25/05/2026
“I started to feel poorly, with symptoms of a chest infection which I assumed would go away, because I was a healthy 21 year old, but it didn’t. I went to the doctor several times to get antibiotics, but I was getting worse. The last time I saw my GP, he thought I had sepsis, and told me to go straight to A&E.”
“When I got to hospital, they discovered there was fluid surrounding my heart and lungs, and it needed draining ASAP. That meant I had to be moved to a different hospital, and went straight in for a procedure to remove the pressure around my heart.”
“They sent me for various scans, but it wasn’t until the next day that the haematology team came, and confirmed after a bone marrow biopsy that I had acute lymphoblastic leukaemia, with T-cell variant.”
“I began chemotherapy, and as I went through each round, my doctor was searching for a matching stem cell donor. Thankfully, I went into remission and a matching donor was found! He was a German man, just a couple of years old than me.”
“In November, thanks to my donor, I was admitted to hospital ahead of my stem cell transplant. Healing was really tough - I struggled with extreme mucositis and feeling very tired. It’s now been 9 months since I was diagnosed, and I’m starting to feel more like myself again. Walking is starting to feel a bit easier, and I’m continuing to be monitored by the hospital.”
“My donor saved my life. With the variant of cancer I had, my only option was to have a stem cell transplant. Without him donating, my story could’ve ended a lot differently. I’m so thankful for my doctors, and to Anthony Nolan for getting people to join the register.”
Thankfully, Carlie-Jayne is looking forward to a healthy future now, but recovery has been tough. At Anthony Nolan, as well as finding matching donors for people in need of a stem cell transplant, we’re here to support patients and families going through the diagnosis, treatment and recovery process. If you need support, or just someone to talk to, we’re here on 0303 303 0303 or at patientinfo@anthonynolan.org.