Fibromyalgia Action UK - FMAUK

Fibromyalgia Action UK - FMAUK The official page of the registered charity Fibromyalgia Action UK. Raising awareness of Fibromyalgia.

✈️🚗 Fibro Travel Hacks Wanted! 🌍🧳Travelling with fibromyalgia can be challenging long journeys, disrupted routines, and ...
04/08/2025

✈️🚗 Fibro Travel Hacks Wanted! 🌍🧳

Travelling with fibromyalgia can be challenging long journeys, disrupted routines, and unfamiliar surroundings can all take their toll.

Do you have any go-to travel tips or hacks that help you manage your fibro on the move?
Whether it’s packing certain items, planning breaks, or clever comfort tricks we’d love to hear what works for you! 💜

Drop your fibro-friendly travel tips in the comments below and help others travel with a bit more ease 💬👇

💜 A Friendship Day Thank You – To Our Fibromyalgia Supporters 💜Today, on International Friendship Day, we want to say a ...
30/07/2025

💜 A Friendship Day Thank You – To Our Fibromyalgia Supporters 💜

Today, on International Friendship Day, we want to say a big THANK YOU.

Friendship Comes in Many Forms. Support looks different for everyone, and all of it matters.

To all the friends, family members, carers, and furry companions who support someone living with fibromyalgia, your kindness, patience, and love mean more than words can say. 💐

Whether it’s a kind word, a gentle hug, a thoughtful text, or a pet curled up by your side, your friendship helps us through the day.

🫶 To show our appreciation, we’d love to celebrate YOU!

📸 Share a photo of your amazing pet or tag a human friend who’s been there for you on the tough days
💬 Let them know how much their support means

Your stories help raise awareness and remind others of the power of friendship.

Help Shape Research on Fibromyalgia and RelationshipsResearcher, Deniz Altinoluk, is inviting participants to take part ...
29/07/2025

Help Shape Research on Fibromyalgia and Relationships
Researcher, Deniz Altinoluk, is inviting participants to take part in a study exploring how relationships—with partners and healthcare professionals—may influence the experience of fibromyalgia.
The study is currently seeking:

✔️ Couples where at least one person has been diagnosed with fibromyalgia (both partners need to take part)

✔️ Healthcare professionals with experience supporting fibromyalgia patients
Your insights could help improve understanding, support, and care for people living with fibromyalgia. The survey is fully anonymous, online, and can be completed in your own time.

📍 UK-based participants
🕓 Takes around 15–25 minutes
Click the link or scan the QR code to take part.
https://roehamptonpsych.az1.qualtrics.com/jfe/form/SV_6Szensv2z1YM5n0

🏃‍♂️ This September, Shaun from PureGym Paisley is lacing up his trainers for the 2025 Great North Run—not just as a fit...
24/07/2025

🏃‍♂️ This September, Shaun from PureGym Paisley is lacing up his trainers for the 2025 Great North Run—not just as a fitness pro, but as a passionate supporter of those living with fibromyalgia. After a chance chat with our team, he jumped at the opportunity to run 13.1 miles to raise awareness and funds for this invisible condition that affects 1 in 20 people in the UK.

Shaun joins a team of everyday heroes running for FMA UK, helping shine a light on fibromyalgia and the challenges it brings. Every step, every share, and every donation helps break the silence, challenge stigma, and support those living with chronic pain. We’re so grateful for his commitment—proof that one “yes” can make a big difference 💜

🙏 You can help Shaun reach his goal by donating, sharing his story, or learning more about this often-misunderstood condition at www.fmauk.org

👉 Donate here: https://ajbellgreatnorthrun2025.enthuse.com/pf/shaun-mcfarlane

📖 Read Shaun's full story here: https://www.fmauk.org/latest-news-mainmenu-2/articles-1/108-fundraising-1/fundraising-articles/1563-shaun-mcfarlane

21/07/2025

Introduction Thank you for participating in this Europe-wide survey conducted by Pain Alliance Europe (PAE). The aim is to understand how chronic pain affects mental health and the role of self-management strategies in improving your well-being. The survey will take approximately 15–20 minutes to ...

