03/05/2024
Eshan Unwell - Update 2.
Firstly, Eshan and I are so grateful for all the love, prayers, and personal messages that so many of you have sent. Thank you SO SO much. Every comment and thought, serves as a form of encouragement and hope for us both during these very difficult times.
I have read all the comments to Eshan and will continue to do so. ❤️
On the positive side, Eshan had a small gastro related operation on Wednesday. This operation went relatively well (insertion of a GJ tube), and he has since resumed his feed albeit much more slowly. I was very privileged to be allowed into the operating theatre with him, so I could hold his hand and keep him calm and comfortable as he was being sedated.
On the not so positive side, there are two incidences that have happened during our stay so far, that could have gone very badly wrong. When I think back to both of these, they are a reminder to me, of the fragility of life and how we are really not in control…
The first was on Saturday. We were on the way to a CT-Scan. I was concerned he may vomit, so I asked for a portable suction machine to help ensure he didn’t aspirate on his vomit. Surely enough, when we were en route, he did! So, I quickly reached for the suction machine… but the battery was flat! In a panic, we then tried to raise the head of the bed to have him more upright whilst vomiting, but the bed battery was also flat! We had to rush him back to his room and reconnect everything…
Then yesterday early morning, whilst he was in bed, I noticed something unusual about Eshan. He was over-excitable, but definitely not himself. Some moments later, he got very agitated, became very hot and then suddenly slipped into a 7-minute seizure, which was the most disturbing, harrowing, and traumatising thing I have ever seen happen to Eshan in recent times. Anything I did; hold his hand, stroke his hair, tell him that I loved him and that everything would be fine, seemed to have absolutely no impact because he was in a different ‘involuntary world and a victim to his own body in that moment.
After a combination of 6 medical professionals working on him, his heart rate eventually calmed down (went to 200+ beats per minute initially) and he slipped into a deep sleep.
Fortunately, today he is calmer and more relaxed and having some much-needed rest…Sleeping beauty... xx
Thank you all for your ongoing prayers and best wishes. They are greatly appreciated. ❤️
