Mitochondrial Research

Mitochondrial Research Latest news & updates from the Wellcome Centre for Mitochondrial Research at Newcastle University.

The Wellcome Trust Centre for Mitochondrial Research is built on our long standing clinical and scientific expertise in mitochondrial disease. We are totally committed to provide the best of care for our patients and this means that we must understand more about the mechanisms underlying mitochondrial disease. If we are to develop new strategies for preventing or treating mitochondrial disease it is fundamentally dependent upon very high quality research. On the background of a long history in this area we were delighted to be awarded a Wellcome Trust Centre and the significant support of the Trust and Newcastle University means that we can develop our research into new areas and potentially help more patients with mitochondrial disease. In addition to our research strategy we are very committed to keeping patients and families fully informed of new advances in mitochondrial research and explaining the complexities of mitochondrial disease. This website is part of our initiative in this area and we want to make sure that everyone finds coming to the website helpful and informative. Over the next few years we will be developing new videos to explain mitochondrial disease and are constantly looking at new ways to explain mitochondrial disease. One of the things we most value is the continued relationship with our patients and their supporters. Our research over the years has received invaluable help from support from both the Muscular Dystrophy Campaign and The Lily Foundation. Both are marvellous charities that help patients and families with mitochondrial disease. The whole field will only move forward by us all working together to provide better care for all patients with mitochondrial disease. The Wellcome Trust Centre for Mitochondrial Research, based in Newcastle University, was established in May 2012 Mitochondrial Research Group with the aim of developing a seamlessly integrated programme of basic and clinical mitochondrial disease research. The Centre will not only push forward our understanding of mitochondrial disease mechanisms, but is also committed to training future generations of exceptional young researchers and to a programme of public engagement that will inform the development of its research strategy. A huge breadth of mitochondrial research is undertaken at the Wellcome Trust Centre for Mitochondrial Research, but the Centre is specifically funded to address fundamental questions regarding mitochondrial gene expression, the prevention of mitochondrial DNA disease transmission, the identification of mechanisms by which mitochondrial dysfunction causes neurological problems and the role that mitochondria play in chronic disease. We have very close links to the NHS Highly Specialised NHS Service for Rare Mitochondrial Disorders of Adults and Children. This Clinical Service is based within the Newcastle upon Tyne Hospitals NHS Foundation Trust and provides care for patients throughout the UK both in terms of diagnosis and management. It is led by Professor Doug Turnbull for adults and Dr Robert McFarland for children. There is a diagnostic laboratory led by Professor Rob Taylor providing tests for both biochemical and genetic diagnosis. In addition, we are developing the next generation of outstanding scientists through an innovative research training program in mitochondrial medicine and have established a new MRes course in Mitochondrial Biology and Medicine. This course, together with an array of PhD and post-doctoral training iniatives, will enable the Centre to provide world-class education and training in mitochondrial disease research to leading scientists of the future. Public Engagement
As a Wellcome Trust Centre, we are committed to a process of public engagement that we hope will inform and develop our strategies for research and communication of research outcomes. Our work to prevent the disease passing from mothers to children involves new IVF techniques that involve a greater understanding by the public as well as discussion with key policy makers. We will develop new approaches to engage with patients and public, and guide policy development to support the use of new techniques to prevent transmission of mitochondrial DNA disease. Our Vision
The Wellcome Trust Centre for Mitochondrial Research is an internationally recognised centre of excellence. We aim to make a major difference to the lives of patients with disease caused by mitochondrial dysfunction. We will achieve this by integrating international quality research with training excellent young scientists and engaging with policy makers, our patients and the public.

Huge thanks to Liz Twist MP & team for this incredible opportunity to increase the profile of in UK Parliament. Thank ...
26/03/2024

Huge thanks to Liz Twist MP & team for this incredible opportunity to increase the profile of in UK Parliament. Thank you also to everyone who joined us to help raise .

We are incredibly grateful to Liz & team for their continued support of our & advocacy for the rare community. Together we can make a difference💚

Upper Waiting Hall, Palace of Westminster, 11th March 2024: Are you mito aware? Raising the profile of .On behalf of Li...
19/03/2024

Upper Waiting Hall, Palace of Westminster, 11th March 2024: Are you mito aware? Raising the profile of .

On behalf of Liz Twist MP, Chair of the APPG for Rare, Genetic and Undiagnosed Conditions, we would like to thank everyone who joined us at the Opening Ceremony of ?

A special thank you to Lord Markham CBE, Parliamentary Under Secretary of State at the Department of Health and Social Care, for his enlightening introductory remarks and to Valerie & Emily Hill, Danielle Alexander & Liz Curtis MBE for sharing their personal journeys.

