Sickle Cell Society UK

Sickle Cell Society UK The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group o

The Sickle Cell Society is a registered charity that supports and represents people affected by sickle cell disease to improve their overall quality of life.

🏃‍♂️ Hackney Half 2026 – One space available!Don’t miss your chance to run with Team Sickle Cell and make every mile cou...
14/04/2026

🏃‍♂️ Hackney Half 2026 – One space available!

Don’t miss your chance to run with Team Sickle Cell and make every mile count.

Take on this iconic race while raising vital funds to support people living with sickle cell — your effort can make a real difference.

📩 Register your interest now: fundraising@sicklecellsociety.org

⏰ Deadline: 17 April, 10am

Lace up, join the team, and run for a cause that matters.

A huge thank you to the students and staff at St Mary’s Calne for their incredible Charity Week supporting both the Sick...
14/04/2026

A huge thank you to the students and staff at St Mary’s Calne for their incredible Charity Week supporting both the Sickle Cell Society and Womankind.

We’re so grateful that an amazing £6,168.24 was raised for the Sickle Cell Society — part of a fantastic week of fundraising and community spirit.

Our CEO, John James, also had the pleasure of joining the Open Mic Night to share more about our work and connect with such an inspiring group of young people.

Thank you again for your generosity, energy and commitment to making a difference — we truly appreciate your support 💛

📣 Join us for: Sickle Cell – Resilience Through the YearsA special day celebrating the strength, stories and lived exper...
11/04/2026

📣 Join us for: Sickle Cell – Resilience Through the Years

A special day celebrating the strength, stories and lived experiences of people ageing with sickle cell. We welcome individuals, families and carers to come together for a day of connection, learning and community.

🗓 Saturday 18 April 2026
⏰ 10am – 5pm
📍 St Anne’s Church, Soho, London

Enjoy a mix of art, conversation, wellbeing activities, food and guest speakers — all centred on ageing well with sickle cell.

📲 RSVP via the QR code on the poster

Wishing everyone a peaceful and joyful Easter 🌼A time for reflection, hope and new beginnings — we hope this season brin...
05/04/2026

Wishing everyone a peaceful and joyful Easter 🌼

A time for reflection, hope and new beginnings — we hope this season brings you moments of rest, happiness and connection with loved ones.

From all of us at the Sickle Cell Society, we’re sending you warm Easter wishes. 💛

📢 Deadline extended: North West Programme ManagerThere’s still time to apply for this exciting opportunity to lead and d...
02/04/2026

📢 Deadline extended: North West Programme Manager

There’s still time to apply for this exciting opportunity to lead and deliver our Children & Young People’s Peer Mentoring Programme across the North West.

If you’re passionate about improving the health and wellbeing of young people living with sickle cell and have experience in programme delivery and leadership — we’d love to hear from you.

📅 New closing date: 29 April 2026

🔗 Apply now:
https://buff.ly/E6pLbdI

📢 We’re looking for Mentors – North West EnglandJoin our Children & Young People’s Peer Mentoring Programme and help sup...
02/04/2026

📢 We’re looking for Mentors – North West England

Join our Children & Young People’s Peer Mentoring Programme and help support young people living with sickle cell to build confidence, navigate challenges, and improve their wellbeing.

We’re currently recruiting:
📍 Liverpool – Lead Mentor & 2 Mentors
📍 Manchester – 2 Mentors
📍 Sheffield – 1 Mentor

This is a paid opportunity to make a real difference in your community.

🔗 Find out more and apply:
https://buff.ly/LS0BY2f

📣 We’re looking for volunteers!We’re recruiting healthcare professionals and non-clinical volunteers to support families...
01/04/2026

📣 We’re looking for volunteers!

We’re recruiting healthcare professionals and non-clinical volunteers to support families at our Sickle Cell Family Retreat 2026.

This special weekend is designed for children living with sickle cell and their families — featuring educational sessions, adventure activities, relaxation, peer support, and a fun-filled Saturday night disco.

Everything is created to be safe, inclusive and meaningful — and we’d love you to be part of it.

If you’re passionate about making a real difference, apply now.

📅 Applications close: 10 April 2026
🔗 Apply here: https://buff.ly/2cBTCQr

📣 Join us for a Sickle Cell Engagement EventWe’re bringing together patients, families, advocates and healthcare profess...
30/03/2026

📣 Join us for a Sickle Cell Engagement Event

We’re bringing together patients, families, advocates and healthcare professionals to share updates on the Sickle Cell Care Improvement Plan and hear directly from the community.

This is your opportunity to share your experiences, reflections and help shape improvements in care.

📅 Saturday 16 May 2026
🕛 12–3pm (lunch from 12pm)
📍 Governor’s Hall, St Thomas’ Hospital, London

The event will be held both in person and online — please register via the appropriate link below:

🔗 In person:
https://www.eventbrite.co.uk/e/sickle-cell-engagement-event-in-person-invite-tickets-1984301346744?aff=oddtdtcreator

🔗 Virtual:
https://www.eventbrite.co.uk/e/sickle-cell-engagement-event-virtual-invite-tickets-1984559060573?aff=oddtdtcreator

Only 2 weeks left to visit the Sickle Cell Society Exhibition — Our Journey, Our Story: History and Memory of Sickle Cel...
30/03/2026

Only 2 weeks left to visit the Sickle Cell Society Exhibition — Our Journey, Our Story: History and Memory of Sickle Cell Anaemia in Britain 1950–2020.

Don’t miss this powerful exhibition sharing the history, voices and lived experiences that have shaped sickle cell advocacy in Britain.

📍 The Royal London Hospital, Inclusion Hub Level 14
🕐 Public access: Monday–Friday, 1pm–4pm
📅 Closing: 11 April 2026

Head down and see it before it closes.

Please note our helpline will be closed on the 31st March 2026. We apologise for any inconvenience caused and appreciate...
27/03/2026

Please note our helpline will be closed on the 31st March 2026.

We apologise for any inconvenience caused and appreciate your understanding.

📢 We’re hiring: Mentor Administrator (North West England)We’re looking for an organised and proactive individual to supp...
25/03/2026

📢 We’re hiring: Mentor Administrator (North West England)

We’re looking for an organised and proactive individual to support the delivery of our Peer Mentoring Programme in North West England, helping ensure young people living with sickle cell receive the support they need.

This is a great opportunity to play a key role behind the scenes — coordinating mentors, supporting programme delivery, and making a real difference in our community.

🔗 Find out more and apply:
https://www.sicklecellsociety.org/mentor-administrator-2/

Address

54 Station Road
London
NW104UA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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