30/09/2025
Morning 🌞 I was diagnosed with CFS in 2020, and while I believe it is linked to poor sleep/jaw issues, I still have CFS, regardless of how, and I'd like to share some things that have helped me.
1) protein intake - shakes if you struggle with eating, like I do. Or meal replacement shakes
2) electrolytes, d ribose and creatine (first thing)
3) Collagen (there's lots of different ones available that are decent)
4) Gut health - probiotics and if you have intolerances, a liquid called "Ion", formerly Ion Biome (the latter helps when googling).
5) red light therapy - the panels are far more cost effective than in- clinic sessions, and price varies by size.
6) I take a lot of different supplements, but my top picks would be b12+methylfolate, NAC, vitamin C
for cost Vs benefit. NMN is good but pricey.
7) coq10 and EPA/DHA...I can't take this for long as it can be over stimulating, so I tend to cycle for a few days then stop (everyone is different so it depends on diet, as to how much you need/how long you take it). I was taking coq10 for a long time with no impact on my sleep, but now, I can't tolerate it for long.
8) Bed time picks, magnesium and glycine. Spermidine is good, but also pricey.
9) If you struggle to absorb nutrients, consider transdermal sprays (I have this as vit c, multi vits and magnesium).
Obviously everyone is different and has different needs. For me, it was a lot of trial and error. I stopped taking everything for a while, and reintroduced things one at a time to decipher effectiveness.
Nervous system regulation and stress response are also relevant. When we get depleted, it takes less and less to trigger our nervous system, because we immediately think "this is going to exhaust me", which stresses you more and depletes reserves quickly, like a vicious cycle.
And we need certain vitamins and minerals to SUPPORT our nervous system. The one thing that the CFS clinic advised, which I did find helpful, was effective rest and relaxation (ERR). Basically laying down, relaxing each part of your body (you can use YouTube or insight timer to find a body scan meditation) and do this a few times a day for 10 mins.
We are told there is no cure for CFS, along with many other long term chronic illnesses. My view is, we need to change how we tackle them. It can take years to get sick, so it stands to reason it can take time to get healthy again.
*Not medical advice, just a personal account