We invite you to check out the event highlights in the photo gallery: https://drudodd.pic-time.com/OJYKsyBgVMjh2

Wellcome Trust The Newcastle upon Tyne Hospitals NHS Foundation Trust My Mito Mission - Powering Awareness for Mitochondrial Disease Genetic Alliance UK Medics4RareDiseases The Lily Foundation UK Parliament Dru Dodd Photography

My MitoTed has been on another mission to spread awareness 💚Butlers Chocolates Royal College of Surgeons in Ireland My M...
09/02/2024

My MitoTed has been on another mission to spread awareness 💚

Butlers Chocolates Royal College of Surgeons in Ireland My Mito Mission - Powering Awareness for Mitochondrial Disease FutureNeuro

A big thank you to the Wellcome Centre for Mitochondrial Research team at Newcastle University & The Newcastle upon Tyne...
08/12/2023

A big thank you to the Wellcome Centre for Mitochondrial Research team at Newcastle University & The Newcastle upon Tyne Hospitals NHS Foundation Trust for supporting Save the Children UK Christmas Jumper Day 2023! And thanks to Kim Chard for organising our fundraising across the Centre 💚

05/12/2023

A year on from the visit of Liz Twist MP & Sam Grist to meet our team in the Wellcome Centre for Mitochondrial Research at Newcastle University, we would like to share our deep appreciation of everything they continue to do as true advocates for the community.

We are incredibly grateful to Liz & team for their unwavering support of our in the of England & look forward to continue working together to improve the lives of those living with across the UK & beyond.

Without research, there will never be hope of a cure. Let's find one together 💚

The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust UK Research and Innovation Medical Research Council Genetic Alliance UK Northern Ireland Rare Disease Partnership My Mito Mission - Powering Awareness for Mitochondrial Disease The Lily Foundation Leigh Network Muscular Dystrophy UK

We are delighted that the WCMR Progress Meeting Programme for 2023/24 is well underway & would like to thank all our spe...
04/12/2023

We are delighted that the WCMR Progress Meeting Programme for 2023/24 is well underway & would like to thank all our speakers so far! This has included Atif Khan & Steph Nicholson who provided research updates on single muscle fibre imaging & cancer prevention in the ageing gut 💚

Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust John Walton Muscular Dystrophy Research Centre

Today was the first in a series of focus groups at Healthworks Newcastle to help co-design our community engagement arou...
01/12/2023

Today was the first in a series of focus groups at Healthworks Newcastle to help co-design our community engagement around & with the wider public. Huge thanks to Ellie Clark for leading on the organisation along with Lyndsey Butterworth & to the participants who joined us on a snowy day in ❄️

Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust

We are incredibly grateful to the Northern Ireland Rare Disease Partnership team for the opportunity to raise the profil...
30/11/2023

We are incredibly grateful to the Northern Ireland Rare Disease Partnership team for the opportunity to raise the profile of & our campaign with the Northern Ireland APG for . Thank you also to the MLAs for their support of the disease community & for raising awareness of conditions within the Northern Ireland Assembly 💚

Mark H Durkan Robbie Butler MLA Paula Bradshaw MLA Maolíosa McHugh MLA Deborah Erskine MLA Danny Donnelly - Alliance Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust

All-Party Group (APG) on Rare Diseases took place on 29th November 2023 with rare conditions Mitochondrial disease and Cystinosis on the Agenda. APG, Chaired by Mark H Durkan MLA, continued the opportunity to provide a much-needed voice for the NI Rare Disease Community at the NI Assembly.
Thank you to our speakers and MLA's.
Mitochondrial Research Cystinosis Ireland Mark H Durkan Paula Bradshaw MLA Maolíosa McHugh MLA Deborah Erskine MLA Robbie Butler MLA Danny Donnelly - Alliance

Members of the Newcastle Mito Team had a fantastic time at in earlier this week & would like to thank Beacon for Rar...
29/11/2023

Members of the Newcastle Mito Team had a fantastic time at in earlier this week & would like to thank Beacon for Rare Diseases for bringing together patients, caregivers, patient organisations, researchers, industry professionals & healthcare providers to drive positive change for the community.

