RJAH Oswestry Muscle Team

07/09/2025

On September 7, we raise global awareness for Duchenne and Becker Muscular Dystrophy, two rare muscle wasting conditions. Join us! ?

01/09/2025

Wills, trusts, and securing the future of your loved one with a learning disability can be a scary subject.

But if you want to learn more about it, members of our Wills & Trusts team and the Mencap Trust Company will be on our online community next week. They'll be answering your questions and signposting to support around writing wills and discretionary and disabled persons’ trusts.

The team will be joining us from Monday 1 September, but you can add your questions and join the conversation online now: https://brnw.ch/21wVgv7 👈

26/08/2025

06/06/2025

The Summer edition of the Duchenne News is out soon! The newsletter is packed with articles, stories and information about Duchenne. Would you like to receive this?

If you have a family member with Duchenne muscular dystrophy, or you are a care professional with an interest in the condition, and you would like to receive our FREE newsletter regularly, please sign up at www.dfsg.org.uk.

Membership of the Duchenne Family Support Group is free and without obligation.

28/02/2025

We're supporting Rare Diseases Day 2025!

This year’s Rare Disease Day video highlights the inspiring journeys of four families from across the globe, united by their experiences of living with rare ...

26/02/2025

https://email-duchenneuk.org/cr/AQipnBIQscV2GMaovTSHI7_E-XRITmWO4-y56ndiqsS2XeOA_AcMRRqb9pOINw

It's almost one month until the start of New Horizons, our conference that's taking place in London from Friday 28 – Saturday 29 March 2025.

18/02/2025

This year’s Rare Disease Day video highlights the inspiring journeys of four families from across the globe, united by their experiences of living with rare ...

17/02/2025

Only 1 month to go till Naidex 2024!!

Get ready for a fun packed 2 days at the NEC, showcasing amazing exhibitors, panel talks from some incredible/influential people, interactive activities and so much more!

Join us at the NEC on the 20th-21st of March!

Don't miss out get your FREE tickets today. 👇
https://hubs.la/Q02lMl9p0



Image ID - White box in centre which reads 1 month to go, second text box says have you got your tickets? Text box has red Naidex logo and exclusive headline sponsor HSBC's logo and the event dates 20-21 March 2024.

17/02/2025

Today is Random Acts of Kindness Day. It is celebrated annually on February 17th to encourage people to perform acts of kindness. What are you going to do to celebrate?

26/01/2025

The 3rd to the 9th of February is Children's Mental Health Week.

Place2Be's official Children's Mental Health Week exists to empower, equip and give a voice to all children and young people in the UK.

30/12/2024

Dear Patients, Carers and Professional Users,

We would like to share information about an upcoming Myotonic Dystrophy UK (MDUK) webinar. The session will take place on Tuesday, January 14th, 2025, from 10:00 AM to 12:00 PM and leading experts will discuss the latest research on Myotonic Dystrophy as well as guidance on living well with the condition.

If you would like to attend, please sign up on the MDUK website, using the link provided

https://www.musculardystrophyuk.org/support/events/myotonic-dystrophy-virtual-information-seminar/?fbclid=IwZXh0bgNhZW0CMTEAAR38rGS3_KtTjkg-vqCecI4QA-fDuo6jk9sOIE8nrvtvu-MZ8Z1BPijr_LM_aem_WY9smg3V23rgYyPLg886-g

Kind regards,

Lucy

Lucy Hickson

Registry Data Co-Ordinator

UK Myotonic Dystrophy, UK FSHD and MTM-CNM International Patient Registries



John Walton Muscular Dystrophy Research Centre

Translational and Clinical Research Institute

Faculty of Medical Sciences

Newcastle University

International Centre for Life

Newcastle upon Tyne, NE1 4EP



Email: lucy.hickson@newcastle.ac.uk

John Walton Muscular Dystrophy Research Centre: https://jwmdrc.org

Whoarewe? Launched in November 2014, the Centre brings together and consolidates Newcastle's distinguished, international and world-leading record in research and care for neuromuscular diseases.Our team, based at the Institute of Translational and Clinical Research, Newcastle University, and its as...