Fibro survival - one spoon at a time

15/02/2026

Unless you’ve experienced it, you have no idea.

14/02/2026

How do you stay positive despite having fibro?

14/02/2026

As a male I know a lot more females who have fibro than fellow males.

Thoughts? 💙💙

FM in Males 💙🦋

13/02/2026

110%

How about you?

12/02/2026

Hope everyone is having a low pain day 💙💙

29/01/2026

Journal entry 📝

I’ve not been feeling great again lately, and I’m struggling to keep up with the page as much as I’d like.

I will still be here and I will continue the page, but for the foreseeable future I won’t be able to post as frequently. I’ve been in a flare since late November, and right now I need to slow things down and focus on calming my nervous system so I can stabilise.

I hope you can understand.

Please know this doesn’t mean I’m disappearing. I’m still here, and my DMs are always open.

I live with fibromyalgia too — I understand how heavy and isolating it can be. If anyone needs to talk in confidence, I’m always here for that. This is what I wanted this page to be about from the start: support, understanding, and community.

I may have limited energy — but I will always make energy for DMs 💙

26/01/2026

📓 Journal entry

I bought a sauna blanket recently and I’m genuinely very impressed with it.

I’d heard good things, but I wasn’t sure how much difference it would really make. Turns out… quite a lot.

For me, the benefits have been noticeable:
• Reduced pain
• Gentle cardio without impact
• Warmth (huge for Raynaud’s)
• Increased circulation
• Deep de-stress and relaxation

It’s one of those things where you finish a session and think, “yeah… that helped.”

And that matters.

Fibromyalgia isn’t about finding one magic fix — because sadly, there isn’t a cure. It’s about building a toolkit. Small things. Supportive things. Tools you can use alongside everything else to make life more manageable.

This is now another tool in mine.
And I’m really glad I found it. 💚

25/01/2026

📓 Journal entry

I’ve felt pretty bad lately.
Pain, fatigue, brain fog – the usual combo.

Because of that, I haven’t been able to keep pace with this page in the way I want to. Replying, engaging, showing up consistently… it all takes energy. And when you feel awful all the time, that stamina just isn’t there.

That said, I am really enjoying doing this. It gives me purpose. I just have to do it in a way that respects the reality of my body now.

One thing that’s genuinely helping me at the moment is this:

👉 I try to do one substantial thing each day.

Not a huge thing.
Not an “old-me” level thing.
Just something that makes a measurable improvement to my life.

Because when you do that, you make tomorrow a little easier.

If a task is too big to do in one go because of pain or energy limits, I split it:
• one part today
• another part tomorrow

That way, progress still happens – just at a pace my body can tolerate.

I can’t work for hours on end anymore or smash through lists like I used to. That version of me doesn’t exist now. But this version can still move forward… just differently.

And that still counts. 💚

25/01/2026

Shout out to my newest followers! Excited to have you onboard!

Jami Lynn Crist Williams, Ella Ledet, April Pearson, Lauren Quatrano, Linda Payne, Kathy Jo Neuses, Barbara Shepard Baird, Janette Leadbeater, Nancy Pease Hogan, Carmelina Genovese, Jamie Medlin Cobleigh, Lisa Hancock, Kerry Broadhead, Brandi Babcock Faulk, Jeannie Anglin, Lou Russell, Shaye Maree Michaelides, Candace Spears

24/01/2026

📚 International Education Day is a reminder that every young person deserves access to learning, understanding, and support.

For children and young people living with fibromyalgia, education isn’t just about school—it’s about understanding their bodies, their energy, and their condition. That’s why we created our fibro books for young people: to help them learn about chronic pain, fatigue, and pacing in a way that’s age-appropriate, empowering, and easy to understand.

By educating young minds about fibromyalgia, we’re helping them feel seen, supported, and less alone—and helping families, schools, and peers better understand invisible illness.

💜 Education builds knowledge. Knowledge builds confidence. And confidence helps young people thrive.

https://www.fmauk.org/information-packs-mainmenu-58/booklet-mainmenu-135

24/01/2026

Does anyone else grieve for their former self?

I used to be:
• Confident
• Independent
• Happy
• Pain-free
• Able-bodied

And that grief is strange — because no one died.
But something did change.

Fibromyalgia doesn’t just bring pain.
It quietly takes pieces of who you were.

The ease.
The spontaneity.
The version of you who didn’t have to plan, pace, explain, or apologise.

And the hardest part?
People expect you to “adjust” quickly…
Because from the outside, it doesn’t look like loss.

But it is loss.

It’s grieving:
• The life you thought you’d have
• The body you trusted
• The energy you relied on
• The independence you took for granted

Some days, the grief hits harder than the pain.

And yet — here’s the part we don’t say often enough:

Grieving your old self doesn’t mean you’re weak.
It means you remember who you were.

It means you’re human.

And slowly, painfully, you begin to meet a new version of yourself —
One who is resilient in ways you never asked to be.
One who measures strength differently.
One who survives things others never see.

If this resonates, you’re not broken.
You’re grieving — and you’re not alone.

💬 Does this hit home for you?
What do you miss most about your former self?

23/01/2026

Su***de is 5x more common in fibromyalgia sufferers than the general population.

If this post resonates, support is available.
🇬🇧 Samaritans — Call 116 123 (free, 24/7)
You don’t have to go through this alone.

***deAwareness
***dePrevention