04/08/2025
'Our granddaughter came over and Paul couldn’t remember her name. He was so appalled by this he started to cry and booked himself an appointment with the GP.
Tracey’s husband, Paul was diagnosed with young-onset Alzheimer’s Disease at just 54.
‘At first, I was worried he wasn’t happy in our marriage anymore as it seemed he wasn’t paying attention or listening to me. However, gradually all the family noticed a change in him. He would also come home from work saying that the guys at work were hiding his tools.’
There was one incident that they found particularly frightening.
'Our granddaughter, who we see every week, came over and Paul couldn’t remember her name. He was so appalled by this he started to cry and booked himself an appointment with the GP.
'The GP referred him for blood tests and asked whether he felt depressed. When this was ruled out, he was sent to the memory clinic.
‘As soon as I walked into the memory clinic the penny dropped and I realised Paul probably had dementia. All the posters on the walls and information booklets had pictures of much older people in their 70s and 80s which broke Paul’s heart as he felt like such an anomaly.’
After two brain scans, Paul was formally diagnosed.
'We’d been expecting the news so while we weren’t particularly surprised, it didn’t make it any easier to accept. The consultant was visibly moved by having to tell Paul that at 54 he had Alzheimer’s.
Paul’s employer was really supportive over the years and put a lot of adjustments in place to help him manage at work but eventually in 2020, just before lockdown, he lost his job, due to his dementia.
Tracey is now Paul’s full-time carer, having given up work in 2021 to spend more quality time with Paul.
‘I’ve always managed on my own but by the end of last year I started to find things overwhelming.'
'I had gone to a memory coffee morning and there was a Dementia Support Worker from Alzheimer’s Society there.
'She noticed I was feeling emotional and came over. I told her “I’m just lost”. She was so supportive. She said, “Here’s my number” and she has been with us ever since.
‘She calls me fortnightly to see if I’m ok. She’s been amazing.’