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Sickle Cell Society UK

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Sickle Cell Society UK

The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group o

The Sickle Cell Society is a registered charity that supports and represents people affected by sickle cell disease to improve their overall quality of life.

24/09/2025

✏️ Author Antoinette Brooks has shared 10 top tips for teachers supporting children returning to school — especially those navigating health challenges.

Read her advice in the article linked here: https://buff.ly/GB4wCt0 📖✨

22/09/2025

🎓✨ Transition Workshop ✨🎓

Are you aged 15–18 and living with sickle cell in North East London? Join our online workshop on Thursday 25 September, 5–6:30PM.

This session will cover:
✔️ Rights and adjustments
✔️ Exploring next steps – university or career
✔️ Post-transition patients’ experiences
✔️ Managing anxieties

📌 Don’t miss this chance to prepare for your next chapter with confidence!

👉 Sign up here: bit.ly/sicklefuture

22/09/2025

✨ Get to Know the Author ✨

We sat down with Antoinette Brooks to hear about her life and the journey of writing The Secret Diary of Joynina K. Jones. 📖💫

In our chat, Antoinette shares what inspired the story, why it’s important to highlight long-term health conditions like sickle cell, and what she hopes readers will take away from Joynina’s journey. She also leaves a heartfelt message for anyone going through a similar experience. ❤️

21/09/2025

📢 Last chance to apply!

Join the Sickle Cell Society as our Mentoring Programme Coordinator and help make a difference in the lives of young people living with sickle cell. This role is vital to supporting mentors, coordinating the programme, and ensuring smooth delivery across the community.

Applications close on 29 September — apply now via the link 🔗 in bio.

19/09/2025

🩸 Have Your Say: Martha’s Rule

Martha’s Rule gives patients & families the right to request an urgent review if they feel their concerns aren’t being heard. Each ward should display a number to call, connecting patients directly with the critical care outreach team.

A short survey has been developed to capture awareness of Martha’s Rule among people living with sickle cell. 📩 Have your say now and take the survey here: https://buff.ly/bCQ0tFy

16/09/2025

On 4 September, the Sickle Cell Society held a parliamentary meeting with patients and medical professionals to discuss updates and improvements in sickle cell healthcare.

We were pleased to be joined by MP and thank everyone who attended. We look forward to hosting more regular meetings in the future.

11/09/2025

🩸 Have Your Say: Sickle Cell & Genomics Research Priorities

We’re excited to launch the Shortlisting Survey for the Sickle Cell & Genomics Priority Setting Partnership (PSP). This is your chance to help shape the Top 10 research priorities.

Whether you’re living with sickle cell, a carer, healthcare professional, researcher, or advocate — your voice matters.

📩 Take part here: https://www.surveymonkey.com/r/YVHCF5Q

⏳ Survey closes: 14 October 2025

Your feedback will directly influence the future of research in this vital field.

09/09/2025

🩸 Sickle Cell Awareness Month Webinar

On Wednesday 17 September (11:45am – 12:45pm), the LGT Multicultural Inclusion Network is hosting an online event featuring:

A talk from John James OBE, Chief Executive of the Sickle Cell Society

Clinicians from LGT’s Acute Sickle Cell Unit, sharing updates from a nationwide trial to improve rapid access to crisis treatment

Mental health specialists supporting adults and children with sickle cell & thalassaemia

Lewisham and Greenwich NHS Trust serves the 5th largest sickle cell population in the UK and is part of a growing network improving access to care.

📍 Online via Microsoft Teams
Meeting ID: 370 222 910 025 | Passcode: FG6of6Fr
https://buff.ly/LQNgSJC

09/09/2025

🩸 Last Call: Help Shape a Sickle Cell Exhibition

Our Journey, Our Story was first shown in 2021. It’s now being adapted for display at the Royal London Hospital — and we want Barts NHS patients’ voices at the heart of it.

We’re looking for two Barts NHS patients living with sickle cell to join a small Patient Committee.👉 If you are not a Barts NHS patient, please do not apply.

What’s involved:

💠 1–2 short sessions (Sept/Oct 2025)

💠 Share your views on themes, language & representation

💠 Time commitment: up to 3 hours (flexible)

£125 honorarium. No experience needed — just your perspective and reflections.

📩 Apply by 11 Sept 2025
Email Heritage.Project@sicklecellsociety.org
with:

💠 A little about yourself

💠 Why you’d like to take part

💠 Anything you’d like us to know about your sickle cell journey

Let’s make sure this exhibition reflects real patient experiences.

08/09/2025

🚨 Big news: Group Blood Donation Bookings are going nationwide! 🩸

This new NHSBT service makes giving blood more welcoming and supportive — whether you book with friends, colleagues, or community groups.

Why it matters:
Black donors are urgently needed to give the best match for people with sickle cell, who often need regular transfusions. Currently, only 50% of transfusions are the best possible match.

📍 Upcoming sessions
• Brixton – Sat 20 Sept
• Shepherd’s Bush – Sat 6 Sept
• Stratford – Thu 25 Sept
• Birmingham – Sat 27 Sept
• Manchester (Plymouth Grove) – Sat 27 Sept

✅ Book now via the Group Booking page, or contact us to arrange a larger group slot. New donors must register at blood.co.uk for a Donor ID before booking.

This 6-month trial depends on community support — let’s fill these sessions and show the demand for more!

02/09/2025

📢 We’re hiring! Join the Sickle Cell Society as our new Mentoring Programme Coordinator and help make a difference in the lives of young people living with sickle cell. This role is key to supporting mentors, coordinating the programme, and ensuring smooth delivery across the community.

👉 Find out more and apply today: https://buff.ly/XFFP9Ga

01/09/2025

🏃🏿The countdown is on!
We’re looking for passionate runners to join Team Sickle Cell at the 2026 TCS London Marathon.

This is your chance to take on one of the world’s most iconic races, make every mile matter, and raise vital funds for people living with sickle cell.

Places are limited — don’t miss your shot to be part of something unforgettable.

👉🏿 Register your interest today: https://buff.ly/snETNwE

Address

54 Station Road
London
NW104UA

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.sicklecellsociety.org/

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