Stories of CAMHs

Stories of CAMHs A place to share stories of UK Child and Adolescent Mental Health Services

I had a phone call with the ADTT team leader today about our delays. She was apologetic about the delays we have faced a...
01/04/2026

I had a phone call with the ADTT team leader today about our delays. She was apologetic about the delays we have faced and I am sympathetic to how under funded and stretched they are…..

I learned today the health trust they are from Berkshire Healthcare NHS Foundation Trust has just one child psychiatrist, just ONE! For a trust that serves 900,000 people that is absolutely shocking!!!!

Wes Streeting this is disgraceful, two years you have been in charge of our NHS, this must be addressed.

Sign my campaign in the comments!

INQUEST what a good campaign!
30/03/2026

INQUEST what a good campaign!

We campaign to prioritise care over punishment and establish independent investigations into deaths

The anxiety of waiting is profoundly depressing and draining because it creates a state of uncertainty, powerlessness, a...
29/03/2026

The anxiety of waiting is profoundly depressing and draining because it creates a state of uncertainty, powerlessness, and suspended animation that leaves our brains in a perpetual "what if" loop. It combines the psychological torment of not knowing the future with the physical inability to take action to change it.

Here is why the anxiety of waiting feels so heavy and depressing:

* Helplessness and Lack of Control: Human beings crave certainty and control. When we are waiting for important news (e.g., job results, medical tests, relationship updates), we are forced into a state of passive, involuntary waiting. This lack of control acts as a "stress booster," making the mind feel powerless and helpless.

* The "What If" Catastrophe Loop: Because our brains are wired to protect us from danger, uncertain situations often lead to "catastrophizing"—imagining the worst-case scenario. Replaying these negative outcomes in our minds causes us to feel the emotional impact of a bad outcome before it has even happened, leading to anticipatory stress, or "bleeding before you're cut".

* Suspended Life ("Waiting Mode"): Waiting causes us to put our lives on hold. You might feel unable to start new tasks, enjoy leisure time, or invest energy elsewhere, which leads to feelings of stagnation and wasted time. This is sometimes referred to as "task paralysis," where anxiety over a future event traps you in a state of inaction.

* Physiological Exhaustion: Anxiety during waiting activates the body's sympathetic nervous system—fight, flight, or freeze—releasing stress hormones like adrenaline and cortisol. When this happens over days or weeks, it leads to exhaustion, sleep disturbances, and irritability, which are key components of depression.

* Time Dilation: When anxious, the perception of time changes; minutes feel like hours. This perceived slowdown makes the wait feel even more painful and unending, enhancing the frustration.

* High-Stakes Focus: The more important the result, the more our focus narrows, causing us to obsessively check in (email, phone, etc.). This constant, fruitless checking often fuels more anxiety, leading to a vicious cycle of hope and disappointment.

* Interestingly, research suggests that waiting is often worse than receiving bad news. Once bad news is received, we can process it and move forward; while waiting, we are in an agonizing "no-man's land" of hope and fear.

Wes Streeting your CAMHs departments are causing more harm by keeping children waiting for mental health assistance.


28/03/2026
Shout out to those parents hopefully getting a bit of recovery today, after the school storm but before the holiday dis-...
28/03/2026

Shout out to those parents hopefully getting a bit of recovery today, after the school storm but before the holiday dis-regulation storm hits.



28/03/2026

:-(

26/03/2026

I like from time to time writing a big email and copying in a load of big wigs…. Today was the day!

I got a response within 3 hrs for a meeting

“Good morning

I would like to discuss status of xx’s Treatment. In the later part of 2025 after significant efforts for progress by ourselves, the NHS Keyworkers and the DSR Panel, CAMHS agreed to start assessing xx for the best course of action, while xx has worked well with and really appreciates yy and btw xx wants you to know this isn't a complaint about yy, as parents we are still no clearer on what that action plan is and how it reflects xx’s needs nearly 6 months later. We have been pushing for some time to have xx assessed for medication as we and other professionals thought it would be beneficial for her to help control her anxiety, OCD and constant nausea caused by the anxiety.

Given that we started this referral in Feb 2024 it is deeply disappointing that we are still no further forward. The school and LA have gone out of their way to provide the correct support for xx, but many of those measures would not have had to be so complex if xx had had her mental health needs met. The needs were so complex that we are now being told that 6th forms cannot meet need so we have to look at removing protections to make that happen.

