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Vitaccess

Vitaccess is a multi-award-winning leader in generating science-driven, patient-centric real-world evidence, founded in 2017.

Helping biopharma generate real-world data and insights through creative patient-centric solutions

Combining technology and patient-centered science to deliver real-world research

Innovators in real-world evidence research

We connect biopharma to patients and caregivers on any device, worldwide – harnessing our scientific expertise and cutting-edge digital technology to generate real-time, real-world insights.

13/04/2026

We're delighted to announce the appointment of Matt Reaney as Chief Scientific Officer at Vitaccess.

Matt joins us with over 20 years' experience in patient-centered research and clinical outcome assessment. His career spans leadership roles at IQVIA, Sanofi, Eli Lilly, ERT, and Oxford Outcomes, giving him a deep understanding of translating patient insights into meaningful real-world evidence across multiple therapeutic areas.

His appointment strengthens our scientific leadership at a crucial time. As regulators and payers increasingly prioritize patient-centered approaches in their decision-making, Matt's expertise will be invaluable in helping us continue to deliver real-world evidence that makes a genuine difference for patients and caregivers worldwide.

Welcome to Vitaccess, Matt. We're excited to have you on the team!

Read the full announcement: https://bit.ly/48hxIKz

09/04/2026

We're excited to be heading to the American Academy of Neurology (AAN) Annual Meeting, 18-22 April, in Chicago.

Our Head of Commercial, Anna Richards, and Director of Analytics, Ash Clift, will be there to share insights from our work across neurological conditions, including myositis, CMT, DMD, migraine, and MG.

Stop by to see our poster presentation: "Linking Clinical and Patient-Reported Outcomes Data: The Vitaccess Real CIDP (VRCIDP) Registry." We'll be showcasing how our first-of-its-kind patient registry in CIDP brings together clinical and patient-reported data to generate meaningful real-world evidence.

Learn more about the AAN Annual Meeting here: https://bit.ly/4thczbk

08/04/2026

We’re delighted to share the launch of the Vitaccess Real CIDP Registry, alongside the enrolment of the first patient.

There remains a significant insight gap in rare disease, particularly between what clinical trials capture and what patients and caregivers experience over time.

In chronic inflammatory demyelinating polyradiculoneuropathy (CIDP), that gap is especially pronounced. CIDP is a rare autoimmune disorder that leads to progressive weakness, sensory loss, and impaired mobility.

The registry is a collaboratively designed, patient-centred research platform, developed in partnership with advocacy groups, clinicians, and academic partners. It aims to generate longitudinal, real-world evidence integrating patient-reported outcomes, clinical data, and medical records within a single, secure framework, with the goal of improving the standard of care for patients and caregivers living with CIDP.

The registry is guided by a leading Scientific Advisory Board that includes Professor Yusuf Rajabally, Professor Ali Habib, and Professor Mark Stettner, alongside patient advocacy representatives Nancy Di Salvo and Rich Collins.

You can read more about the registry on our website here:

02/04/2026

Meet Anna Richards, Head of Commercial at Vitaccess and a driving force behind our global patient-centered research, including the Vitaccess Real MG Registry in partnership with Myasthenia Gravis Foundation of America, Inc.

From her early days managing projects across over 100 languages to now shaping commercial partnerships, Anna brings a unique perspective to real-world evidence generation and patient-centricity, deeply informed by her passion for language, travel, and cross-cultural communication.

Anna also discusses why patient perspectives aren't just a philosophy, they're fundamental to everything we do. At Vitaccess, we want to make sure our registries capture true patient experiences across diverse populations.

Read the full Q&A here: https://bit.ly/41NDWxL

Anna will be attending the MGFA National Patient Conference, April 12-14, if you’d like to connect and discuss patient-centered research.

31/03/2026

We’re looking forward to attending the Myasthenia Gravis Foundation of America, Inc. (MGFA) National Patient Conference on 12-14 April.

Our Founder & CEO, Mark Larkin, and Head of Commercial, Anna Richards, will be in attendance, connecting with patients, caregivers, and the wider community.

We will be presenting a session on the MGFA & Vitaccess Patient Registry titled ‘Harnessing Patient Data for Better MG Care’ on Monday 13 April, 1:40pm ET.

This session reflects our ongoing commitment to building patient-centred, real-world evidence through collaboratively designed registries.

If you’re attending, we’d be delighted to connect.

You can find more detail on the agenda here: https://bit.ly/4s42HRc

25/03/2026

As we lead up to the MGFA National Patient Conference, 12-14 April, we’re spotlighting key members of the Vitaccess team that bring our work in Myasthenia Gravis to life.

Meet Amini, who has been instrumental in building our Vitaccess Real MG Registry (VRMG) from the ground up, now in partnership with the Gravis Foundation of America, Inc (MGFA).

From neuroscience and immunology research to leading patient-centered real-world studies, Fatemeh has been instrumental in our work at Vitaccess. She's been involved in every aspect: developing the digital platform, speaking directly with patient participants, and engaging with the MGFA and our Scientific Advisory Board.

