04/11/2025
Representation in Houses of Parliament, in support of people living with any number of these cross-over conditions.
Great news & I hope that this leads to improved awareness, diagnosis & health care plans with regard to these conditions.
Today we are proud to launch the Overlapping Illness Alliance (OIA), a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
We are an alliance of charities representing people with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), PoTS, MCAS, long COVID and ME/CFS.
These illnesses often present similar, debilitating symptoms including fatigue, pain, dizziness, brain fog, gut issues and post-exertional malaise. Despite their frequent co-occurrence and shared biological mechanisms, they are still too often treated in isolation, leading to fragmented care and delayed diagnoses.
We are hosting a drop-in session at the Houses of Parliament on Tuesday, 25th November to inform MPs about these conditions, and what they can do to support. Ask your MP to attend using our simple form: https://actionforme.eaction.org.uk/dropin
You can also learn more about the alliance, which includes: The Ehlers-Danlos Support UK, Mast Cell Action, POTS UK, Long Covid Kids, Long Covid Support, and Action for ME, here: https://www.overlappingillnessalliance.org.uk/
