Epilepsy Sparks

Epilepsy Sparks Educating the 🧠⚡🔬🧬! Check out our podcast, YouTube, & website. We bridge the comms gaps between clinicians, academics, & people with an epilepsy!

09/04/2026

🧒🏿👧🏼👦🏽 Lots of children would benefit from epilepsy surgery but aren't getting it because they aren't being referred by their neurologist! 😱 In our latest podcast episode, Dr. Juan Perez 🇨🇴 shares the problems currently experienced - which are challenged by the persistence and positivity of himself and his colleagues! An inspiration to any clinician, person with an epilepsy, or carer!

Watch right here 👇!
🎬 https://youtu.be/soYzQgbOdt4

So many children could benefit from epilepsy surgery - but only 0.5% are referred! What's going on? Find out from epilep...
09/04/2026

So many children could benefit from epilepsy surgery - but only 0.5% are referred! What's going on?
Find out from epileptologist Dr. Juan Perez 🤩🇨🇴 who explains how lack of knowledge of neurologists - mixed with a dose of stigma - is leading to fewer referrals and far more children living with refractory epilepsy than need be!

Watch right here 👇!

🎬 https://youtu.be/soYzQgbOdt4

This episode is presented in partnership with EASEE®, by Precisis GmbH.

😮 Many neurologists don't do the best for their patients - because they don't consider putting those with refractory epi...
09/04/2026

😮 Many neurologists don't do the best for their patients - because they don't consider putting those with refractory epilepsy forward for epilepsy surgery assessment!

Learn why only 0.5% of the paediatric population are being considered (meaning that many are being left to indefinitely experience seizures unnecessarily) in Colombia and how this is being challenged! All with guest epileptologist Dr. Juan Carlos Pérez Poveda 🇨🇴🤩!

Hear/watch/read, here! 👇

🎬 https://youtu.be/soYzQgbOdt4

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🔔 Tomorrow we hear about why so many children are not even being considered for epilepsy surgery in - hint: one of the k...
08/04/2026

🔔 Tomorrow we hear about why so many children are not even being considered for epilepsy surgery in - hint: one of the key causes is lack of referrals by clinicians! Why is this?!
Find out tomorrow on the podcast Epilepsy Sparks Insights! With guest, epileptologist Dr. Joan Perez 🤩 🇨🇴!

Join us on your favourite platform and subscribe to support education re epilepsy! 👇

🎬 https://www.youtube.com/

02/04/2026

Exciting! Check out the snippet about Neuromodulation and the EASEE®Epilepsie device - with global lead consultant neurologist Prof. John Duncan 🤩🇬🇧!

Note that John speaks of the other neuromodulation devices including VNS, DBS, RNS, as well as other surgeries like resections!

If looking beyond antiseizure medications for focal epilepsy is of interest to you - check out this episode! 👇

🎬 https://youtu.be/-RjyOs7Aq7k

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

‼️ In about 30% of people, their seizures can't be controlled with meds. Thats when we look to !This week on the Epilep...
02/04/2026

‼️ In about 30% of people, their seizures can't be controlled with meds. Thats when we look to !

This week on the Epilepsy Sparks Insights podcast, global lead Prof. John Duncan 🤩shares with us

- what refractory focal epilepsy is
- the potential for resection and other types of invasive surgeries, then
- Neuromodulation types - like VNS, DBS, RNS, and that of our sponsor; EASEE®Epilepsie!

John is truly objective and empathetic with the experiences of people with refractory epilepsy; giving us all (clinicians included) a great low-down on experiences, possibilities, and the as of yet unknowns.

This was a live webinar on Tuesday, so if you missed it, tune in now! 👇🏻

https://youtu.be/-RjyOs7Aq7k

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🥺 It's awful but it's all too common: people have epilepsy and the medications don't work. What happens then?This week o...
02/04/2026

🥺 It's awful but it's all too common: people have epilepsy and the medications don't work. What happens then?

This week on the podcast you can hear all about refractory epilepsy, neurosurgery, and !

In this episode, Prof. John Duncan explains how treatment moves beyond medication - and why these decisions are rarely straightforward.

Hear what the real options are! 👇

https://youtu.be/-RjyOs7Aq7k

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

Our free webinar on Neuromodulation for Epilepsy 📅 Tuesday 31st March 09:00 (UK time). With Prof John Duncan from UCLH. ...
28/03/2026

Our free webinar on Neuromodulation for Epilepsy
📅 Tuesday 31st March 09:00 (UK time). With Prof John Duncan from UCLH. Who'd like to come? Register here! 👇
https://us06web.zoom.us/.../register/5-s5u8cAS8SidrMDqrk2tA

This'll be presented in partnership with EASEE®, by Precisis GmbH.

26/03/2026

🎬 Podcast clip! There's a lot of doom and gloom associated with epilepsy - understandably - but let's change that to make it cool to talk about, understand, and obtain research funding for!

In our latest episode, Intellectual Disability nurse Jay Price 🤩🇬🇧 shares her learnings from her latest qualitative study and paper "Epilepsy, it's just not sexy, is it?"! 💋

Let's all (patients, families, and clinicians) truly learn about the epilepsies and learn how to talk about them openly.

Let's have the lives of people with an valued as much as those with dementia or Parkinson's - let's see that through research funding.

Check out the whole episode now ! 👇

🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

26/03/2026

☺️ People with epilepsy can live meaningful lives! Let's spread understanding! Watch full episode on our Epilepsy Sparks Insights podcast. 👊

‼️ No, really! We need to improve the marketing for epilepsy and make it "sexier"! 👉 https://youtu.be/-pMjMXnYKKM (there...
26/03/2026

‼️ No, really! We need to improve the marketing for epilepsy and make it "sexier"! 👉 https://youtu.be/-pMjMXnYKKM (there's a paper on this by out guest Jay Price!) if we are to get more research and care funding!

Epilepsy isn't as "sexy" as Parkinson's, dementia, stroke, ALS, or Huntington's (even though epilepsy affects 630,000 in the UK and 65,000,000 worldwide and is linked closely to dementia)! It's not marketed in the same way. Patients and carers aren't as educated and open. Clinicians aren't as educated and open. 📘🗣️

Let's start with learning, spreading the knowledge, and working together!

Hear more from our fun, star guest Jay Price!! 👇

🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

🎙️ New episode for Purple Day! Epilepsy has an image problem! Why does epilepsy still receive so little funding, attenti...
26/03/2026

🎙️ New episode for Purple Day! Epilepsy has an image problem! Why does epilepsy still receive so little funding, attention and public understanding?!

In this week's Epilepsy Sparks Insights 🎬podcast, intellectual disability nurse Jay Price 🤩🇬🇧 challenges something uncomfortable:

👉 Most people – including many patients, families and clinicians – don’t understand epilepsy beyond tonic-clonic seizures!

Covered:
• Why epilepsy receives just 0.3% of UK heath research funding 😱
• How misdiagnosis and misunderstanding persist across care 🙄
• Why co-produced training could improve real-world support 🥳

This is not just a funding problem. It’s an understanding problem.

For Purple Day 2026, join us on the podcast, out now! 👇
🎬 https://youtu.be/-pMjMXnYKKM

This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

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Empowering those affected by epilepsy

Learn

To learn about epilepsy is a wondrous, ongoing process. The brain is so complex - the best doctors, scientists and researchers in the world will never know it all - but there is a lot we can learn and the information available is increasing rapidly.

Be Empowered

The more we understand our epilepsy (and the common mental illnesses that often accompany it) or the epilepsy of a loved one, colleague, or friend, the more confident we feel talking about it, and the more effectively we can provide support.