Epilepsy Sparks

Epilepsy Sparks Educating the πŸ§ βš‘πŸ”¬πŸ§¬! Check out our podcast, YouTube, & website. We bridge the comms gaps between clinicians, academics, & people with an epilepsy!

31/07/2025

🎞️ Trailer time! β€œWhat are Non-Epileptic Events?” Let’s stop the myths and start the convo! πŸ’₯
Watch this sneak peek from our chat with Neurologist Dr Parthvi Ravat 🀩🧠!
πŸ‘‰ https://youtu.be/fVIv1OTjfy0

➑️ Who gets dissociative/functional seizures?
➑️ Why are they so misunderstood?
➑️ What can help - and how do we give people hope?

🎧 Full episode out now - watch, listen, or read, here πŸ‘‡!
πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/xyeskjyubhkhug6z/223_ESI_Parthvi_Ravat_AUDIOanwyg.mp3
🎬 YouTube https://youtu.be/fVIv1OTjfy0
πŸ“„ Show notes http://torierobinson.com/epilepsy-sparks-insights/parthvi-ravat-fnd-non-epileptic-events

What are Non-Epileptic Events? πŸ€” Do they look like seizures? Are they psychological? Neurological? BOTH?! πŸ˜΅β€πŸ’«In our late...
31/07/2025

What are Non-Epileptic Events? πŸ€”
Do they look like seizures? Are they psychological? Neurological? BOTH?! πŸ˜΅β€πŸ’«
In our latest episode, Dr Parthvi Ravat breaks down:
🧠 The link between FND and epilepsy
πŸ’₯ Why some people have both epileptic & non-epileptic events
🧩 Common comorbidities: PTSD, anxiety, depression, pain, fatigue
πŸ› οΈ Treatment: CBT, trigger awareness, follow-ups
🌱 Why hope, awareness & research are key!

We need more compassion, better diagnoses, and fewer assumptions. Let’s get informed πŸ’¬! Watch/listen/read all the chat, here πŸ‘‡!

πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/xyeskjyubhkhug6z/223_ESI_Parthvi_Ravat_AUDIOanwyg.mp3
🎬 YouTube https://youtu.be/fVIv1OTjfy0
πŸ“„ Show notes http://torierobinson.com/epilepsy-sparks-insights/parthvi-ravat-fnd-non-epileptic-events

β€œThey Aren’t FAKE! Dissociative Seizures / Non-Epileptic Events” is out!πŸ‘‰ https://youtu.be/fVIv1OTjfy0 Dr Parthvi Ravat ...
31/07/2025

β€œThey Aren’t FAKE! Dissociative Seizures / Non-Epileptic Events” is out!

πŸ‘‰ https://youtu.be/fVIv1OTjfy0

Dr Parthvi Ravat 🀩 helps us untangle the science behind Functional Neurological Disorder (FND) and Non-Epileptic Events (also known as dissociative seizures or PNES) vs epilepsy!

We’re talking real symptoms, real science, and real hope. πŸ’œ

These episodes aren’t epileptic - but they are often misunderstood as being so. Parthvi explains how we can better diagnose, treat, and support people with NEEs!

🎧 Listen, learn, and share! πŸ‘‡

πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/xyeskjyubhkhug6z/223_ESI_Parthvi_Ravat_AUDIOanwyg.mp3
🎬 YouTube https://youtu.be/fVIv1OTjfy0
πŸ“„ Show notes http://torierobinson.com/epilepsy-sparks-insights/parthvi-ravat-fnd-non-epileptic-events

24/07/2025

🎞️ Trailer! πŸ˜΅β€πŸ’« Common, unknown confusion: is that seizure actually a seizure...or is it a migraine? Or, is that migraine actually a migraine... or a seizure?!
Well, it's kind of important to know πŸ™„πŸ€ͺ! Dr Lucas Orellana πŸ‡¦πŸ‡· 🀩 shares what we thought we knew - and what we still don’t - about the links between & πŸ’‘!
πŸ‘‡ Watch the full episode of the Epilepsy Sparks Insights podcast for a deep dive into shared treatments, diagnostic dilemmas, and how to actually improve people's quality of life (after all, THAT'S our real aim)!! πŸ‘‡

🎧 Podcast: https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 YouTube: https://youtu.be/6-P2RZ5Z-DA
πŸ“„ Show notes + transcript: http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

🀯 Is it a migraine? A seizure? Or both?!πŸ‘‰ https://youtu.be/6-P2RZ5Z-DA In this Epilepsy Sparks Insights 🎧 episode, Dr. L...
24/07/2025

🀯 Is it a migraine? A seizure? Or both?!

πŸ‘‰ https://youtu.be/6-P2RZ5Z-DA

In this Epilepsy Sparks Insights 🎧 episode, Dr. Lucas Orellana breaks down:

⚑ How so many people live with BOTH epilepsy & migraine
🧬 The links between the two
πŸ’Š Why some meds work for both
🧠 Why personalised care matters more than ever
πŸŒ™ Sleep, stress & hormones: common triggers!

