Hughes APS Trust

Hughes APS Trust The Hughes APS Trust (formerly GHIC) was founded by expert doctors and researchers to educate, raise awareness, and fund vital research into Hughes Syndrome.

We rely entirely on donations to continue our life-changing work. Thank you for your support! We are proud to now be the Hughes APS Trust (formerly Graham Hughes International Charity, GHIC). Our new name marks an exciting new chapter — but our mission stays the same. We work to raise awareness, educate patients, doctors, and the wider public, and fund vital research to improve diagnosis, treatment, and care for people living with Hughes Syndrome (APS). Hughes Syndrome (APS) is a serious autoimmune disorder that can cause blood clots, pregnancy loss, strokes, and other life-threatening complications. Too often, it goes undiagnosed or misunderstood. Together, we can change that. We rely 100% on donations to power everything we do. Every gift you make helps to fund education, raise life-saving awareness, and drive research that brings hope to people with APS around the world. Please donate today and be part of building a better future for everyone affected by APS. Thank you for standing with us!

📢 Our Patient Meeting Programme is Now Live!We’re delighted to share that the full programme for our upcoming APS Patien...
14/04/2026

📢 Our Patient Meeting Programme is Now Live!

We’re delighted to share that the full programme for our upcoming APS Patient Meeting is now ready.

Join us for an informative and supportive afternoon featuring:
• Expert talks from leading clinicians and researchers
• Updates from the Hughes APS Trust
• Opportunities to connect with others living with APS
• An open Q&A session to ask your questions

🗓 Thursday 28 May 2026
🕐 1:30 – 4:30 PM
📍 Governor’s Hall, St Thomas’ Hospital, London

Whether you’re newly diagnosed or have been living with APS for years, we would love you to join us.

🎟 Spaces are limited – book your place here: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Have a look at our website - hughesapstrust.org

We hope you find the programme helpful and look forward to welcoming you.
Lupus UK

13/04/2026

✨ New Speaker Announcement! ✨

We’re delighted to announce another fantastic speaker joining us at our upcoming Hughes APS Trust Patients’ Meeting on Thursday 28 May at St Thomas’ Hospital, London.

Please join us in welcoming Dr Oseme Etomi, Consultant Obstetric Physician, who will be sharing their expertise and insights on Antiphospholipid Syndrome (APS) and Pregnancy/Obstetrics.

This is a wonderful opportunity to hear from leading specialists, stay informed, and connect with others in the APS community in a supportive and welcoming environment.

🗓 Thursday 28 May 2026
🕐 1:30 – 4:30 PM
📍 Governor’s Hall, St Thomas’ Hospital, London
🎟 Spaces are limited – book your place here: https://www.eventbrite.co.uk/e/patients-meeting-tickets-1986057563636

Also check out our new website - hughesapstrust.org

We’re really looking forward to bringing our community together for what promises to be an informative and uplifting afternoon.

03/02/2026

Our Q&A Video is Here – Part One

We are pleased to share Part One of our Q&A video, answering some of the many questions raised by our community.
We received so many thoughtful questions that this is the first in a series. Part Two will be recorded with Dr Kaul, and we look forward to answering more of your questions soon.

Thank you, as always, for your continued support.

The video will also be available on our website: hughesapstrust.org

08/01/2026

A milestone for Hughes APS Trust. A new name, a new website, and new ways to support our community.
But the real highlight? Listening to our patients share their experiences and what our work means to them.
Join us in raising awareness and making every voice count.
Watch the video:
https://www.hughesapstrust.org/news-events/

08/01/2026

Happy New Year to our community!

We hope you all had a peaceful Christmas and a positive start to the new year.
We would like to apologise for the delay in sharing our Q&A, which we had originally hoped to post in December. It is now very close to completion and will be shared shortly.
Thank you for your patience and continued support. We look forward to sharing the Q&A with you soon and to working together throughout the year ahead.

With best wishes for a happy and healthy New Year.

🎉 Happy Birthday to Professor Graham Hughes! 🎉Today we celebrate Prof. Hughes’ birthday — and also a defining moment in ...
26/11/2025

🎉 Happy Birthday to Professor Graham Hughes! 🎉

Today we celebrate Prof. Hughes’ birthday — and also a defining moment in medical history.

