
06/09/2025
✨Looking for any help or advice!✨
As some of you know, not long after getting married my husband was diagnosed with FND 3 years ago.
It started with losing use of legs for episodes through the day, then went on to have non epileptic seizures daily as well as pain and other symptoms.
3 years on we’ve he still has these symptoms but we’ve adapted a little better and Adam was in a bit of a better place as he had started studying and managing his symptoms.
But FND likes to make you think things are improving then bites you in the arse.
On Wednesday, Adam woke up and couldn’t open his eyes. This lasted all day until the evening and was clearly a new symptom of his FND. After spending all day in A&E, he was sent home with no help.
He’s contacted his specialist who isn’t concerned and says it’s just a symptom of FND, and he’ll see him at his next appointment in March.
No help from anyone
Since then he’s had episodes from 5 minutes to 4 hours of not being able to open his eyes
So, what do we do now?!
If anyone has any advice, information or contacts that would help us in supporting us in this then please let me know. Feel free to share.
Thank you 🧡