Children's Surgery Outcome Reporting Programme

22/10/2021

Please help us! Long-term experiences after children’s surgery

Children’s Surgery Outcome Reporting (CSOR) research project aims to build a database to collect information on children’s surgery outcomes, including long-term outcomes. These will be reported by parents, guardians, or carers of children who have had a surgery.
https://www.thiscovery.org/project/childrens-surgery-outcome-reporting/
We are looking for parents, guardians, or carers of children who have been diagnosed before the age of 16 with one of the following conditions (regardless of whether the child has had an operation):

o Necrotising enterocolitis (NEC)
o Hirschsprung’s disease
o Oesophageal atresia
o Abdominal wall defects (gastroschisis, exomphalos)
o Congenital diaphragmatic hernia (CDH)
o Posterior urethral valves (PUV)

We need your help to design the parent-reporting component of the database by participating in a focus group and an optional short follow-up survey.

You must be over 18 years old to participate.
Participants will be offered £20 shopping vouchers.
Visit https://www.thiscovery.org/.../childrens-surgery-outcome.../ for more information or email us at csor@thisinstitute.cam.ac.uk

18/10/2021

Are you a parent of a child who has had an early life surgery?
Would you like to participate in a 60-90-minute-long focus group?
Read on!
https://www.thiscovery.org/.../childrens-surgery-outcome.../

06/10/2021

Please help us! Long-term experiences after children’s surgery

Take part in a focus group and follow-up survey to help design the parent-reporting component of our database.

Children’s Surgery Outcome Reporting (CSOR) research project aims to build a database to collect information on children’s surgery outcomes, including long-term outcomes. These will be reported by parents, guardians, or carers of children who have had a surgery.

You must be over 18 years old to participate.

Participants will be offered £20 shopping vouchers.

Visit https://www.thiscovery.org/.../childrens-surgery-outcome.../ for more information or email us at csor@thisinstitute.cam.ac.uk.

Inviting parents, carers and guardians of children diagnosed with a condition requiring early life surgery to share views on how best to collect data on children’s surgery outcomes

06/10/2021

Please help us! Long-term experiences after children’s surgery

We are looking for parents, guardians, or carers of children who have been diagnosed before the age of 16 with one of the following conditions (regardless of whether the child has had an operation):

o Necrotising enterocolitis (NEC)
o Hirschsprung’s disease
o Oesophageal atresia
o Abdominal wall defects (gastroschisis, exomphalos)
o Congenital diaphragmatic hernia (CDH
o Posterior urethral valves (PUV).

We need your help to design the parent-reporting component of the database by participating in a focus group and an optional short follow-up survey.

You must be over 18 years old to participate.

Participants will be offered £20 shopping vouchers.

Children’s Surgery Outcome Reporting (CSOR) research project aims to build a database to collect information on children’s surgery outcomes, including long-term outcomes. These will be reported by parents, guardians, or carers of children who have had a surgery.

Visit https://www.thiscovery.org/project/childrens-surgery-outcome-reporting/ for more information or email us at csor@thisinstitute.cam.ac.uk.

18/08/2021

Why is the CSOR programme important?

What is CSOR doing?

Find out the answers to these questions and lots more on our website: https://www.npeu.ox.ac.uk/csor/about

18/08/2021

The CSOR programme is made up of 6 workstreams. Read more about them and how you can be involved on our website!
https://www.npeu.ox.ac.uk/csor/workstreams

13/08/2021

Would you like to help improve the health and wellbeing of children undergoing surgery?
We are recruiting parents from all kinds of backgrounds and with all kinds of experiences of childhood surgery to help us.
To take part in a short online survey to help us understand what is important when deciding if a child has been treated successfully, please visit https://csordce.npeu.ox.ac.uk/index.php/525191?lang=en
Or to find out more about our work, please visit our website, www.npeu.ox.ac.uk/csor

The National Perinatal Epidemiology Unit (NPEU) is a multidisciplinary research unit based at the University of Oxford. Our work involves running randomised controlled trials, national surveillance programmes and surveys, confidential enquiries, aetiological studies and a disease register. The resul...

13/08/2021

Want to help improve the health and wellbeing of children undergoing surgery?
We want to know what is important to you in deciding whether a child has been successfully treated or not. Find out more by watching our short video

To take part in the study, please go to our registration page https://bit.ly/3Bt4upOTo find out more about our work, please go to our webpage www.npeu.ox.ac....