Fibromyalgia Action UK - FMAUK

20/11/2025

On this day in 1959, the UN General Assembly adopted the Declaration of the Rights of the Child — and thirty years later, in 1989, the Convention on the Rights of the Child (UNCRC) was adopted.
The UNCRC remains the most universally accepted human rights treaty in history, protecting every child’s right to be heard, supported, and respected. 💜

At Fibromyalgia Action UK, we believe young people with Fibromyalgia deserve that same voice. We’re committed to changing the way we include young people, by listening to your experiences, learning from your stories, and ensuring your voices guide our work and advocacy.

💬 We want to hear from you!
If you’re a young person living with Fibromyalgia, or supporting someone who is, tell us:

What can we do for you?

What kinds of resources or support would help you most?

What activities or opportunities would you like to be part of?

Your ideas will help shape how we support and empower young people, we can make a difference. 💜

19/11/2025

This International Men’s Day 2025, FMA UK is exploring the male experience of Fibromyalgia.
Our new video explores the realities men face: the stigma, the diagnostic stereotypes, the silent struggles, and the symptoms that don’t fit the “expected” mold.
It’s time to challenge misconceptions, raise awareness, and make sure every voice is heard.
Watch, share, and have your say in this conversation.

18/11/2025

.💜 A Huge Thank You to David and Rhiannon! 💜

We are so proud of David and Rhiannon, who recently climbed Snowdon to raise funds and awareness for Fibromyalgia Action UK.

David has lived with Fibromyalgia for over 10 years, and never thought reaching a mountain summit would be possible. But with determination (and a very supportive friend!), they made it all the way to the top, even though it meant some well-earned recovery time afterwards!

Along the way, they shared information about Fibromyalgia and helped start conversations that really matter. So far, the climb has raised £226 to support our work.

To David and Rhiannon: thank you for your strength, courage and commitment to helping others understand life with Fibromyalgia. You inspire us and our community every day. 💜

If you'd like to donate or share their story, you can support here:
👇
https://www.gofundme.com/f/snowdon-climb-challenge-for-fibromyalgia

Together, we raise awareness. Together, we climb. 🏔️💜

👉See www.fmauk.org/fundraising to see how you can get involved.

17/11/2025

If you are interested in this research study, please email Chloe Gallagher at x4n99@students.keele.ac.uk

17/11/2025

It’s Self Care Week 2025!
This year’s theme, “Mind & Body”, reminds us that looking after our mental and physical well being go hand in hand.

At FMA UK, we’re encouraging everyone living with Fibromyalgia, and those supporting them,to take time this week for self-care that nourishes both mind and body.

💜 Rest when you need to
🌿 Move in ways that feel good
☀️ Connect with others
🕯️ Make space for calm

Every small act of self-care makes a difference.

16/11/2025

📍From Newton- Mearns, known as one of the most affluent areas in Scotland, and has been named a "happiest place to live". Key landmarks include the 15th-century Mearns Castle, the Newton Mearns War Memorial, and the Rouken Glen Park,
👶Being the youngest member of our team, having just graduated from his digital marketing apprenticeship. Despite being new to the field, he has already catapulted FMA UK into the spotlight across both Facebook and Instagram.
🥊Away from the office, Jason is a regular gym-goer with a real passion for boxing — training hard to release the frustrations that the rest of the team inevitably cause!
🚖He’s also fascinated by how things work and often spends his spare time tinkering with cars and mechanics.
🎮As a keen gamer, Jason brings his creativity, videography, and digital know-how into everything he does at FMA UK.
Although he’s still the newest member of the team, we’ve all taken him under our wing and couldn’t be prouder of his achievements. We’re excited to see him continue to grow and flourish.

15/11/2025

🛍️ Looking for gifts, helpful resources, or fibromyalgia-related merch?
Visit the FMA UK Online Shop! 💜

From awareness items to informative leaflets and practical products, every purchase supports our work and helps us continue providing information, advocacy, and support for the fibromyalgia community.

✨ Shop here: https://www.fmauk.org/shop

Every order makes a difference — thank you for supporting FMA UK! 💜

14/11/2025

🖼️ Open Monthly Session – Online Art as Therapy

Hosted by Claire (Office Manager) and Amanda (dedicated volunteer), this programme offers a relaxing space to enjoy art and mindfulness together.

🎨 What to Expect
Join Amanda for an hour of:

Creative art activities

Gentle mindfulness exercises

Friendly conversation

Sharing experiences

📅 Dates & Time
24th November
🕙 10:00 – 11:00am

💻 Location
Online via Zoom (camera optional).

