Sonny’s Story LCH Awareness

01/05/2026

Steroids week has definitely arrived 😅

Sonny hasn’t been sleeping great at all the past few nights. Steroids can cause a whole range of side effects in little ones — they can make them feel wide awake, restless and full of energy, even when their body is exhausted. They can also increase appetite, cause mood swings and make emotions feel much bigger than usual. It’s a lot for such a tiny person to handle.

I’m currently living off Red Bulls to keep going 😅 but we are just so happy that Sonny is eating so well and not needing the NG tube anymore.

The appetite has gone through the roof… Sonny has eaten 24 yogurts in 3 days 🤯 and has now discovered a love for mint Cornettos 🍦 which he would happily eat all day if we let him!

30/04/2026

29/04/2026

Chemo number 17 💛

It’s hard to believe our little Sonny has now had 17 rounds of chemo. Today was his full day of steroids and wow… we definitely know about it 😅 Tonight he has quite literally been climbing the walls.

We’ve started to see signs of frustration in him over the last few weeks — head banging and slapping himself. It breaks our hearts. Maybe it’s because he doesn’t yet have the words to tell us how he feels. After speaking to other mums on the ward with older children on steroids, it’s been so eye-opening hearing about the side effects their children can describe. If Sonny feels those things too, we’d never know. That’s the hard part about him being so little.

Chemo weeks always highlight our support network… or our lack of one. We don’t really have a village helping us through this. We have my amazing mum, who works full time and still comes to every chemo appointment — and that’s it. We are so grateful to her.

It’s exhausting juggling a toddler who constantly needs you, while trying your best to give time and normality to two other boys. The mum guilt is enormous and never really goes away.

Right now we’re just taking it hour by hour and doing the very best we can. 💛

27/04/2026

Thank you so much for having us join you on your podcast 💛
Chloe, you are such a lovely person and an absolutely amazing mum, and Louie is truly inspiring.

Being given the opportunity to share our story and help raise awareness about LCH means the world to us. We feel so grateful to have been part of such an important conversation and to help spread understanding about something so close to our hearts. Thank you again for such a special opportunity ✨

Sonny’s Fight - Ep1 🎙️

26/04/2026

🫶

25/04/2026

We are in the process of starting a charity in Sonny’s name 💛

The main aim of this charity will be to financially help families on the very first day they enter a children’s cancer ward. I will never forget Sonny being put to sleep for his MRI and me standing outside Costa staring at my bank app thinking, can I afford this coffee? When you’re waiting to hear whether your child has cancer, a coffee should never be something you have to worry about.

There are so many incredible charities that support families after diagnosis, but in that terrifying time before… there isn’t really anyone. No one to talk to other than the nurses on the ward. No one to tell you “you’ve got this.” No one to cry on. And if I’m able to, I want to change that.
The egg collection we did was absolutely amazing and it sparked a light-bulb moment — maybe I can start a charity.

I’m not very good at being a stay-at-home mum, and while I’m currently off work looking after Sonny, I need something positive to focus on. Helping others has always been in my nature, and this feels right.

So I wanted to ask… if I was to host an event:
1️⃣ Would people be interested?
2️⃣ What would you prefer — a family fun day or a family ball?

Thank you for always supporting us 🤍

24/04/2026

https://youtube.com/?si=r7ZY1uVazq6eJ-D1

22/04/2026

We’re incredibly honoured and grateful to have been invited to join Chloe on her podcast to help raise awareness of childhood cancer 💛

We’re just two mums who were living a normal life until everything changed with four words: “your son has cancer.” Since then, our world’s have been turned upside down, but this journey has also shown us how powerful it is when strong women come together — supporting each other, speaking up, and creating change. 💛

We’ll be opening up about Sonny’s journey in a very real and honest way — sharing the highs, the heartbreak, and the reality of life after diagnosis. Our hope is that by speaking out, we can help raise awareness, support other families, and continue pushing for change.

Thank you for giving us this opportunity to share Sonny’s story ✨

19/04/2026

We had a lovely little weekend away, our first trip since Sonny was diagnosed 💛

At first, the anxiety of being so far from home and the hospital really got to me. I messaged a friend who reminded me that we were only 1 hour 40 minutes away if anything happened — and that some families on the cancer ward travel even further than that just for appointments. That really helped bring me back down to earth.

The last time we went away was just a few weeks before Sonny’s diagnosis. We loved that trip, but being away now really shows how much our lives have changed. Dale and I both had moments of doubt… “Should we be doing this?” “Should we be going into arcades and busy places?” Luckily when one of us felt anxious, the other felt calm and reassured us. The reality is we’re told to live life as normally as possible — but the last time we did that Sonny caught Covid and spent his first birthday in hospital, so those worries are always there.

We also have two other boys who deserve to live their lives and enjoy being kids and my goodness, we had the BEST time away together. We laughed, relaxed and made the most special memories.

On the second day, our friends came to visit which made the trip even more special. It was so lovely spending time together and watching the kids play and just be kids.

Now we’re home and reflecting on such an amazing weekend, and it feels so special to have had that time together ✨💛

14/04/2026

We did it ♥️

14/04/2026

TBC 6.30pm 💪