Chiesi UK

We work on important therapy areas, such as respiratory health, neonatology, organ transplantation and rare diseases.

We believe in using our business as a force for good and make decisions that deliver shared value for patients, people and the planet.

28/08/2025

A landmark event, co-hosted by Chiesi UK and Ireland and Metabolic Support UK, highlighted the profound impact authentic representation of people with rare diseases has on self-esteem, community support, and public awareness.

14/07/2025

🎈Lift-off begins…

Over 3.5 million people in the UK live with a rare condition. In our True Faces of Rare study with Metabolic Support UK, 80% of participants rated authentic imagery as critically important - a clear call for better representation.

Chiesi’s ‘True Faces of Rare: Shaping Visual Representation Together’ will bring together lived experience and expert voices to reshape how rare diseases are portrayed within imagery such as patient materials, the media and beyond.

See who’s speaking at the event 👇

This video is AI-generated with post editing

IE-CHI-2500053 | July 2025

23/06/2025

3 weeks to go and momentum is building! 🔊

Join us for ‘True Faces of Rare: Shaping Visual Representation Together’, organised with Metabolic Support UK, a timely conversation on why imagery in rare disease content matters, and what needs to change.

There is growing global recognition around this issue, with the World Health Organization (WHO) recently passing its first-ever resolution on rare diseases, calling for equity, inclusion and visibility for over 300 million people worldwide.

We look forward to the opportunity to listen, learn and rethink how we can better represent the rare disease community.

UK-only | Open to those involved in rare diseases — from patients and carers to clinicians, policy-makers, storytellers, industry professionals and communicators.

📅 17 July | 12–6pm | QEII Centre, Westminster
🔗Register now 👉 https://forms.office.com/pages/responsepage.aspx?id=ibTRgNZawkW3Vw74nqAsW6d63tZDFO1EmSPXBwIgv4pUQlRVOEgxNlNFU1JONVVZWkJWR0xHU0ZBRC4u&route=shorturl

This video is AI generated.

UK-CHI-2500620 | June 2025

09/06/2025

Attention London, it’s time to get real 🔊

On the 17 July, we’re hosting ‘True Faces of Rare: Shaping Visual Representation Together’ with Metabolic Support UK - an event inspired by our research showing that 80% of people affected by rare conditions want to see images of real people with rare diseases in content about their condition.

Together with patients, advocates and peers we’ll explore the importance of visual representation, and how, without it, people can feel overlooked.

💬 It’s time to ask: what does true, authentic rare representation really look like?

UK-only | open to those involved in rare diseases — from patients and carers to clinicians, policy-makers, storytellers, industry professionals and
communicators.

🖇️ Register now 👉 https://forms.office.com/pages/responsepage.aspx?id=ibTRgNZawkW3Vw74nqAsW6d63tZDFO1EmSPXBwIgv4pUQlRVOEgxNlNFU1JONVVZWkJWR0xHU0ZBRC4u&route=shorturl

UK-CHI-2500617 | June 2025

06/06/2025

Today is World Transplant Day — a time to raise awareness of the progress and challenges that remain for people living with transplanted organs or those waiting. While significant life-saving progress has been made in the field of transplantation, many people are waiting for an organ.

In the UK alone, over 7,900 people are currently on the transplant waiting list. It’s a stark figure — and a clear call to do more to raise awareness and drive action around organ donation. Later this month, our teams will be at the ESOT - European Society for Organ Transplantation Congress — standing alongside healthcare professionals, patients and partners to help push the conversation
forward.

We’re proud to be a key partner of ESOT and we remain deeply committed to supporting transplant recipients in their second chance at life.

UK-CHI-2500608 | June 2025

30/05/2025

Over 50,000 people in Wales are thought to be living with undiagnosed chronic obstructive pulmonary disease (COPD)—many only finding out after emergency hospitalisation.

