23/01/2026
I’ve been quiet since the 7th of November, and I want to explain why properly.
It started with a really bad chest infection. I was quite ill and just trying to get through each day.
Then, just as I started to think things might be improving health-wise, a major family situation hit out of nowhere. I won’t go into details, but I suddenly became a single dad to a 6-month-old.
I’ve been a single dad before. I raised my daughter on my own for years. But this time is different. Back then, I didn’t have fibromyalgia. I didn’t have TBM. I didn’t have severe mobility issues. I’ve always had chest problems, but my body wasn’t like this.
I’ve now been a single dad again for nearly two months, and f**k me, it’s hard.
A crawling baby.
Sleepless nights.
Me sat on the edge of the bed in tears at stupid o’clock, asking myself how the hell I’m meant to do this while my body is screaming in agony.
On top of everything else, I’ve recently been told my hips are completely misshapen due to lack of blood supply, caused by years of steroids. They’re basically dead. At 36, I’m now looking at a double hip replacement.
That’s a sentence I still can’t quite wrap my head around.
And honestly, some days it feels like every time I turn around, there’s another part of my body letting me down. You start to wonder what else is going to break next.
Fatigue and fluctuating health mean absolutely f**k all to a baby. They don’t care. You don’t get a choice. You just keep going.
I am struggling. I won’t pretend otherwise.
I am also incredibly grateful to my sister, my mum and my dad for helping me keep my head above water, because without them, I don’t know how I’d be doing this.
So yeah, that’s where I’ve been.
I’m still here.
I’m still standing.
And I’m back.
I’ll be posting when I can. I will post real life, not just the polished version. I’ve got some ideas about what I want to do with this page, including certain themes or days where I talk about specific things, and I really want to give this a proper go and get it off the ground.
I’m also going to try and break my fear of video, even if my voice shakes and it’s rough around the edges.
This page is about real life with chronic illness, and this is my real life right now.
Thanks to anyone who’s stuck around.
Nick