John’s Glioblastoma Journey

John’s Glioblastoma Journey Following the journey of John after being diagnosed with Stage 4 GBM

Thank you so so so much to who finished The Hyde Park 10k in record time on Saturday! Thank you so much for your incred...
18/02/2024

Thank you so so so much to who finished The Hyde Park 10k in record time on Saturday! Thank you so much for your incredible effort and for raising so much money for our cause we and are incredibly grateful to you ❤️!

Me, & taking a countryside walk! 🌳 😊 ❤️
18/02/2024

Me, & taking a countryside walk! 🌳 😊 ❤️



Back on the course ⛳️! ☀️ Featuring… !
18/02/2024

Back on the course ⛳️! ☀️

Featuring… !

Hello everyone! Meet Optune for my brain care 🧠! This device is INCREDIBLE and can help prolong the lives of people with...
18/02/2024

Hello everyone! Meet Optune for my brain care 🧠! This device is INCREDIBLE and can help prolong the lives of people with ☀️

🧠 I need to wear it 90% of the time at least
🧠 I carry my battery pack around with me on my back!
🧠 I am feeling very positive because this gives me the feeling that I have (some) control of my care!

Lovely time last week in South Wales and the West! 🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿 Looking forward to more breaks like this! 😄😎🏞👫🎎✨️ Keep...
09/02/2024

Lovely time last week in South Wales and the West! 🏴󠁧󠁢󠁷󠁬󠁳󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿 Looking forward to more breaks like this! 😄😎🏞👫🎎✨️ Keeping active and focusing on quality of life is essential! ☺️💪🚶‍♂️‍➡️🚶‍♀️‍➡️🍀 Your support helps make times like this possible! Thank you! ♥️

☀️ a poem about gratitude because we are so grateful to each of you ☀️☀️☀️☀️☀️☀️☀️☀️☀️A Life Full of Gratitudeby Catheri...
04/02/2024

☀️ a poem about gratitude because we are so grateful to each of you ☀️

☀️☀️☀️☀️☀️☀️☀️☀️

A Life Full of Gratitude
by Catherine Pulsifer
May my life be full of gratitude
May it be shown in my attitude
By the way that I act
And with any and all contacts.

Let my appreciation show
Expressing it quickly not to slow
For those who have helped me along
Even when I was stubborn and wrong.

May the kindness that was shown to me
Be kindness that I return so easy
May I always lend a hand
To a child, woman, or man.

You see a life of gratitude is one
That makes you appreciate all that is done.
You count your blessings every day
From the time you are young until you are gray.

☀️☀️☀️☀️☀️☀️☀️☀️

One to zoom in on! ✅Some technical information on GBM ✅
04/02/2024

One to zoom in on! ✅

Some technical information on GBM ✅

Go go go we are so grateful and impressed by your amazing running!!! We can’t wait to see you run the 10k Hyde Park run...
03/02/2024

Go go go we are so grateful and impressed by your amazing running!!! We can’t wait to see you run the 10k Hyde Park run in just TWO WEEKS! It’s incredible! Thank you from us and on behalf of ❤️ we are routing for you!!! 🏃‍♀️ 🏃‍♀️ 🏃‍♀️!

Thank you so much and Tom for your amazing efforts for our cause!!! 🏃‍♂️ 🏃‍♂️ 🏃‍♀️ 🏃‍♀️ you’re going to absolutely smas...
02/02/2024

Thank you so much and Tom for your amazing efforts for our cause!!! 🏃‍♂️ 🏃‍♂️ 🏃‍♀️ 🏃‍♀️ you’re going to absolutely smash the run and we are so so so grateful thank you 🙏❤️

Please donate through the “Team Johnfightsgbm” link above! Thank you so much again!

