Lydia Osteoporosis Project

20/02/2026

👇🔈

A new real-world study of women with postmenopausal osteoporosis in France has found that general practitioners (GPs) adhered to national guidelines on stopping, changing, or continuing oral bisphosphonates in only 60% of cases, and on initiating treatment in just 39% of cases. The data adds to the growing body of evidence highlighting the urgent need to strengthen GPs’ knowledge and understanding of treatment guidelines for osteoporosis; specifically, the use of bone densitometry in patient follow-up, and, more generally, in the management and treatment of osteoporosis.

View the paper in Archives of 👉🏼 https://bit.ly/46StCYg

20/02/2026

Proud to share this new publication by the International Osteoporosis Foundation (IOF) Rehabilitation Working Group!
🔗 View here: https://bit.ly/3Ou6g4X

The paper presents the development and implementation of Build Better Bones, IOF’s multilingual, user-centered web platform that provides evidence-based resources tailored for people living with osteoporosis and their caregivers. Built on a robust evidence-based foundation, the platform was developed with active involvement from patients, clinicians, and rehabilitation experts. This stakeholder input helped ensure that the platform is aligned with user needs and is scalable and adaptable to real-world conditions.

👏 Many congratulations to the Working Group — this truly international collaboration has resulted in a valuable resource for people around the world. Since its launch in 2023, the platform has continued to develop. It is now available in seven languages and includes comprehensive new sections on diagnosis and treatment.

13/02/2026

One of the keys is “D” 👇

Vitamin D plays an important role in our health.

13/02/2026

We recently launched our Scottish Approach to Change Learning Community. Our community aims to support change across health and social care in Scotland. We plan to help members build knowledge, understanding, and confidence when delivering change.

Head to our website to get involved. The link is in the comments.

11/02/2026

11/02/2026

In this edition of the PAO UK blog we reflect on January's Health Information Week and all that we did during the week to raise awareness and advocate for clinical care improvements for Pregnancy Associated Osteoporosis.
https://www.pao.org.uk/health-information-week-uk-19-26-january

So many of those affected by PAO comment on the struggles they experienced accessing diagnosis and treatment. Imagine being freshly post-partum, trying to get to know and care for your precious new baby, only to be struck by debilitating pain that prevents you from even lifting them, then dismissed by healthcare professionals that you have approached for help. This is a reality we are determined to change.

Take a look at what we achieved in that one week - and click follow to keep up to date with all we continue to do to empower and support PAO patients and their families.

04/02/2026

The postpartum period is a time of enormous physical and emotional vulnerability. When a new mum is in constant pain, losing function, and struggling to care for her baby, being told this is “normal” can be deeply damaging. Unfortunately this is the experience of many of us with PAO.

Losing height. Unable to sleep. Struggling to lift her baby.
For this mum, finally getting a diagnosis of 5 vertebral fractures brought relief, not fear.

For many women with Pregnancy Associated Osteoporosis, receiving a diagnosis brings validation, finally understanding that there is a medical reason behind their suffering.

04/02/2026

04/02/2026

We’ve published our Annual Objectives for 2026, our fortieth anniversary year.

Today, the Royal Osteoporosis Society (ROS) publishes its Annual Objectives in the fifth year of our strategy, Breaking the Silence. You can read them here.

Chief Executive Craig Jones said:

“We’re proud to publish our ambitious programme for 2026.

In our 40th anniversary year, we’ll turn political promises into real action for people with osteoporosis - action that changes and saves lives. We’ll drive a revolution in bone health awareness and prevention through The Great British Bone Check. And as thousands more people are diagnosed and come to us for support, we’ll launch a new website and AI-powered tools to serve more people than ever, so no-one is left without the help they need”.

04/02/2026

Il 4 febbraio celebriamo la Giornata Mondiale dedicata alla Malattia di Paget dell'osso, un disordine cronico del rimodellamento osseo che colpisce prevalentemente adulti over 55, causando dolore, deformità e rischio di fratture.
La SIOMMMS promuove la diagnosi precoce e la gestione ottimale attraverso il suo Position Paper dedicato, disponibile qui: https://www.siommms.it/position-paper-siommms-sulla-gestione-della-malattia-di-paget/ .
Scopri di più, condividi e sensibilizza!

04/02/2026

🌍 Today is World Cancer Day — an important moment to highlight the International Osteoporosis Foundation’s recent scientific work addressing bone loss associated with cancer treatments. Over the past year, IOF Bone and Cancer Working Group experts have published the following key papers offering new insights into prevention and management strategies for cancer treatment–related bone loss:

• Non-metastatic breast cancer patients discontinuing aromatase inhibitor on denosumab: what next? 🔗 https://bit.ly/4kkMR2w
• Management of aromatase inhibitor–associated bone loss (AIBL) in women with hormone-sensitive breast cancer: An updated joint position statement of the IOF, CABS, ECTS, IEG, ESCEO, IMS, and SIOG. 🔗 https://bit.ly/4rx6PJJ
• Bone Effects of Anti-Cancer Treatments in 2024. 🔗 https://bit.ly/4atgStn

Professor René Rizzoli, Chair of the IOF Bone and Cancer Working Group, emphasized the importance of addressing this often-overlooked consequence of cancer care:
“While today’s cancer therapies have significantly improved survival, they come with a hidden cost — an increased risk of bone loss and life-altering fragility fractures. For this reason, we strongly advocate for a multidisciplinary approach, bringing together oncologists, endocrinologists, rheumatologists, and general practitioners to ensure early screening and proactive bone-protective strategies for patients at high risk of fracture.”