Drae’s Journey living with TBCK

Drae’s Journey living with TBCK My Name is Drae, and this page is all about my fight with an EXTREMELY rare syndrome called TBCK

08/03/2025

Welcome to Draes new page where you will find all updates on our special boy

06/03/2025

Draes new page, all updates will go on there 💙

Welcome to Draes new page where you will find all updates on our special boy

05/03/2025

I have set up a new page for drae as it was set up as a business page, il be transferring everything over in the next few days.

please like and share his new page for daily updates on our special boy 💙

Welcome to Draes new page where you will find all updates on our special boy

12/02/2025
Update on Drae…. He has no virus causing the low oxygen levels while sleeping, and they don’t think it’s to do with illn...
20/01/2025

Update on Drae…. He has no virus causing the low oxygen levels while sleeping, and they don’t think it’s to do with illnesses over Xmas and new year as he had “normal sats” inbetween… so tomo they will attempt a scope to see whether his airways have gone floppy, and see respiratory team to see if we have now reached the stage where he needs oxygen while sleeping. If scope doesn’t work while he awake they will do it end of month when he goes under general anaesthetic to have his port o cath fitted 😪

How it started and how it finished 😂
12/01/2025

How it started and how it finished 😂

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Melksham

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