42 years ago, in 1983, Prof. Hughes and colleagues published the landmark papers that first described the clinical syndrome now known as Antiphospholipid Syndrome (APS or Hughes Syndrome). These early publications documented the association between lupus anticoagulant and later anticardiolipin antibodies. With blood clots, stroke, and pregnancy loss establishing APS as a distinct autoimmune condition.

This groundbreaking work transformed patient care globally and continues to save lives today.

We are also honoured to share photos of Prof. Hughes receiving his MBE at Windsor Castle, presented by The Prince of Wales, Prince William, in recognition of his outstanding services to Lupus and Hughes Syndrome.

Happy Birthday, Prof. Hughes — and thank you for everything you have given to the APS community.

We’re putting your questions to Dr Arvind Kaul, Consultant Rheumatologist and Chair of the Hughes APS Trust, for a speci...
11/11/2025

We’re putting your questions to Dr Arvind Kaul, Consultant Rheumatologist and Chair of the Hughes APS Trust, for a special APS Q&A video coming this December.

If there’s something you’ve always wanted to ask about APS (Hughes syndrome/Antiphospholipid Syndrome) — now’s your chance!

💬 Send us your question by 25 November via message or comment below.

Please note, we’re unable to give advice on individual treatments — you should always speak to your own doctor for personalised medical guidance.

30/10/2025

We recently shared the launch of our new website — and now we’re delighted to share a short welcome message from Professor Graham Hughes.
Many of you will know Professor Hughes as the doctor who first identified Hughes syndrome. His message perfectly captures the heart and purpose of our charity.
Watch below 👇

Our New Website is Here! 🌐✨We’re so excited to share our brand new Hughes APS Trust website with you!It’s been designed ...
20/10/2025

Our New Website is Here! 🌐✨
We’re so excited to share our brand new Hughes APS Trust website with you!
It’s been designed to make finding information and support about Antiphospholipid Syndrome (APS) easier than ever — with clear explanations, helpful resources, and real stories from people living with APS.
We’d love for you to take a look, have a browse, and let us know what you think! 👇
🔗 www.hughesapstrust.org
Thank you to everyone who helped make this possible — we can’t wait for you to see it!

👋 Hello everyone — and sorry for the delay in sharing this! We've been busy behind the scenes getting our new website re...
16/07/2025

👋 Hello everyone — and sorry for the delay in sharing this! We've been busy behind the scenes getting our new website ready, and we can’t wait to show you more very soon.

📢 Unfortunately, there isn’t a recording of the recent Ten Topics event — we know many of you were hoping to catch up afterwards.

However, we’re pleased to share some images from the day 📸, and we hope they offer a glimpse into the fantastic discussions and learning that took place.

📝 Good news — Professor Hughes will be writing a blog post summarising the key points from the event, which we’ll be sharing soon!

Looking ahead, we hope future events like this can be recorded, allowing us to share the insights more widely with our patients and supporters.

Thank you for your understanding 💜

📣 Today at Ten Topics in Rheumatology 🩺We’re excited to announce that Professor Graham Hughes will be taking part in a '...
04/07/2025

📣 Today at Ten Topics in Rheumatology 🩺

We’re excited to announce that Professor Graham Hughes will be taking part in a 'Kerbside Consults in APS' session followed by an in-depth discussion, sharing his unmatched expertise on Hughes Syndrome (APS). He will be joined by Prof. Munther Khamashta (pictured below), Prof. Ricard Cervera and Dr Karen Schreiber.

Our Chair, Dr Arvind Kaul, will also be presenting at this important meeting.

Together, they’re helping to raise awareness, promote education, and drive forward understanding of autoimmune conditions like APS and lupus.

These sessions are vital for improving diagnosis, treatment, and patient care across the rheumatology community.

Address

The Shard, TOG 24/25, 32 London Bridge Street
London
SE19SG

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+443008001234

Website

https://www.justgiving.com/hughesapstrust

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GHIC - is a global charity raising awareness, improving education and supporting all those affected by Hughes Syndrome (APS), in the UK and world wide.