Her ECHP has a section for Health outcomes from a multi-disciplinary team including Psychiatry and help with her ever increasing eating disorder symptoms. BEDs rejected xx and made her feel invalidated, but her eating continues to decline.

Xx is still under the keyworker team and is still deemed at risk of psychiatric inpatient care, we would very much like to prevent that. But xx has constantly expressed to CAMHs that she needs help, A) getting through her exams (in two months) and b) returning to an educational setting for 6th form.

Xx turns 1xth soon and our next concern is what happens when she ages out of CAMHs before being treated.

Xx has been continually asking when she will be assessed for medication and it is no longer fair to keep her waiting. We would like to know when we will get some answers. I don't want to but i think very soon we will have to start looking in to writing a formal complaint. XX’s needs are not being met.

CAMHs are the only option we have to get help for xx and the waiting over the last two years had directly led to a decline in her mental health, wellbeing and future prospects. Over 750 Days is just not acceptable. CAMHS know xx’s needs as you wrote supporting documents for both xx’s EHCP tribunal and her PIP Claim, so when will those needs be addressed?

I hope you understand our frustration and concern for xx’s wellbeing.

I look forward to your prompt response.”

In a recent newburytoday article, a Royal Berkshire NHS Foundation Trust spokesperson said. “The  average waiting time t...
25/03/2026

In a recent newburytoday article, a Royal Berkshire NHS Foundation Trust spokesperson said.

“The average waiting time to receive initial help from Berkshire Healthcare CAMHS services in West Berkshire is now approximately seven weeks”

We all know from experience that this is just not the reality….. in some cases it can take that long just to get an appointment with your named doctor!!!! And that is before you get shoved on the referrals waiting list.

For the first 18 months of our EHCP journey the only input the LA had from CAMHs was an acknowledgement the child was on the waiting list. When the core reason you child is unable to attend school is their severe EBSA and Declining mental health, how are Local Authorities and Schools ever meant to make any provision work if a child’s health needs are not being met?

So Wes Streeting Department of Health and Social Care - DHSC Department for Education Bridget Phillipson Georgia Gould - MP for Queen's Park and Maida Vale

⚔️It’s time to stop following different agendas…. 🛠️Work together!
🙂‍↔️Don’t just give us a promise to “fix it by the end of this Parliament”
💚Our children need solutions NOW!



Link in the comments!!! Please sign

Lib Dem Chris Coghlan for Dorking and Horley Lee Dillon MP Autism Dadcast

Sometimes we all get that MEH! Feeling ☹️and that’s ok. It’s nearly the school holiday, for some it’s nearly GCSEs, for ...
24/03/2026

Sometimes we all get that MEH! Feeling ☹️and that’s ok. It’s nearly the school holiday, for some it’s nearly GCSEs, for some their secondary school trauma is nearly done.

I’m feeling MEH today, low mood, lethargic, getting a cold 🥶 boooo.

But as SEND parents we have to keep going, after you win one fight, its straight on to the next…..

Keep being awesome, keep fighting for your kids!

Please sign our petition!
23/03/2026

Please sign our petition!

Children in West Berkshire are now facing 12-month delays in accessing essential mental health support.

While charities like Response are a lifeline for children who have been let down by the NHS, demand for their services is reaching unsustainable levels.

It’s crucial that access to mental health services is urgently improved so that young people can have the childhood and the future they deserve.

More: https://www.leedillon.co.uk/post/children-facing-long-delays-for-mental-health-support

21/03/2026

For years Child mental health has been neglected and treated with 2nd class priority, with some waiting 2 or more years to receive help!

CAMHS delays (Child and Adolescent Mental Health Services) lead to worsening mental health, increased risk of self-harm and su***de, significant strain on education and relationships, disengagement from services, and a greater chance of crises, often with long-term negative impacts on the young person's future development and ability to function in adulthood. Delays can make issues harder to treat as they become more ingrained, impacting a child's ability to learn, socialize, and cope.

Join us in asking for an inquiry into to these systematic failures and mismanagement of the CAMHS system.

Our children deserve better treatment. Until the H in EHCP is fixed, SEND reforms will fail.

Link 🔗 in comments

Nice share from Sean Fletcher on his instagram story…… Thanks
21/03/2026

Nice share from Sean Fletcher on his instagram story…… Thanks

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