Our new policy proposal, Ignore or Explore COPD?, outlines how Wales can lead the UK in early detection by integrating simple lung function tests into future lung cancer screening programmes. The proposal builds on our collaborative NHS partnerships, including the FRONTIER clinic in Hull and the community-based COMET clinic on the Wirral, both focused on enabling early diagnosis for high-risk patients who have gone through NHS lung cancer screening.

📍On 4 June 2025, recommendations from the proposal will be presented at the Senedd, supported by Mabon ap Gwynfor MS, James Evans MS, Rae Voller and Kayleigh Brindle.

Read our policy proposal in English or Welsh here: https://www.chiesi.uk.com/ignore-or-explore-copd

UK-CHI-2500589 | May 2025

08/05/2025

Thalassaemia is a group of inherited blood disorders affecting haemoglobin, which can lead to severe anaemia - meaning the reduction in number of red blood cells which carry oxygen around the body. On World Thalassaemia Day, listen to voices from the community and see beyond the statistics of this rare disease.

UK-CHI-2500480 | May 2025

Those living with thalassaemia can have varied experiences. If you or someone you know shows symptoms of thalassaemia, consult a healthcare professional promptly for advice.

07/05/2025

Cystinosis is a rare genetic disorder where cystine builds up in cells, forming crystals that can damage organs and tissues, especially the kidneys and eyes.

On Cystinosis Awareness Day, hear how Moa found strength in connection and community.

UK-CHI-2500479 | May 2025

Those living with cystinosis can have varied experiences. If you or someone you know shows symptoms of cystinosis, consult a healthcare professional promptly for advice.

06/05/2025

Chiesi is committed to listening to patients and World Asthma Day is an opportunity to amplify the voices of people who face daily challenges because of asthma. Their stories are inspirational, marked by struggles and strength but also by hope and real-life solutions.

Take a moment to watch Giovanni’s inspiring story and discover how he navigates life with asthma: https://www.chiesi.uk.com/video/giovanni-quaglia-interview.mp4

Inspired by those who experience the realities of asthma every day, here in the UK we’re turning words into action. Our partnership with Bloomfield Medical Centre support patients in an underserved area to take control of their asthma care - just as Giovanni has. Learn more about our collaboration here: https://www.chiesi.uk.com/digital-peak-flow-meter-assisted-asthma-care-clinic.

UK-CHI-2500399 | April 2025

29/04/2025

As Fabry Awareness Month comes to a close, we celebrate the incredible strength of those living with Fabry disease 💙

• While managing the challenges of Fabry disease, Sandra never stops
supporting those around her—with kindness, strength and an unwavering spirit.
• Whether advocating for early diagnosis or raising visibility for women living with Fabry disease, Mandie leverages her personal experience to make a real
difference.
• Ria’s strength comes from the love that she gives and receives. This is how she has faced the challenges of living with Fabry disease, always holding her head high.

UK-CHI-2500373 | April 2025

19/04/2025

In the UK, more than 11,000 lives are lost to liver disease each year. This World Liver Day, we’re highlighting the power of simple lifestyle choices—because ‘Food is Medicine’, and small dietary changes can make a big difference in supporting liver health. 🍏

But safeguarding liver health isn’t just about what we eat—it’s also about fighting stigma. Nearly 3 in 4 people with a liver condition have faced stigma, and almost 1 in 3 say it has stopped them from seeking the medical care they require. Tackling these misconceptions is just as crucial as making healthier choices.

Let’s raise awareness, challenge misconceptions and take steps—big or small—toward better liver health.

🖇️For more information visit https://britishlivertrust.org.uk

UK-CHI-2500330 | April 2025

09/04/2025

Day 2 of our conference is in full swing! Our teams are coming together to collaborate, plan and align on priorities for the year ahead – with our commitment to patients at the core of every discussion. 💡

Today’s workshops will be split across our three therapeutic areas – AIR, RARE and CARE – focussing on how we can come together to make the greatest impact.

We’re ready to build on the momentum from a fantastic day yesterday.

Address

333 Heald Green
Manchester
M225LW

Website

https://www.chiesi.uk.com/, https://www.chiesi.uk.com/social-media-community-guidelines

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