🧪 On International Day of Persons with Disabilities Day, we wanted to thank everyone for their contributions to the UK ME/CFS Biobank. Your contributions are essential to our work helping and supporting those who live with
🚨 If you're a researcher working on ME/CFS, then there will soon be a chance to apply for free samples. Keep an eye out for updates on our social media accounts after the new year.
On we wanted to give our ME/CFS community this important message of hope from Dr Eliana Lacerda:
"As any chronic disease, ME/CFS has an impact on the mental well-being of those who have the disease. Despite the moments of despair and isolation that people with ME may experience, our team at the CureME have also been witnessing a great deal of endurance from them.
Thus, we would like to remind you all to keep hope, as the poet Pablo Neruda reminds us."
30/09/2024
Thank you so much for joining our event ✨! Whether in person or one of the around 200 online attendees, it was wonderful to have you with us. If you missed it or want to revisit any part, the full recording is available here: https://bit.ly/4didHTK🎥
18/09/2024
We’re excited to see such a great response for our CureME event tomorrow! 🧬
If you haven’t registered but would join us online from 5:30 to 7:15 pm please use this link: https://lshtm.zoom.us/j/93604267836. 🔬 See you there!
16/09/2024
At Thursday's conference, there will be an excerpt from The Room Upstairs — a play about invisible illnesses, puppets, and a self-deprecating actor.
✨ Written/performed by Lani Calvert
✨ Directed by Marissa Landy
✨ Fresh from the Edinburgh Fringe!
🎟️ https://forms.office.com/e/HY35YL4u8a
05/09/2024
🎉 We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM!
To join us, please register by clicking the link: https://forms.office.com/e/HY35YL4u8a or scan the QR code below. 📲
You can attend in person or online, starting from 5 PM. We can’t wait to meet you, share our latest research, and answer your questions! 💡🧑🔬
Together, we’re one step closer to finding answers for ME/CFS. 💙
20/08/2024
📅 Save the Date! 🗓️ On September 19th, join the CureME team at LSHTM from 5 PM to 8 PM for a research exchange. 🧬 We invite ME/CFS patients and researchers to share insights and connect! 🌟
12/08/2024
📢 Exciting news! Caroline Kingdom, our biobank coordinator, is featured in a Medscape News UK article discussing the striking similarities between Long COVID & ME/CFS. 🧬🌍
This is giving research into myalgic encephalomyelitis/chronic fatigue syndrome a much-needed boost, but more funding is still needed.
08/08/2024
During this Severe ME week, we would like to acknowledge all the ME/CFS research participants, particularly those who despite their severe symptoms, have been taking the effort to provide samples and data.
Thank you all!
The CureME Research Group
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CureME is a research group based at the London School of Hygiene & Tropical Medicine, with expertise in clinical epidemiology and laboratory science, which runs several major studies into ME/CFS. Our research has focused on improving recognition, diagnosis and treatment of ME/CFS, leading to the opening of the UK’s first ME/CFS Biobank (UKMEB) – now open to external researchers across the globe.
ME/CFS is a severe, debilitating disease presenting with multi-systemic symptoms, usually including but not restricted to severe fatigue. CFS / “chronic fatigue syndrome” is used in some contexts to represent a wide range of conditions resulting in chronic fatigue, including but not limited to ME/CFS. Up to 250,000 people suffer from ME/CFS in the UK alone, but although the consequences can be very severe, the cause is still unknown.
One of our main projects to aid understanding of ME/CFS is the UK ME/CFS Biobank. The UKMEB Biobank (UKMEB) is the first ME-specific biobank in Europe, and one of the first in the world. Hosted at the Royal Free Hospital in London, it has collected over 30,000 aliquots of blood from patients with ME/CFS and multiple sclerosis (as well as healthy controls), using a rigorous and consistent set of scientific protocols.
The UKMEB’s mission is to sustain an open biobank that drives high-quality, ethical investigations into the clinical and biomedical understanding of ME/CFS. In doing so, it fosters cooperation and collaboration between researchers and enhances the opportunity for breakthrough discoveries.
The UKMEB is also committed to patient participation, and ensures that its research is always informed by and for the benefit of people with ME/CFS. It is led by a steering group that includes patient and charity representatives.
We believe in transparent, multidisciplinary research, and are committed to listening to and respecting the views of people with ME/CFS. We build partnerships between researchers and people with ME/CFS, and work in collaboration to lead research efforts in the UK and around the globe.The UK ME/CFS Biobank (UKMEB) is the first ME-specific biobank in Europe, and one of the first in the world. Hosted at the Royal Free Hospital in London, it has collected over 30,000 aliquots of blood from patients with ME/CFS and multiple sclerosis (as well as healthy controls), using a rigorous and consistent set of scientific protocols.
It is managed by the CureME team at the London School of Hygiene & Tropical Medicine, a committed research group with expertise in clinical epidemiology and laboratory science, who run several major studies into the aetiology of ME/CFS.
The UKMEB’s mission is to sustain an open biobank resource that drives high-quality, ethical investigations into the clinical and biomedical understanding of ME/CFS. In doing so, it fosters cooperation and collaboration between researchers and enhances the opportunity for breakthrough discoveries, which translates into improved recognition, diagnosis and treatment of ME/CFS. The UKMEB is also committed to patient participation, and ensures that its research is always informed by and for the benefit of people with ME/CFS. It is led by a steering group that includes patient and charity representatives.
The UKMEB has already contributed to highly significant research in immunology (including on NK and T cells and cytokine profiles), genetics, virology, clinical medicine, epidemiology and social research, and has released samples to researchers in the UK, Europe and America.
Approximately 129,359 people (0.2% of the UK population) are suffering from ME/CFS. ME/CFS is an unpredictable illness and can be very debilitating, but the aetiological cause is still unknown.