Fatemeh shares insights into communicating patient-centered stories, the parallels between creative work and research design, and what drives her passion for real-world evidence generation.

Read the full Q&A here: https://bit.ly/3PucK4v

16/03/2026

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited neurological disorders, affecting the peripheral nerves that control movement and sensation.

For many people living with , symptoms such as muscle weakness, balance difficulties, foot deformities, and fatigue can progressively impact daily activities, independence, and quality of life. Yet the lived experience of the disease often remains under-represented in clinical data.

At Vitaccess, we have had the privilege of contributing to the evidence base in CMT through a number of peer-reviewed publications focused on real-world patient experience. Our work has explored areas such as symptom burden, disease progression, and the broader impact on daily life, insights that are critical for understanding unmet need and informing future research and care.

With the upcoming Academy of Neurology Annual Meeting next month in Chicago, we’re looking forward to continued conversations with the neurological research community about how real-world evidence and patient-centred research can help deepen our understanding of complex neurological conditions.

12/03/2026

In patient-centered research, curiosity isn't just a nice-to-have quality, it's fundamental to generating evidence that truly matters.

When teams are genuinely curious about patient and caregiver experiences, not just their data points, they ask "why" and "what if". They conduct more insightful interviews, design studies that reflect real-world complexity, and focus on measuring what's meaningful rather than what's easy to measure. They want to understand not just what patients experience, but why it matters and how it affects their lives.

At Vitaccess, our team exudes the spirit of curiosity every day. We never stop asking questions, challenging our own thinking, and approaching each project with genuine interest in uncovering insights that can improve patient and caregiver outcomes.

The most meaningful evidence doesn't come from following a formula, it comes from curious minds committed to understanding the bigger picture.

28/02/2026

Today on Rare Disease Day, we want to recognize the millions of people worldwide living with rare conditions.

At Vitaccess, we’re privileged to work alongside patients and advocacy groups representing multiple rare disease communities, building evidence to inform better treatment decisions and improve patient outcomes. From myasthenia gravis to sickle cell disease, cystic fibrosis to rare metabolic conditions, we've seen firsthand how powerful patient voices become when combined with rigorous scientific methodology and a long-term perspective.

Patients and caregivers aren't just data points, they're individuals navigating unpredictable symptoms, complex treatment journeys, and the daily reality of living with conditions that many healthcare systems struggle to fully understand.

To everyone in the rare disease community, patients, caregivers, clinicians, and advocates, thank you for your continued trust and collaboration. Your voices drive better research, which drives better care.

26/02/2026

Our CEO Larkin and Director of Patient-Centered Research, Llewellyn will be attending the Evidence, Pricing and Access Congress 2026 in Amsterdam, from 3-4 March, 2026.

If you are attending and would like to schedule a meeting with Mark or Sam to learn more about Vitaccess and our work in patient-centered, science-driven real-world evidence generation, please get in contact with our team via: info@vitaccess.com

24/02/2026

Patient recruitment for real-world studies is often described as a numbers problem, but in reality, it’s a trust problem.

So, what actually makes patients say yes to a study?

From our experience, it’s rarely a single factor. It’s about whether participation feels meaningful, respectful, and feasible alongside everyday life.

Patients are more likely to engage when they can see value for themselves, not just for future research. That can include access to their own study data, visibility of information drawn from their medical records, or simply understanding how their contribution fits into the bigger picture.

Ensuring patients feel valued and listened to is vital. Many participants are motivated by the opportunity to contribute to research, to share lived experience, and to help improve care for others with the same condition, particularly in rare diseases, where a sense of community is very strong.

It is also important to factor in patients’ everyday lives. By making it easy to take part from home, on any device, you reduce burden and remove additional barriers. Thoughtful compensation and regular acknowledgement of participants’ time also signal respect, not reward.

When studies are designed around patients, their time, their priorities, and their daily realities, recruitment becomes less about persuasion and more about partnership.

See our website for more evidence about how we focus on patients: https://bit.ly/4am3pDJ

19/02/2026

Excited to see our MGFA partnership making waves in the MG community!

Steve Bryson from Myasthenia Gravis News has covered our collaboration with the Myasthenia Gravis Foundation of America, Inc., highlighting how we're working together to address the critical gap between clinical trial data and real-world evidence to improve patient care for those living with MG.

While clinical trials can show whether a therapy works under controlled conditions, they often miss the long-term, day-to-day patient experiences that regulators, payers, and HTA bodies are looking for.

The piece captures exactly why this partnership matters: we're combining MGFA's deep connection with the MG community with our scientific expertise to build evidence that can improve outcomes for patients and caregivers living with MG.

Looking forward to our upcoming webinar with the MGFA on Friday 20 February on how the Vitaccess Real MG (VRMG) registry is strengthening the patient voice and advancing real-world evidence to support better care for people living with MG - including how patients and clinicians can get involved.

Read the full article here: https://hubs.ly/Q043MMc60

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2nd Floor Nucleus House, 2 Lower Mortlake Road, Richmond
London
TW92JA

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

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+44 1865 818983

Website

https://www.vitaccess.com/contact/

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