Royal London & Mile End Hospital IBD Patient Panel

10/11/2025

Help us improve our school resources so children and young people with IBD feel better supported at school 💜 Whether you’re a parent, young person, teacher or supporter, please take a few minutes to share your thoughts.

We’d love to hear what you think👉
https://forms.office.com/e/8iGhDJZEJa

10/11/2025

08/11/2025

Wednesday 19th November marks World Toilet Day.

Please spend a few minutes completing this survey and having your say. https://shorturl.at/gPFAH

The data collected will help campaigners to make some noise around World Toilet Day this month. They’re aiming to persuade policymakers that public loos are essential community infrastructure and should be funded as such.

23/10/2025

We believe children shouldn’t be marked down as absent for hospital or GP appointments. These are authorised absences but still lower attendance records. We urge the Government to create a separate code so medical care doesn’t impact students’ attendance records.

19/10/2025

Lets get talking and break down some barriers

13/09/2025

Requests for local IBD support and social groups was raised in our recent patient survey as well as in our Panel meeting last night.

While we don't currently have a Royal London specific group running, we have now added information about other local and national IBD Peer Support and Social groups and events to our website.

Find the link on our Website home page or visit https://ibdpatientpanelrlh.wixsite.com/ibdrl-meh/ibd-peer-support-social-groups

06/09/2025

Join us for our next IBD Patient Panel Meeting.
This will be in hybrid format for the first time.
Open to all IBD patients, Family and carers and staff at the Royal London and Mile End Hospital.
We will be discussing the results of our Patient Survey
Email for more information

23/08/2025

18/08/2025

📢 𝐇𝐚𝐯𝐞 𝐲𝐨𝐮𝐫 𝐬𝐚𝐲 𝐨𝐧 𝐚𝐧 𝐮𝐥𝐜𝐞𝐫𝐚𝐭𝐢𝐯𝐞 𝐜𝐨𝐥𝐢𝐭𝐢𝐬 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐭𝐫𝐢𝐚𝐥 𝐟𝐨𝐫 𝐜𝐡𝐢𝐥𝐝𝐫𝐞𝐧

The NIHR is looking for parents and carers with lived experience of looking after a child with ulcerative colitis or Crohn’s disease to give feedback on a new clinical trial.

✅ UK-based
✅ Aged 18 or over
✅ £50 payment for your time

This is an online review group, so you can take part from home.
👉 Scan the QR code in the image below or email pecd@leeds.ac.uk for more info.

Your voice could help shape research that makes a real difference for children with IBD 💙

15/08/2025

📢 We’re Looking for Social Media & Website Volunteers!
Are you passionate about making a difference and skilled with social media or websites?
We’re seeking voluntary help with:
• Social Media – creating and scheduling posts, engaging our community, and growing our online presence.
• Website – updating content, improving layout, and keeping information fresh.
This could be one person doing both or two people, each focusing on one area.
Who we’d especially love to hear from:
💜 IBD patients, family members, or staff connected to Royal London Hospital or Mile End Hospital.
But anyone over 18 is welcome to apply!
What you’ll gain:
✅ Experience to enhance your skills and portfolio
✅ The chance to be part of a supportive, passionate community
✅ Flexible, remote-friendly volunteering
📩 Interested? Send us a message or email ibdpatientpanel.rlh@outlook.com to apply or find out more.

14/08/2025