Royal London & Mile End Hospital IBD Patient Panel

10/01/2026

📢 Important update

After careful consideration, we’ve decided to close our X account.

Our priority as an IBD patient panel is to provide a safe, respectful, and trustworthy space for patients, families, and supporters. Given recent concerns around safety and the platform’s direction, we feel this is the right step for our community at this time.

You can still find our updates on:
👉 https://ibdpatientpanelrlh.wixsite.com/ibdrl-meh
👉 Instagram, Facebook and LinkedIn

Thank you for your continued support 💙

09/12/2025

Reposting Crohn's and Colitis Research

Researchers at University of East Anglia are looking for parents of children with IBD to take part in a survey looking at mental health support.

Find out more by visiting the study site

07/12/2025

Our winter newsletter is out!

Read it on our website.. https://ibdpatientpanelrlh.wixsite.com/ibdrl-meh

05/12/2025

02/12/2025

CCUK are running some social events this weeks for https://shorturl.at/MVZSu

01/12/2025

This week is Crohn's and Colitis Awareness week with a focus the on emotional and social impact of living with IBD.

30/11/2025

Check out our new linked in page and give us a follow
https://shorturl.at/mM9Oz

29/11/2025

We're revamping our newsletter!!

We hope to issue these seasonally.

Our Winter edition will be ready very soon

10/11/2025

Help us improve our school resources so children and young people with IBD feel better supported at school 💜 Whether you’re a parent, young person, teacher or supporter, please take a few minutes to share your thoughts.

We’d love to hear what you think👉
https://forms.office.com/e/8iGhDJZEJa

10/11/2025

08/11/2025

Wednesday 19th November marks World Toilet Day.

Please spend a few minutes completing this survey and having your say. https://shorturl.at/gPFAH

The data collected will help campaigners to make some noise around World Toilet Day this month. They’re aiming to persuade policymakers that public loos are essential community infrastructure and should be funded as such.

23/10/2025

We believe children shouldn’t be marked down as absent for hospital or GP appointments. These are authorised absences but still lower attendance records. We urge the Government to create a separate code so medical care doesn’t impact students’ attendance records.