Tune in for science, stories & sparks of insight πŸ’₯, right here πŸ‘‡!

🎧 https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 https://youtu.be/6-P2RZ5Z-DA
πŸ“„ http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

πŸŽ™οΈ NEW EPISODE OUT NOW!"Migraine & Epilepsy: Best Friends?" – with the cool neurologist & epileptologist Lucas Orellana!...
24/07/2025

πŸŽ™οΈ NEW EPISODE OUT NOW!
"Migraine & Epilepsy: Best Friends?" – with the cool neurologist & epileptologist Lucas Orellana! 🧠⚑ πŸ‘‰ https://youtu.be/6-P2RZ5Z-DA
What do seizures and migraines have in common? πŸ€” Turns out… quite a bit! Join us as Lucas shares fascinating insights into how these conditions overlap, why diagnosis can be tricky, and how a personalised approach is absolutely key. πŸ’₯πŸ’Š , right here πŸ‘‡!

🎧 https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 https://youtu.be/6-P2RZ5Z-DA
πŸ“„ http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

🧠🌍 It's World Brain Day 2025!! 🌍🧠 To hear some positivity and about changing the world for the better - now and in the f...
22/07/2025

🧠🌍 It's World Brain Day 2025!! 🌍🧠 To hear some positivity and about changing the world for the better - now and in the future - have a watch/listen https://youtu.be/GlewPTrz59U !! And, reg for the big global webinar at 13:00 BST today! With star neurologist Tissa Wijeratne, here https://zoom.us/webinar/register/WN_63KVbsCFSIC6GvKFqeqyGA #/registration !!

Torie Robinson interviews Prof. Tissa Wijeratne about World Brain Day 2025, discussing its history, significance, and current themes. They explore the import...

17/07/2025

πŸŽ‰ Check out the trailer πŸ‘‡ for our latest episode! 🎬
Dr. Daniel Goldenholz πŸ‘¨β€πŸ”¬ shares how he’s using 3D printing to make the world safer for people experiencing generalised seizures. From design to accessibility to community engagement - see how SafeSteps is changing the game, globally! πŸ–¨οΈπŸ’œπŸŒŽ

Think:
βœ… Caregiver support
βœ… Public awareness
βœ… Subtlety
βœ… Practical, durable, customisable tools

Watch/listen/read now πŸ‘‡!

πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
πŸ“„ Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
πŸ”— Safesteps platform https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

πŸ–¨οΈβœ¨ How can 3D printing make seizures safer?In our latest episode with Dr. Daniel Goldenholz πŸ‡ΊπŸ‡Έ from Beth Israel Deacone...
17/07/2025

πŸ–¨οΈβœ¨ How can 3D printing make seizures safer?

In our latest episode with Dr. Daniel Goldenholz πŸ‡ΊπŸ‡Έ from Beth Israel Deaconess Medical Center & Harvard University, we explore:

πŸ” What these 3D-printed seizure safety tools actually look like
πŸ–¨οΈ How you can print them at home or in clinics
🌍 Languages available for global accessibility
πŸ“± QR codes & NFC chips to guide the public during emergencies
🎨 Custom features for sensory and personal needs
πŸ›‘οΈ Built to last with durable, lightweight materials
🀝 Community power – spreading awareness through collaboration!

This is practical innovation designed to help caregivers, the public, and everyone in the epilepsy community. πŸ’œ

Listen to/watch/read here πŸ‘‡!!

πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
πŸ“„ Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
πŸ”— Safesteps platform
https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

πŸš€ New Episode Alert! β€œHow To Be Safer During Seizures: SafeSteps!" - is out now! πŸŽ™οΈThis week on Epilepsy Sparks Insights...
17/07/2025

πŸš€ New Episode Alert! β€œHow To Be Safer During Seizures: SafeSteps!" - is out now! πŸŽ™οΈ

This week on Epilepsy Sparks Insights, we're joined by Asst. Prof. Daniel Goldenholz 🀩 - Epileptologist, Neurologist, and Researcher - who’s revolutionising seizure safety with 3D printing! πŸ–¨οΈβœ¨

We talk about empowering caregivers and the public to help during seizures with accessible, customisable tools. Join us for this inspiring chat about innovation, awareness, and supporting our epilepsy community. πŸ’œ Join us here πŸ‘‡!!

πŸŽ™οΈ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
πŸ“„ Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
πŸ”— Safesteps platform https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

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Empowering those affected by epilepsy

Learn

To learn about epilepsy is a wondrous, ongoing process. The brain is so complex - the best doctors, scientists and researchers in the world will never know it all - but there is a lot we can learn and the information available is increasing rapidly.

Be Empowered

The more we understand our epilepsy (and the common mental illnesses that often accompany it) or the epilepsy of a loved one, colleague, or friend, the more confident we feel talking about it, and the more effectively we can provide support.