15/05/2025
Do you or a loved one have lived experience of inherited conditions or genetic testing?
Be part of a community that’s helping to improve these experiences in future.
Genomics Partnership Wales are seeking interest from individuals to join their Patient and Public Sounding Board in 2025!
This is an exciting opportunity for a range of individuals to join the conversation on the future of genomics in Wales. They are committed to working with patients and members of the public, to explain things in a clear and simple way, empowering the citizens of Wales to understand more about what genomics can mean for them.
Expressions of interest are welcome from individuals who:
• Have personal (or care for someone who has) experience of genetic testing / genomics / precision medicine / clinical trials / inherited cancer / rare diseases / developmental delay disorders
• Have good communication skills
• Can represent under-served from groups
• Do not have professional experience of working in the field of genomics
• Are available to attend (virtual) induction training on 2 July and the first meeting
on 3 July 2025
Applications are open until 31st May, if you feel that you or anyone you know may be interested then please see their website or role description for further information or register your interest here.
https://healthandcareresearchwales.org/inherited-or-rare-disease-or-experience-genetic-testing
https://genomicspartnership.wales/join-our-sounding-board/
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A oes gennych chi neu anwylyd brofiad bywyd o gyflyrau etifeddol neu brofion genetig?
Byddwch yn rhan o gymuned sy'n helpu i wella'r profiadau hyn yn y dyfodol.
Mae ceisiadau i ymuno â’n Bwrdd Seinio Cleifion a’r Cyhoedd bellach ar agor ar gyfer 2025!
Mae hwn yn gyfle cyffrous i ystod o unigolion ymuno â'r sgwrs ar ddyfodol genomeg yng Nghymru. Maent wedi ymrwymo i weithio gyda phasyddion a chleientiaid y cyhoedd, i esbonio pethau mewn ffordd glir a syml, gan roi pŵer i dinasyddion Cymru ddeall mwy am
beth gall genomigau ei olygu iddynt.
Pwy sy’n cael cymryd rhan?
Pobl:
• sydd â phrofiad personol (neu’n gofalu am rywun sydd â phrofiad) o brofion genetig / genomeg / meddygaeth fanwl / treialon clinigol / canser etifeddol / clefydau prin / anhwylderau oedi mewn datblygiad
• sy’n meddu ar sgiliau cyfathrebu da
• sy’n gallu cynrychioli grwpiau sydd heb eu gwasanaethu’n ddigonol
• nad oes ganddyn nhw brofiad proffesiynol o weithio ym maes genomeg
• sydd ar gael i fynychu hyfforddiant cynefino (rhithwir) ddydd Mawrth 2 Gorffennaf a’r cyfarfod cyntaf ddydd Mercher 3 Gorffennaf
Mae ceisiadau ar agor tan 31 Mai, os yw hyn yn apelio atoch chi neu unrhyw un rydych chi'n ei adnabod, yna edrychwch ar eu gwefan neu ddisgrifiad rôl am ragor o wybodaeth neu cofrestrwch eich diddordeb yma.
https://ymchwiliechydagofalcymru.org/clefyd-etifeddol-neu-brin-neu-brofiad-o-brofion-genetig
https://genomicspartnership.wales/cy/ymunwch-ar-bwrdd-seinio/
Ymunwch â’r Bwrdd Seinio LAWRLWYTHWCH Y DISGRIFIAD SWYDD YMGEISIWCH NAWR Sut I Gymryd Rhan Rydyn ni’n ymrwymedig i weithio gyda chleifion ac aelodau o’r cyhoedd i egluro pethau mewn ffo…