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HENCoP, University of Roehampton, London (2025)

13/09/2024

It was such a brilliant conference! Thank you all for coming! ✨ Pic (L to R): Jane Fisher, Vicki Hodson, Aly Price, Emily-May Barlow and Tessa Watson.

13/09/2024

Vicki Hodson talked about the barriers, oppression and discrimination that D/deaf people face on a regular basis and gave practical ideas of how to be part of the solution. Vicki and Jane Fisher also taught some basic British Sign Language (BSL) which everyone enjoyed.

13/09/2024

Danny O’Hara & Louise Delaluz told us about using innovative & optional immersive techniques, to bring the audience into the experience of a voice hearer who is an adult survivor of child sexual abuse.
https://slowtheatrecompany.co.uk/thedollwhocametotea

13/09/2024

Chrissy Goodban told us about the new Speech & Language Therapy programme at University of Roehampton & about the Community Voices Partnership that has been set up to support & steer development of the principles of inclusive and holistic practice.

13/09/2024

Emily May Barlow, Elaine Armstrong and Madison Safdari talking about amplifying expert voices into their recruitment strategy.

13/09/2024

Our keynote speaker Jane Fisher talked about her personal journey in sharing lived experience of mental illness and engaging in coproduction activities.

13/09/2024

Emily May did an amazing job of opening the HENCoP conference.

13/09/2024

Aly, Emily May and Tessa at the HENCoP Conference

31/08/2024

Rosa Eisenberg from Robert Gordon University, Adrian Ratcliffe from University of Suffolk and Aly Price, and members of the Service User and Carer group from University of Roehampton are delivering a workshop on Remuneration of People and Communities Involved in Higher Education Activities.

The meaningful involvement of people with lived experience of using services and/or their carers in nurse education has a multitude of benefits (Jobling and Sayuri, 2023). Involvement is a programme requirement of the Health and Care Professions Council and the Nursing and Midwifery Council. The involvement is required but the form of remuneration is not specified and as such, varies across institutions from expenses only to hourly pay.

• At a time of economic constraint nationally, how can meaningful involvement be remunerated when traditional forms of payment are at risk?
• What is current practice around remuneration and what would best practice look like?
• Is a national standard needed to ensure equitable remuneration?

Aim: The Workshop is relevant to anyone interested in pursuing the highest quality of service user and care involvement in higher education. You will have the opportunity to:

• Listen and discuss survey results
• Hear practical examples of involvement
• Take part in discussions to explore a way forward

Aly qualified as a mental health nurse in 2000 following undertaking a first degree in Psychology.
Identifying mental health nursing as a better fit for her, she has spent the majority of her career since then devoted to mental health inpatient services. She developed a passion for teaching, practice development and staff support during her 20 years in clinical practice, which is a theme which has continued now as a senior lecturer in mental health nursing. She is currently the academic lead for service user and carer involvement and for Parity of Esteem at the University of Roehampton.

Rosa Eisenberg is a mental health nurse, lecturer and community arts facilitator based in Aberdeen.
Her nursing background is in secondary care community mental health and prior to this, she worked in research and support worker roles with third sector organisations. Rosa has lived experience of mental distress and a keen interest in how higher education institutions can meaningfully incorporate service users and carers experiences and knowledge into undergraduate curriculums. Other interests include arts-based pedagogies and research methods.

Adrian is a citizen member of the Health Voices group at the University of Suffolk where a wide range of health degree courses are offered. He is also a member of the Health Voices strategy sub-group and is passionate about enhancing the voice of citizens in the education of the next generation of healthcare professionals. Adrian's career has included being a high school teacher, residential social worker, special educational needs advisor, and a director of a health and wellbeing company.

31/08/2024

Judith Hooper from University of Roehampton Service User and Carer Forum is delivering a workshop on Talking Behind Their Backs: The Moral Dilemmas of Co-Production.

This workshop will start with a presentation in which I will explore the potential moral complexity I have increasingly become aware of when talking to students about my family’s experiences with medical, therapeutic and education professionals. Is it morally justifiable for service users and carers to use our accounts of real - and at times difficult - lived experience as teaching tools, in order to illustrate points in a memorable, visceral way, to enable easy recall and to positively influence good practice, when those professionals we may be referring to aren’t there to tell their side of the story?

I will explore these questions through examples from my own experience as a carer, and possibly those of some carers involved in my research. I will then present my thoughts about how mindful self-awareness of motivation to speak out, together with the principals of the theory of Nonviolent Communication (as developed by Marshall Rosenburg), can form a powerful framework in order to maintain moral clarity when working in co-production teaching contexts.

I will then open up the discussion to debate and explore the issue of morality in co-production from the points of view of those attending. The aim is to work together to draw up some co-produced ideas about how we can maintain motivational and moral clarity when sharing our experiences.

Judith trained as a music therapist and worked in numerous settings including special schools, a medium secure unit, and private practice. She decided to step back from music therapy some years ago, choosing instead to write and teach about her experiences as a mother and carer, particularly from the point of view of having formerly been a healthcare professional. She has been involved with the Music Therapy department at University of Roehampton since 2013, and subsequently with Nursing and Physiotherapy, and has been an inaugural member of the university's SUC forums since the formation of the psychology/arts therapies group in 2016.

31/08/2024

Vicki Hodson, Jane Fisher and Comensus from University of Central Lancashire are delivering a workshop on The barriers to genuine co-production with D/deaf service users.

This workshop explores the barriers and challenges with access to healthcare and genuine co-production within professional healthcare programmes as a Deaf person. Through Vicki Hodson’s personal and harrowing experiences as a Deaf person, the session will emphasise stigma and discrimination within healthcare. Vicki volunteers with UCLan Comensus (service user and carer group) and shares her inspirational story with students on health-related courses. Comensus will outline the adjustments made so Vicki and other D/deaf people can engage with genuine co-production. Finally, the extremely low numbers of D/deaf people on health care professional course will be highlighted, and ideas shared on how to remove barriers for D/deaf people. The workshop will end with an interactive lesson in British Sign Language (BSL).

Aims of the workshop:
• Realise the barriers to accessing health care as a D/deaf person.
• Understand how to make the D/deaf service user voice heard within co production activities.
• Consider how we can make Higher Education Health Care courses accessible to D/deaf people.

Vicki Hodson is a volunteer with Comensus UCLan (Community Engagement and Service User Support), where she shares her lived experiences of Deafness, Mental Health and living in the Care System as a Looked After Child. Vicki is passionate about raising Deaf Awareness and helping to break down barriers within healthcare and education for Deaf people.

Jane Fisher is a mental health nurse lecturer at the University of Central Lancashire. She is simultaneously someone who has used mental health services, and lives with an imposed label of
'mental illness' This gives Jane a unique vantage point. She has worked in frontline mental health services, accessed mental health services, and educates pre-registration mental health nursing students. Jane is an internationally published author, offering a critical perspective on psychiatry and mental health, often using her lived experience to challenge the status quo.
Published papers include topics such as epistemic injustice, identity, nurse education, and the problems with resilience as an overused cliché. Jane's personal mental health struggles have fueled her passion to challenge stigma, improve mental health nurse education, and people experiences of care.

The Comensus service user and carer involvement group has been part of the University since 2004. Comensus work with course teams to meet their governing body requirements for service user and carer involvement. Comensus volunteers engage in different ways including sharing their lived experience in teaching sessions, creating digital resources such as short films or written case studies, participating in admissions days and assessments, attending Consultations and focus groups, and engaging with students in history-taking and communication skills sessions.

HENCoP

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