✅ How to Join
Please register in advance to confirm your attendance.
🔗 Register here-https://buytickets.at/fmauk/1865544

13/11/2025

🌟 A huge thank you to our friends at Prison Service Charity Fund for their generous donation of £160!

Your kind donation will help us continue our mission to support people affected by fibromyalgia and raise more awareness of the condition. Every pound makes a difference — and this gift will go directly towards creating real impact in our community. 💙

It’s always inspiring to see charities supporting one another. Together, we can achieve so much more than we ever could alone. 🤝✨

11/11/2025

📢 Accessible Travel Framework Consultation 2025/2026
There’s still time to share your views on Scotland’s Accessible Travel Framework — the consultation closes Wednesday, 19 November at 5pm.
Your feedback helps shape how accessible travel is designed and delivered across Scotland.
🚌♿ This survey is open to all disabled people, so please share it with anyone who may wish to take part.
👉 Complete the survey here: https://disabilityequality.scot/news/accessible-travel-framework-surveys/
☎️ If you’d prefer to take part by phone, you can call 0141 370 0968 or email transport@disabilityequality.scot to arrange a time.
Let’s make travel more accessible for everyone. 💜

🚆 Our Accessible Travel surveys close on Monday!

We are working with Transport Scotland Scotland to gather views from disabled people on how to make travel more accessible for everyone.

Take part this weekend and share your experiences by completing our three short surveys:

📢 Public Transport: https://www.smartsurvey.co.uk/s/ATFPublicTransport/

📢 People’s Journeys: https://www.smartsurvey.co.uk/s/ATFPeoplesJourneys/

📢 Hate Crime on Public Transport: https://www.smartsurvey.co.uk/s/ATFHateCrime/

Easy Read versions of all three surveys are also available.

The Surveys close Monday 3 November at 12pm.

11/11/2025

𝐓𝐡𝐞𝐲 𝐬𝐡𝐚𝐥𝐥 𝐠𝐫𝐨𝐰 𝐧𝐨𝐭 𝐨𝐥𝐝, 𝐚𝐬 𝐰𝐞 𝐭𝐡𝐚𝐭 𝐚𝐫𝐞 𝐥𝐞𝐟𝐭 𝐠𝐫𝐨𝐰 𝐨𝐥𝐝:
𝐀𝐠𝐞 𝐬𝐡𝐚𝐥𝐥 𝐧𝐨𝐭 𝐰𝐞𝐚𝐫𝐲 𝐭𝐡𝐞𝐦, 𝐧𝐨𝐫 𝐭𝐡𝐞 𝐲𝐞𝐚𝐫𝐬 𝐜𝐨𝐧𝐝𝐞𝐦𝐧.
𝐀𝐭 𝐭𝐡𝐞 𝐠𝐨𝐢𝐧𝐠 𝐝𝐨𝐰𝐧 𝐨𝐟 𝐭𝐡𝐞 𝐬𝐮𝐧 𝐚𝐧𝐝 𝐢𝐧 𝐭𝐡𝐞 𝐦𝐨𝐫𝐧𝐢𝐧𝐠
𝐖𝐞 𝐰𝐢𝐥𝐥 𝐫𝐞𝐦𝐞𝐦𝐛𝐞𝐫 𝐭𝐡𝐞𝐦.

" 𝐓𝐡𝐞 𝐅𝐚𝐥𝐥𝐞𝐧"- 𝐁𝐲 𝐋𝐚𝐮𝐫𝐞𝐧𝐜𝐞 𝐁𝐢𝐧𝐲𝐨𝐧

07/11/2025

Janet Horton Retires After 35 Years of Service

After 35 years of dedicated service, Janet Horton is stepping down from her role at Citizens Advice. Janet has been a trustee of the charity almost since its formation in the 1990s, and throughout that time she has played a vital role in delivering our benefits service.

In the photo, Janet is pictured with Diane, Head Manager for West Lancashire Citizens Advice.

Over the years, Janet has supported thousands of people, particularly those living with Fibromyalgia, and her compassion and expertise have made a lasting difference to so many lives.

👣Although stepping back from her day-to-day role, Janet continues to contribute as a trusted trustee and through her ongoing work on our benefits helpline, offering guidance and support to those who need it most.

💜The charity is truly fortunate to have such a dedicated and caring person at its heart. Janet’s contribution has been invaluable, and she leaves behind a legacy of kindness, commitment, and community spirit that will continue to inspire us all.