🌍🎉 Happy World Emoji Day! 🎉🌍Emojis have become a powerful way to express how we’re feeling especially when words are har...
17/07/2025

🌍🎉 Happy World Emoji Day! 🎉🌍
Emojis have become a powerful way to express how we’re feeling especially when words are hard to find. Whether you’re feeling fabulous 💃, flaring 😣, or just getting through the day one step at a time 🐢 there’s an emoji for that!
So tell us… what emoji represents you today?
Are you:
💪 powering through
🛌 resting and recharging
😴 totally wiped out
🌈 feeling hopeful
🧊 trying to stay cool in the heat
🦋 just taking it slow
Drop your emoji (or a few!) in the comments and let’s see how everyone’s doing today. 💬👇
We may all be on different paths, but we’re in this together 💜

Based in....Stanford-Le-Hope, Steeped in history, Stanford-Le-Hope is famous for its 800-year-old church, St Margarets  ...
16/07/2025

Based in....Stanford-Le-Hope, Steeped in history, Stanford-Le-Hope is famous for its 800-year-old church, St Margarets , a place rich with heritage and the heart of the town's development.
By day....I am the administrator for my local food bank run in partnership with local churches.


Apart from on Sundays, where you'll find me teaching at my Churches Sunday school and where you will have found me for the past 40 years!
Ive always had a big obsession with Piers and I'm a life member of the National Piers Society, so if you don't find me rooted in my local community you'll find me at the waters edge visiting Piers.
If my head is not steeped in history you'll hear my love for singing, I belong to two local choirs and sing a huge variety of songs from classical to modern musicals like the Greatest Showman.

Thanks for reading a little about me – What's beyond your Fibro Label?!

Our next newsletter is landing soon!If you haven’t subscribed yet, don’t miss out sign up with your email to stay update...
15/07/2025

Our next newsletter is landing soon!

If you haven’t subscribed yet, don’t miss out sign up with your email to stay updated on the latest news, research, and support.

👉 Subscribe here: https://newsletter.fmauk.org/signup

🎨🕊️ Honoring Frida Kahlo 🕊️🎨As many of you know, we’re currently running our Art as Therapy sessions — celebrating the c...
13/07/2025

🎨🕊️ Honoring Frida Kahlo 🕊️🎨
As many of you know, we’re currently running our Art as Therapy sessions — celebrating the comfort and healing that creative, gentle hobbies can bring to those living with Fibromyalgia.

In that spirit, today we remember the extraordinary Frida Kahlo on what would have been her birthday.
A woman who turned pain into power and suffering into unforgettable art.

Frida endured a lifetime of physical hardship — from childhood polio to a devastating bus accident at 18, and chronic illnesses, including symptoms resembling Fibromyalgia.
Yet she poured her experience into more than 140 pieces of raw, revolutionary, and deeply personal art.

🔥 Despite her illness, Frida:

Reimagined identity, beauty, and womanhood on her own terms

Spoke openly about pain, disability, and mental health when few dared

Became an enduring icon of feminism, culture, and resilience

Showed the world that strength and vulnerability can live side by side

“I am not sick. I am broken. But I am happy as long as I can paint.” – Frida Kahlo

Frida didn’t just survive — she created through it.
She didn’t hide her suffering — she gave it a voice.
And in doing so, she helped others find theirs.

Has your pain given you a voice, or a passion?

Let us know — share your story, your art, or your reflection.
Together, we continue Frida’s legacy of healing through expression. 💜

“The feeling of isolation left me feeling low, as though I was the only one experiencing these sensations and that no on...
10/07/2025

“The feeling of isolation left me feeling low, as though I was the only one experiencing these sensations and that no one truly understood what I was going through.”

Malini Craig shares her powerful journey of living with fibromyalgia, the challenges of being misunderstood, and how she found support through FMA UK. Now, she's taking on the Great North Run 2025 to raise awareness and funds for our cause.

🙏 You can help Malini reach her goal by donating, sharing her story, or learning more about this often-misunderstood condition at www.fmauk.org

👉 Donate here: https://www.justgiving.com/page/malini-craig-1

📖 Read Malini's full story here: https://www.fmauk.org/latest-news-mainmenu-2/articles-1/108-fundraising-1/fundraising-articles/1561-malini-craig

🎉 Surprise! It’s Prime Week! 🎉Didn’t know either? No worries — let’s make the most of it. 💜Whether you're managing fibro...
09/07/2025

🎉 Surprise! It’s Prime Week! 🎉
Didn’t know either? No worries — let’s make the most of it. 💜
Whether you're managing fibromyalgia yourself or supporting someone who is, this is a great time to grab helpful tools that can actually make a difference.
🛒 From pain relief products to comfort aids, here are a few Prime Day deals we’re loving:
✅ Heating pads
✅ Weighted blankets
✅ Joint support gloves
✅ TENS units
✅ CBD creams & magnesium sprays
✅ Ergonomic cushions & sleep aids
💬 We’ll be sharing our top picks all day — follow along or drop your favorite finds below!

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
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