar and then it click the 13th November had passed me by so quietly without me noticing a thing. For once I didn’t go quiet or numb or even have shallow breathing I just put my head in my hands and started laughing for a couple of minutes and just remembered how far I had come.

So now I look forward as I am almost 1 year since I had my stem cell transplant. Finally an anniversary I can look forward to every year. An anniversary full of memories of a new life, new beginnings and a second birthday. Shining a light at the end of my dark diagnosis’ tunnel. No more going back.

18/10/2022

My Neurologist explained to me before the procedure that the stem cell transplant was not a cure for Multiple Sclerosis (MS); hell she even told me that there were no guarantees it would even work but she said it was my best chance for the type of MS that I had, DMTs were not as effective anymore and the transplant was not a DMT.

My Neurologist said that if the stem cell transplant was successful the benefits would be amazing. So, I started the transplant not hoping for a cure but hoping it would halt my MS in it’s tracks as it had already taken so much of the right side of my body.

Half way through the second half of the stem cell transplant I was noticing unexpected, instant results! I thanked God for giving me this opportunity because I know this doesn’t happen to everyone.

Now almost only 11 months in on this crazy rollercoaster stage of the transplant I’m happy to say I’m feeling a lot more energy and strength on my right side. I still got a bit of a way to go, the fight doesn’t stop here. While my MS sleeps my body can start to heal with no interruptions. The old lesions on my brain and spine are of course still there but don’t bother me so much. I feel a lot more positive about the future.

04/08/2022

What a perfect day! Congratulations to my Sister and my brother-in-law .the.phoenix on their traditional engagement/marriage! I love Ghanaian culture it feeds my soul. The colours, the people, the tribal storytelling was amazing. Makes me so proud to be Ghanaian/African 🇬🇭

12/07/2022

Thank you to everyone who have donated to our MS Society fundraiser! We are already half to our target goal🤯 God bless 🙏🏾🧡🧡🧡

Help Natalie Busari raise money to support Multiple Sclerosis Society

10/07/2022

To my Facebook peeps here is the Link to donate to our fundraising page:

Help Natalie Busari raise money to support Multiple Sclerosis Society

09/07/2022

MS Walk 2022! London - 17 September 2022. Our t-shirts arrived so that meant homemade photoshoot time for our fundraising webpage. Holding the camera outside was a nightmare so we had to get the camera stand out and have a timed photo 😩🤪. The has been such a big support to my MS journey since my diagnosis in November 2016 and I just want to give back and help raise money to support this charity’s mission to help STOP MS!
Please help me raise money for this amazing charity by donating on my fundraising page, big or small donations are very welcome, every little helps. LINK TO DONATE IN BIO.

09/07/2022

MS Walk 2022! London - 17 September 20Our t-shirts arrived so that meant homemade photoshoot time for our fundraising webpage. Holding the camera outside was a nightmare so we had to get the camera stand out and have a timed photo 😩🤪. The has been such a big support to my MS journey since my diagnosis in November 2016 and I just want to give back and help raise money to support this charity’s mission to help STOP MS!
Please help me raise money for this amazing charity by donating on my fundraising page, big or small donations are very welcome, every little helps. LINK TO DONATE IN BIO.

25/06/2022

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