Harper’s Army22

02/09/2025

Day 2- An early one this morning, but I did it! 30 minutes movement/30 days /30 chances of making a change and raising awareness

01/09/2025

🚨 Day 1- 30 minutes movement. 💛 🎗 Harper’s Army22

31/08/2025

Please sign and share! 💛

10 months apart. On the left, my son 2 days before he was diagnosed. On the right, 18 days before he passed away.

That’s how fast childhood cancer can take hold of a life. That’s how quickly everything changes for a family.

In just 4 days, we enter Childhood Cancer Awareness Month. Every year, around 250 children die from this disease in the UK. My son Hugh was one of them, in 2021.

This is why we campaign. Parents living through this nightmare already have enough to cope with. They should not also be forced to worry about their jobs, their finances, or how they will survive while their child is fighting for their life.

No parent should have to walk this path alone.

👉 Please take a moment to add your name at www.hughslaw.uk and stand with us in calling for change. Parents deserve better.

01/08/2025

Managed to come to the gorgeous little cafe we visited last time we came.

30/07/2025

Please can any of our Harper’s Army22 help this family. We know Tommy and his family personally, and they need help, just like we did.

If you are able to help in any way, please can.

https://www.justgiving.com/crowdfunding/tommysjourney-?utm_medium=CR&utm_source=CL

'I have to try': Race against time for six-year-old boy diagnosed with cancer for third time

23/07/2025

1 year ago today, Harper attended Penn State Hospital to have her first appointment to access DFMO!

We will be forever grateful that our Harper is still here, doing well. She has some side effects,but as our consultant always said
'She has to be here to know the side effects'

1year to go baby girl! 💛

17/07/2025

😢
Our Harper 💛
The strongest, bravest, courageous little girl! 💛

“The hardest part comes after" - Princess Kate of Wales

Repost

In her quiet yet powerful words, Princess Kate once opened up about something many don’t talk about:
“You put on a brave face during treatment, but the real struggle begins after.”

She was speaking about her experience with chemotherapy—a journey that doesn’t end when the last session does.

Because once the treatments stop…
The world expects you to bounce back.
To smile.
To “go back to normal.”
But the truth is, that “normal” no longer exists.

What follows is a deep emotional rollercoaster:
The medical team is no longer by your side every day.
The adrenaline of survival fades.
The exhaustion lingers.
And you’re left navigating a new version of yourself—physically, emotionally, mentally.

“It’s a much harder process than I ever imagined,” she said.

This isn’t just a story of resilience.
It’s a reminder: healing takes time.
Not just the body—but the soul.
So if you—or someone you love—is in that space after the storm, don’t rush the calm.
Let it come, slowly. Gently. With grace.

And above all, don’t expect to be who you were before.
You’re becoming someone even stronger.

11/07/2025

We have had the blood and catecholamines (wee) results and they have confirmed Harper is all good. Still NED!!!! 💛💛💛

13/05/2025

Yesterday this little super hero got the all clear with her hips. Her cups are still shallow, but they will hopefully deepen. It's been something that we have been worried about as her check ups had to stop due to chemo.

One less thing to worry about!

Keep smashing it Harper! 💛

15/04/2025

It is with a mix of pleasure and sadness that we share the first of our efforts to support other children fighting cancer, particularly neuroblastoma.

Pleasure that we can bring a small amount of happiness and good feeling to children and families staying at Ronald McDonald House in Hershey Pennsylvania.

Sadness that so many children pass through this place, alone! The impact of neuroblastoma is wide reaching, we were lucky to meet two other, wonderful, children with Neuroblastoma when we stayed there. With Harper, a girl from India and a girl from Brazil. Our daughter, Nihaidiga and Yara, bonded by a terrible illness but bonded. They played together like they didn't have a care in the world and the older girls looked after Harper with such care. Sadly, one of those beautiful girls is no longer with us. Dearest Yara, beautiful in nature and strength beyond belief. RIP angel!

Our commitment to this community of superheroes is that we will provide treats every single day, from this week. We have committed to funding the treat box that will never run empty, so that these fearless children can have some simple pleasures during their stay at the most remarkable place, RMCH Hershey.

We thank you for your support of Harper and hope you recognise the importance of such a small but significant gesture!

14/04/2025

Ronald McDonald House Charities of Central PA

Thank you so much for your lovely post and arranging this for us.

Sending love to all the families with you in Hershey. X###

💛 Snacks from across the sea! 💛

Meet Harper, a brave 3-year-old from Manchester, UK, who stayed with us while receiving treatment in Hershey. During her time at the House, Harper and her family felt the incredible warmth and care of our community. Now, they’re giving back in the sweetest way — donating a variety of snacks to brighten the days of other families staying with us.

With a heart full of gratitude, Harper’s family hopes these treats bring a smile to others, just as the House did for them. Thank you to the Huddart/Walker family for sharing your love, kindness, and snacks with our community. 💖

Harper’s Army22

07/04/2025

Harper’s Army22 we thought now was the a great time for an update!

We are 2 years since the start of our journey and we wanted to share a huge thank you to Harper's Army of followers, supporters and fundraisers!

As you know, our baby has started DFMO and we were fortunate enough, with your help, to travel to the US to get the treatment Harper needs to keep this terrible disease at bay.

In January, DFMO became available for distribution in the UK still a trial, of sorts, but not at the level of research as the USA. This means Harper no longer needs harsh scans prior each prescription, no longer needs to travel to the USA to collect the we are no longer required to report every minor change in her presentation...

This is great news for us as a family, the upheaval caused by a trip is unreal... either coordinating 7 of us to travel across the world for a doctors appointment or separating the family.. either way was difficult.

What the change in where we access treatment means is... a proportion of your truly remarkable fundraising efforts can be used to support other children who suffer from Neuroblastoma.

We have many ideas in the pipeline to support parents, children and families who fight this disease. The harsh impact of a child fighting cancer is far reaching and long lasting, much harsher, further and longer than you could imagine...

We will always aim to provide an update to Harper's many followers because you are, and will always be, part of our family!

Thank you all, from the bottom of our hearts! 💛