05/05/2025
‘It has been an extremely stressful time.’
Lucy, whose dad Michael has Alzheimer’s, shares how difficult she has found the process of finding suitable care for someone in the later stages of their dementia journey.
‘Over 10 years ago, he started showing some signs of confusion and forgetfulness and was diagnosed with Alzheimer’s.
‘His symptoms progressed at a level pace. But around 18 months ago, they started to accelerate. The changes became more rapid.
‘And when it became apparent that Dad’s Alzheimer’s had progressed and he would need to move into a care home, it was a painful decision, especially for Mum.
‘Searching for a home that could give Dad the care he needs in the later stages of dementia was a sobering process.
‘Homes state on their websites that they care for people with dementia, but caring for someone in later stages is very different. Many care homes do not have the staff who are qualified to look after them.
‘We spent considerable time visiting care homes and reviewing Care Quality Commission reports. They were often out of date and did not provide adequate information to make an informed decision.
‘When Dad first entered his care home, there were many issues trying to settle him into a routine.
‘Since being in a care home, Dad’s Alzheimer’s has progressed quickly, and his behaviour has changed.
‘It is a rollercoaster when caring for someone with Alzheimer’s – the care they require never ends.
‘It’s exhausting and emotionally draining. We are currently working with the care home and healthcare professionals to diagnose if he can be moved to nursing care home.
‘The care provided in homes is dependent on the attitude and training of the staff.
‘We recognise that many care workers love their jobs but are not always provided with the resources, training, or tools to carry out their roles to their full potential.’