It was a wonderful opportunity to hear from a range of stakeholders, catch up with collaborators & build new connections with people/organisations all committed to tackling the challenges faced by those living with a rare condition. We feel privileged to be part of the community & would like to thank everyone for such an inspirational day. Together we can make a difference 💚

Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust Genetic Alliance UK Liz Twist MP Sickle Cell Society UK Medics4RareDiseases Cards for Bravery Cambridge Rare Disease Network My Mito Mission - Powering Awareness for Mitochondrial Disease The Lily Foundation Rare Revolution Magazine HBA Support

The Newcastle Mito Team were delighted to share their knowledge & experience of mitochondrial disease at the annual Nort...
24/11/2023

The Newcastle Mito Team were delighted to share their knowledge & experience of mitochondrial disease at the annual North of England Neurological Association (NENA) Training Day in Harrogate 💚

The meeting involved Neurology Specialist Trainees from Manchester, Liverpool, Sheffield, Preston, Hull, Leeds, Sunderland, Middlesbrough & Newcastle, and is the largest training day dedicated to mitochondrial disease in the UK this year.

Sincere thanks to colleagues Prof Gorman, Dr Yi Ng, Dr Rhys Thomas, Dr Andy Schaefer, Dr Albert Lim & Dr Elizaveta Olkhova who supported the delivery of the programme. It has been a privilege to lead on this training day to increase awareness of mitochondrial disease among healthcare professionals 💚

Thank you also to the sponsors for the day, which included UCB, Novartis. Alnylam Pharmaceuticals, AbbVie, Angelini Pharma and the NENA committee Dr Rajiv Mohanraj (Manchester) & Dr Adam Cassidy (Sunderland).

The Newcastle upon Tyne Hospitals NHS Foundation Trust Newcastle University Wellcome Trust Medics4RareDiseases NHS England Genetic Alliance UK

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23/11/2023

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Leigh Network is supporting Carers Rights day today and every day! Millions of people provide support to their family and friends and many go unrecognised and unpaid. Carers UK are trying to highlight this and make a change for everyone. You can find out more by visiting their website www.carersuk.org



Image description: white background with a bright red circle in the centre, inside the circle in white is a loud haler and the words carers rights day.

Dr Renae Stefanetti & Dr Lisa Alcock were delighted to attend the 14th Meeting of the British Society of Neuro-Otology i...
21/11/2023

Dr Renae Stefanetti & Dr Lisa Alcock were delighted to attend the 14th Meeting of the British Society of Neuro-Otology in London last week! It was a fantastic opportunity to share some of our patient-driven & learn from colleagues working in the field of gait, neuro-otology & vestibular science💚

Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust The University of Melbourne Imperial College Healthcare NHS Trust

Prof Bobby McFarland & Dr Yi Ng from the Newcastle Mito Team at Newcastle University & The Newcastle upon Tyne Hospitals...
20/11/2023

Prof Bobby McFarland & Dr Yi Ng from the Newcastle Mito Team at Newcastle University & The Newcastle upon Tyne Hospitals NHS Foundation Trust were delighted to join the international community at Mitochondrial Medicine: The Genomit Initiative to share advances in natural history studies for 💚

Wellcome Trust The Lily Foundation Mitocon - Insieme per lo Studio e la Cura delle Malattie Mitocondriali ODV International Mito Patients World Mitochondrial Disease Week Reneo Pharmaceuticals University of Pisa

As well as thanking all the MPs who attended our parliamentary event to increase the profile of , we would like to than...
17/11/2023

As well as thanking all the MPs who attended our parliamentary event to increase the profile of , we would like to thank everyone who helped make it such a huge success. Special thanks go to Susan, Mark, Loretta & Alison from The Lily Foundation who joined us to share their own experiences of & why raising awareness is so important to those living with the condition💚

We would also like to thank Ian McDonald who joined us to film the event as part of a larger documentary project that will be coming soon!

Genetic Alliance UK Liz Twist MP My Mito Mission - Powering Awareness for Mitochondrial Disease Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust

A year on from our parliamentary event, we would like to thank Stephen Doughty MP for joining us to find out more about ...
17/11/2023

A year on from our parliamentary event, we would like to thank Stephen Doughty MP for joining us to find out more about & help raise the profile of for the benefit of the whole community. Together we are stronger 💚

Genetic Alliance UK Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust The Lily Foundation My Mito Mission - Powering Awareness for Mitochondrial Disease Photo credit: Dru Dodd Photography

A year on from our parliamentary event, we would like to thank Janet Daby MP for joining us to find out more about & h...
17/11/2023

A year on from our parliamentary event, we would like to thank Janet Daby MP for joining us to find out more about & help raise the profile of for the benefit of the whole community. Together we are stronger 💚

Genetic Alliance UK Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust Wellcome Trust The Lily Foundation My Mito Mission - Powering Awareness for Mitochondrial Disease Photo credit: Dru Dodd Photography

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Newcastle University, Medical School, Framlington Place
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NE24HH

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