The Manchester Adult Cystic Fibrosis Centre

06/10/2025

As most of you will know by now, we have a Bioelectrical Impedance Analysis machine (BIA) - you most likely went on it at your Annual Assessment 😃.

Here is a little more info about it and what it shows. To reduce risk of cross infection, the machine is cleaned between users and you will only be able to use the machine on your clinic day/group.

**If you don't wish to have your body composition measured, there is no pressure. Just let one of the team know! **

02/10/2025

Thank you to everyone who participated in the CARDS-CF Study to develop the CF Tummy Tracker.

For those interested, here are the study results. For more info, visit the study website: Www.cftummytracker.org

02/10/2025

Dear All,

It is with great sadness that we write to let you know that Mary Dodd CBE passed away earlier this month.

Mary Dodd was a consultant physiotherapist who co-founded the Manchester Adult CF Centre. Mary played a significant role in advancing the quality of care for people with cystic fibrosis throughout her career.
She was a leading figure in cystic fibrosis care nationally and internationally. She was involved in the development and publication of many research papers and clinical guidelines. Mary was awarded a CBE for her dedication to cystic fibrosis care.

❤️

18/08/2025

🚗 Car Park Update 🚗

- Firstly, unfortunately the roof works are still on- going, therefore entrance 4 remains closed. Apologies for the inconvenience.

- Secondly, we are trying to reduce the amount of staff parking in the CF car park, therefore the barriers will be disabled between 18:30 - 08:45 (Mon-Fri only)

If you have a 9am appointment, the CF barriers will work as normal from 08:45. If you need to access/ leave the car park inbetween these times, please use the intercom but there may be a slight wait.

Thanks

02/08/2025

🗣️ CF Cafe 🗣️

Our next virtual CF cafe in August will focus on South Asian Heritage Month, with invited speaker Dr Maya Desai.

Open to those from South Asian backgrounds - friends and families welcome!

Use the QR code or joining link here: https://tinyurl.com/CFcafeSAHM

07/07/2025

🧘‍♂️🧘‍♂️ YOGA-CF 🧘‍♂️🧘‍♂️

We are recruiting for the final block of the Yoga research study.

If you are interested in taking part, please contact the physiotherapy team for more information:

Mobile: 07436 020436
Email: mft.cfphysiotherapyteam@nhs.net

Namaste 🙏🏻

03/07/2025

At request, we are RE-OPENING the Pearce Ward Catering Survey until Monday 7th July.
This is your last chance to have your say so please take 5 mins and give us your opinions!
(You do not need to re-do your response if you have already responded).

02/07/2025

Come and join us at the CF Cafe tomorrow - Thursday 3rd July 12pm-1pm

The CF Cafe is a relaxed space for people to talk about whatever might be on their mind at the time, and it is open to everyone from MACFC. A member of the Living Well with CF team will be there to facilitate the meeting but conversation is very much guided by the attendees so there is no set agenda ahead of time. Our belief is that peer support is invaluable, so we will take a step back and allow conversation to flow naturally. Of course, there is no pressure to speak much if you would rather listen, and we encourage ground rules regarding confidentiality in that whatever is spoken about in the group remains in the group.

The cafe is held on the first Thursday of every month - the next one is tomorrow on Thursday 3rd July 12pm-1pm!

Feel free to come for as much or as little as you like.

You can join us by clicking on the following link: https://tinyurl.com/livingwellcf or scanning the QR code on the poster.

If you would like to find out further information or have any questions, please email us at: livingwell.cf@mft.nhs.uk

09/06/2025

🔬🧐 Reseearch - CF Tracker Study 🔬🧐

CF Tracker is now open to recruit at MACFC

This is a study to help understand what causes “exacerbations” in people with CF.

Many people with CF experience more than one exacerbation per year, which can cause a lot of disruption to their work and family life.

The Tracker study has been designed to be easy for people to do, without placing too many demands on their time. That is why it involves only a single clinic visit and then posting in samples from home (at most centres)

If you are interested or want to know more please head to the below links for more information or speak to a medic at your next clinic appointment.

https://www.pulse-cf.com

The study pages of the website
https://www.pulse-cf.com/tracker-study

Animation that explains the study
https://vimeo.com/1049633163

This is "CF Tracker Study" by Nice Cat Media on Vimeo, the home for high quality videos and the people who love them.

06/06/2025

To round off Dietitians Week, today's theme is 'What excites you about your future in Dietetics?'

Our current Dietetic Student Jack has kindly popped his thoughts down for us...

04/06/2025

Feel free to join us on our monthly Men's Cafe online get together this evening.

04/06/2025

This week is Dietitians Week. This year's theme is 'The Future of Dietetics'.

Today we are celebrating progress - here are just some of the things that the Dietitians have been up to over the past year