Vulval Pain Society

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Vulval Pain Society

UK charity supporting, educating, providing practical advice to people with vulval pain

08/04/2026

Book now for the British Society for the Study of Vulval Disease Annual Scientific Meeting 2026 at the Novotel, Southampton

- 12th May 2026 – Educational Day
- 13th & 14th May 2026 – ASM with Educational Dinner

Registration is via the BSSVD website at www.bssvd.org/meetings

18/03/2026

🔊 VULVODYNIA MEDICATION RESEARCH: Manchester is now open for recruitment!📍

The ongoing clinical trial by MAC Clinical Research - investigating a potential new medication for provoked vulvodynia - has now expanded to a Manchester site.

You'll receive a free health check-up, up to £1730 for time and commitment, plus reasonable travel expenses.

Options to register your interest with MAC Clinical Research:

🌐 Website: https://bit.ly/3ZJNCZ9

📱 UK Freephone: 0800 917 7617

📽️ If you've not already watched our Q&A with MAC's clinical lead discussing this exciting research, you'll find the link in the first comment.

29/01/2026

Just one week to go! ⏳

💊 A NEW MEDICATION FOR VULVODYNIA❓

Join us 7pm Thurs 5th Feb for a Q&A with Dr John Connell, Chief Scientific Officer at MAC Clinical Research, discussing the clinical trial for this potential new treatment for provoked vulvodynia.

VPS trustees Sheren and Dr Winston will be putting questions to Dr John and please bring your questions on the day.

💬 You can also drop your question in the comments here or DM us but we hope you can make it live, over on our YouTube channel.

🗓️ Thurs 5th Feb
🕖 7pm GMT
▶️ Right here on Facebook (and also on on YouTube channel)

26/01/2026

❓ Have you faced barriers in diagnosing v***al pain or having it diagnosed?

🗣️ HAVE YOUR VOICE HEARD:

wants to hear from you, if you're:

1️⃣ over 18 and have lived with any v***al pain for over 3 months: vulvodynia, vestibulodynia, lichen sclerosus, lichen planus, or atrophic vaginitis OR

2️⃣ a healthcare professional providing care to people living with any v***al pain

📧 Contact Athina: athinazoi.lountzi@stir.ac.uk

🔗 The link to take part is in our bio and also here: bit.ly/AthinaResearch

23/01/2026

There is a real need for new medicines for the treatment of vulvodynia.

is looking for volunteers with vulvodynia to take part in a clinical trial investigating a potential new treatment. 💊

👉📲 Swipe to learn more about this research and if you may be eligible to take part.

Eligible participants will receive a free health check-up, up to £1730 for their time and commitment, plus reasonable travel expenses will be paid.

For more information, and to register your interest in this research:
🌐 visit researchforyou.co.uk OR
📞 call UK Freephone 0800 917 7617

16/01/2026

📌 DATE FOR YOUR DIARY: 7pm Thurs 5th Feb

💬💊 We're discussing trial of possible new treatment for provoked vulvodynia

❔❓ Drop your questions in the comments for the clinical lead of this trial who will be speaking with!

Link to Livestream coming soon.
Trial details - see link in bio. We know you'll have more questions so let us know! ❤️

07/01/2026

Know Your Normal 🐱

Just like checking your breasts,
regularly looking at your v***a helps you notice what’s normal for you - so you can spot any changes early and get them checked.

1️⃣ Sit in a comfortable position
2️⃣ Legs apart
3️⃣ Place a mirror where you can see your external genitalia (v***a) 🪞

Check regularly 🔁

04/12/2025

NOTE: All our resources are FREE! 🆓🥳

✅🌐 Our OFFICIAL WEBSITE is now: v***alpainsociety.org.uk ✅

❌ Any other site (even if it looks like us) is FAKE! There are fraudsters who are using old copies of our old site and we're working to get them shut down. 🚫

✅📧 Our OFFICIAL EMAIL is now: info@v***alpainsociety.org.uk

☝️Remember the .uk on the the end of our website and email address.

We're here for you. ❤️

20/11/2025

📣 Get involved in finding new treatments for vulvodynia!

is looking for volunteers diagnosed with vulvodynia to take part in a clinical trial investigating a potential new treatment.

KEY ELIGIBILITY CRITERIA::
• Women ages 18-65 ✅
• Diagnosis of vulvodynia, with pain for at least 12 months ✅

💊 The study medication is being investigated to evaluate the effect it has on the pain in the vestibule when caused by insertion (tampon/sex) or touch (provoked vestibulodynia).

It is a novel therapy that increases dopamine levels in the body, which contribute to feelings of pleasure, and pain modulation. ✨🧠

For MORE INFO and to register your interest in this research:
🌐 Visit https://researchforyou.co.uk/vulvodynia-clinical-trial-mac212/
☎️ Call UK Freephone 0800 917 7617

🚈🚌🚗Note: Transport or travel expenses will be provided to location of study at MAC Lancashire

👉 If you’re a clinician, please share this opportunity with your patients with provoked vestibulodynia, and via social media.

14/10/2025

⚠️ Important update:

It seems someone is impersonating us on our old domain, showing out-of-date content and email address. (We're taking action).

📌 Our OFFICIAL SITE and EMAIL are:

🌐 v***alpainsociety.org.uk

✉️ info@v***alpainsociety.org.uk

👉 Please share to help patients and clinicians reach us directly.

02/10/2025

🔎 WHERE YOU'LL FIND RESOURCES:
If you live with any kind of v***al pain such as vulvodynia, vestibulodynia, vaginismus, lichen sclerosus, or you're a clinician who treats people living with v***al pain then head on over to our website:

🌐 v***alpainsociety.org.uk

Or you can email us:

✉️ info@v***alpainsociety.org.uk

🧐😊 Yes, we've moved and now have a .uk on the end of our address!

Address

PO Box 7804
Nottingham
NG35ZQ

Website

https://vulvalpainsociety.org.uk/

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