West Midlands Tourettes Action Support Group

23/03/2024

Everyone this is our public page, if you have tourette's syndrome yourself ( or partner/child/family member) get yourself over to the group which is where it happens.

29/09/2021

Please remember this is our public facing page for fundraising and awareness, the nitty gritty stuff happens in our group, BTW we have a meeting coming up on the 16th Oct in Nuneaton. Here's the group for more info. https://www.facebook.com/groups/106998699383213

14/08/2021

We have only 2 days left to get the 100,000 signatures that we need. Please share this petition, it doesn't matter if you've already signed it, you sharing it may attract one more person to sign and every signature to us is precious. So please sign and share. https://petition.parliament.uk/petitions/575370

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

13/08/2021

https://petition.parliament.uk/petitions/575370 We only have 4 days left and are still only on 61,000. If you haven't signed and shared already please sign and share. Teens with their own email can sign so please urge other members of your family to sign also. Thank you ###x

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

21/07/2021

I'm so sad to hear this, my thoughts are with Suzanne's family and friends ######

SUZANNE DOBSON
Chief Executive of Tourettes Action 2009-2021

It is with great sadness that we announce that our chief executive, Suzanne, died this afternoon after a short illness.

Our thoughts and deep condolences are with her family and loved ones, who were the centre of her life.

Suzanne took over a small and barely-known charity in 2009. She led the project of building Tourettes Action into an organisation of real voice and impact, and one that has been a lifeline for many people with Tourette Syndrome and their families.

Running a relatively small charity, Suzanne found herself facing every kind of task from high-level direction-setting to determined and passionate advocacy of individual cases, where people with TS were battling unfairness or discrimination. She was also instrumental in fostering international networks of clinicians and scientists working on TS, as well as international patient groups.

Suzanne also contributed greatly to building links with charities supporting other conditions within the neurological and neuropsychiatric spectrum and served recently as a very effective Chair of the Neurological Alliance.

Suzanne was a wonderful, kind and caring friend and colleague to everyone who worked with her and for her. We at Tourettes Action and the wider charity world will miss her very much.

21/07/2021

Hi Everyone,

Just a quickish reminder about the meeting on Saturday, we'll be in the garden at Birmingam Friends of The Earth, 54 - 57 Allison St, Digbeth Birmingham, B5 5TH

Please bring along some munchies to share and some money for tea/coffee and £1 for the raffle to help pay for the space. Also please let me know if you're coming along.

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You may have noticed I've been doing lots of armchair activism helping Helen McInally out, she's been busy campaigning for those kids that aren't able to access the treatment they need. We also need your help. We need 100,000 signatures by the end of the month, currently we're on aprox 41,000, we just need a little bit of your time, you can do one of these actions, or all of them, the more you can do the better.

Get on Facebook, share the petition and awareness video in your page, tag a few friends. (use )
Get on Twitter, tweet your followers, tweet some celebs with the petition or awareness video. (use )
Get on TicTok, share the awareness video (use )
Show your neighbours the flyer with the QR code and get them to sign the petition.
Get your local shop/pub/post office to display the flyer with QR code.
Message your local newpaper, (they'll have a page on Facebook) send them the awareness video and ask them to share.
Take the QR code flyer to work, get your collegues to sign.
Give yourself a pat on the back and feel good in the knowledge that you could help.
Anyway here are the links to the stuff you need - The awareness video - https://www.facebook.com/emma.mcnally.79/videos/1420747584991222
The petition - https://petition.parliament.uk/petitions/575370
The QR code flyer - (attachment)

I hope to see you all Saturday,
Thank you all for you help,

Catherine

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

18/07/2021

https://www.liverpoolecho.co.uk/news/liverpool-news/funny-outbursts-bangs-exposed-schoolgirls-21066805?fbclid=IwAR2dDIurJ0F7ryFfv6s97R200WzlpaVepOfohaBs2rhzFHVs25i61nONK-8

11-year-old Addison's mum said she feels like she's 'lost her daughter and gained a completely different one'

11/07/2021

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

11/07/2021

30/06/2021

Hi, could you take a moment to help us out please? It's a scandal that many kids with Tourette's syndrome are unable to access the medical care they desperately need. There are very few regional centres that treat TS and many local CAMHS are unable to treat TS and parents told to take their child to A&E when tics become extreme. Some kids are unable to access school due to the severity of their tics and few are needing to use a wheelchair due to the severity of their tics. Please help us out by signing and sharing this petition started by a mum in the North West who's son is currently without treatment. https://petition.parliament.uk/petitions/575370?fbclid=IwAR0d8CW05IzR6WV0hvVbVqHX4RfDZNG9gqOsRSCutjJ49UjXC5BqxlyJt5M

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

28/06/2021

https://www.facebook.com/events/601053801298268?acontext=%7B%22event_action_history%22%3A[%7B%22extra_data%22%3A%22%22%2C%22mechanism%22%3A%22surface%22%2C%22surface%22%3A%22create_dialog%22%7D%2C%7B%22extra_data%22%3A%22%22%2C%22mechanism%22%3A%22surface%22%2C%22surface%22%3A%22permalink%22%7D%2C%7B%22extra_data%22%3A%22%22%2C%22mechanism%22%3A%22surface%22%2C%22surface%22%3A%22edit_dialog%22%7D]%2C%22ref_notif_type%22%3Anull%7D

26/06/2021

26/06/2021

https://petition.parliament.uk/petitions/575370?fbclid=IwAR0zQ7fgoD2ip3iR79nQdPAKDON_q0iFXt8tpzU2Pahk4MVLeUnC79wpKu8

Tourettes affects 1 in 100 children, yet the support provided is minimal and very patchy across the UK, some areas have NO support. Theres only a handful of specialist Tourettes centres in the whole of the UK - we need more of these to provide care for EVERYONE! More research leads to more help!

25/06/2021

One of our Mums will be running the London Marathon this summer! Please enter her fundraising raffle for Tourettes Action. https://www.genessis-models-store.co.uk/product-page/tourettes-action-raffle-charity-prize-give-away-1?fbclid=IwAR3AxIuGF9vRlukvCPUrP_CS8msPEF0o5X1fdZ-OFFSOqq7FeMSP0CXiG8Y

To help raise money for TOURETTES ACTION we are doing this fantastic raffle for just £1 A TICKET There is no minimum amount of tickets you can buy so weather it be 1 or 100, every penny counts!!! The contents are WORTH OVER £200 and it includes: On August 1st my wife will be running the London hal...

25/06/2021

Hi, welcome to our shiny new page, full of Tourette's syndrome awareness to share, fundraising and other important issues we'd like to share.

25/06/2021