My Vestibular Migraine journey

11/04/2026

I take Ferrograd-C

11/04/2026

07/04/2026

07/04/2026

Many people living with vestibular disorders experience what is often called the dizzy–anxious–dizzy cycle.

After an episode of dizziness or imbalance, the brain may begin to associate certain sensations, movements, or environments with danger ⚠️. This triggers a protective response, increasing anxiety and vigilance.

Heightened vigilance can make symptoms feel more noticeable, which can then reinforce fear and continue the cycle. This does not mean symptoms are imagined or “just anxiety.” It reflects how the nervous system learns to protect the body after a destabilizing experience 🧠.

Understanding this cycle and the emotional impacts of vestibular disorders can reduce self-blame and support more effective recovery strategies.

Learn more here:
https://vestibular.org/article/coping-support/psychology/emotional-impacts-of-vestibular-disorders/

07/04/2026

Living with a vestibular disorder often means managing symptoms that aren’t visible to others.

Comments like these are usually well-intended, but they can feel dismissive, frustrating, or isolating. Dizziness, imbalance, and sensory symptoms are real, even when they can’t be seen.

If this resonates, you’re not alone. And if you’re supporting someone with a vestibular disorder, listening without minimizing can make a meaningful difference. 💙

07/04/2026

Here are just a FEW of the usual treatments offered. There is a wealth of info out there on google - Vestibular Disorders Association (VEDA), and Youtube.

06/04/2026

I was diagnosed with both. Visit Vestibular Disorders Association (VEDA) for more info.

06/04/2026

From a recent study - Altered functional connectivity density in the prefrontal-limbic-visual networks of vestibular migraine

🧠 Vestibular Migraine (from your study)
Involves disrupted brain communication networks. Affects areas linked to:
💡Balance & spatial awareness
💡Vision
💡Emotions & sensory processing
The brain may become overconnected in certain areas (like the precuneus), which is linked to dizziness severity

👉 Main experience:
Dizziness, vertigo, disorientation, sometimes without headache

🤕 Typical Migraine
More focused on pain pathways in the brain Involves:
💡Head pain (often throbbing)
💡Light & sound sensitivity
💡Nausea
Linked to changes in blood flow and nerve signaling, but not as strongly tied to balance systems

👉 Main experience:
Headache + sensory sensitivity

🔍 Key Difference (Simple)
Vestibular migraine = brain balance/space system disrupted → dizziness
Typical migraine = pain system activated → headache

💡 Based on your study specifically:

Vestibular migraine isn’t just a migraine with dizziness —
it’s more like the brain’s navigation + sensory networks are misfiring, which is why symptoms can feel so strange and hard to explain.

04/04/2026

04/04/2026

I just swam my first mile 😭🙏🏼 over 1800 meters.