23/04/2023
A new collaborative community newsletter for EDS is here! EDS S.H.A.R.E. is where patients, providers, and advocates come together in a joint effort to build a collection of the best resources on hypermobility, EDS, and its common comorbidities. It stands for what we do, we share: Sending Helpful Articles, Research, and Education. Because that's how we'll get through this, together. You can contribute to the growing knowledge base on how to get diagnosed, get treated, doctor webinars to watch, find helpful products and apps, and get ideas for how survive life with EDS. If you have a suggested news article, a blog, a resource or a new medical research publication you want to pass along, share it here. https://www.edsshare.com (This newsletter was created by a friend and I am just sharing the info.)