Beginning to feel the effects of my radiotherapy which finished last week but understand that’s to be expected. I have a...
23/01/2024

Beginning to feel the effects of my radiotherapy which finished last week but understand that’s to be expected. I have always been and early riser and at least up and out by 7am! 🕰 but recently I’ve noticed that I’m feeling a little tired! Radiotherapy and chemotherapy is what a person living with GBM receives during their first 6 weeks of treatment and that’s protocol here in the UK. GBM patients tolerate it all very differently and I think I fared quite well really! We decided to walk off the tiredness and it seems to be doing the trick! Love air! With ☺️❤️☺️

As from today we now embrace no hair 👨‍🦲🙏..!A small price to pay for modern medicine but let’s not underestimate the imp...
19/01/2024

As from today we now embrace no hair 👨‍🦲🙏..!

A small price to pay for modern medicine but let’s not underestimate the importance of a good head of hair especially when it’s chilly 🥶 outside! 😊

Any light hat recommendations are welcome - the more stylish the better please! Are there any friends out there with some good hat 🧢 suggestions?!

🧡 MILESTONE REACHED 🧡Today was my last radiotherapy and chemotherapy day from my six week treatment under Standard of Ca...
18/01/2024

🧡 MILESTONE REACHED 🧡
Today was my last radiotherapy and chemotherapy day from my six week treatment under Standard of Care. Thank you for everyone who has asked after me and we really hope that the treatment has worked. Now we start the next stage 👍

Grateful to all of the staff at Queens Hospital 🏥❤️

Thank you to 🏅 and her partner Peter for taking part in the Maldon Mud Race to raise money for my cause! Wow!Rosie says...
15/01/2024

Thank you to 🏅 and her partner Peter for taking part in the Maldon Mud Race to raise money for my cause! Wow!

Rosie says:

“The maldon mud race course is through the smelly tidal river bed, over to the middle bank and back again... if you don't get stuck and need pulling out that is!!

Having taken part in this race 5 years ago and saying at the time how I'd never do it again, (I was quite happy to just watch the future races with a glass of prosecco in hand), it was going to need to be a very deserving cause to persuade me otherwise!

Well, there is now. We are running this year for my friend's dad, John. We would be so grateful for any sponsor donations, to raise as much as we can to help towards his fight with GMB 🤜🏻”

Thank you 😊 so much we are so grateful and we can’t believe how much mud there is! Muddy! 💪

Lovely walk in the woods! Exercise is key when on chemo and a good dose of fresh air does everyone good! 🌳 🥾 happy weeke...
13/01/2024

Lovely walk in the woods! Exercise is key when on chemo and a good dose of fresh air does everyone good! 🌳 🥾 happy weekend everyone!

Please come together and support my wonderful nephew Matthew’s Cold Water Swims to help to raise money for my treatments...
13/01/2024

Please come together and support my wonderful nephew Matthew’s Cold Water Swims to help to raise money for my treatments!

Thank you and hold onto those toes in the freezing cold sea 🌊!! ❤️

Please come together and support our team page at the top of our page and support my wonderful nephew Matthew’s Cold Wa...
13/01/2024

Please come together and support our team page at the top of our page and support my wonderful nephew Matthew’s Cold Water Swims and Dry January!

Thank you and hold onto those toes in the freezing cold sea 🌊!! ❤️

Please do tune in to Dr. Matt Williams’s lectures and guest lectures taking place from Thursday 25 January:🧠 Thurs 25th ...
13/01/2024

Please do tune in to Dr. Matt Williams’s lectures and guest lectures taking place from Thursday 25 January:

🧠 Thurs 25th Jan 5pm Prof. Stefaan Van Gool (Head of Translational Oncology, IOZK)
🧠 Thurs 22nd Feb 5pm Mr. Ranjeev Bhangoo (Consultant Neurosurgeon, Kings College Hospital)
🧠 Tues 19th March Dr. Cressida Lorrimer (Clinical Oncologist, Brighton)
🧠 Thurs 25th April 5pm Dr. Raj Jena (Group Leader, University of Cambridge)
🧠 Tues 28th May Prof. Michael Jenkinson (Liverpool) "Meningioma: The good, the bad and the ugly"

The link is at the top of our page to register. Let’s keep learning and sharing and hoping that we get the support required to make treatments accessible to everyone 🗣

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