26/02/2026
Deafblind UK and Deafblind Scotland have launched a National Usher Syndrome Helpline this month!
This is incredible news, where people affected by Usher syndrome, either because they themselves are diagnosed or because friends/family have it, can get support from people who understand the condition, and people who know how to navigate the healthcare and social care systems!
The service is available in both English and BSL, with both a phone and text number available. It is free to call, and open Monday - Friday 10am - 1pm (excluding bank holidays).
If you are struggling with Usher syndrome yourself, or in your family, we at BSL Plus would suggest you give this number a call!
(BSL Plus Ltd. are not connected to Deafblind UK, Deafblind Scotland, or this Helpline, but we support them in their support of Deafblind people around the UK!
The Usher Syndrome Helpline
Call: 01733 973 500
Text: 07800 008 088
Contact us for all your BSL, Deaf & Deafblind Communication Support Requirements! 👇🏼
📧 admin@bslplus.org
🔗 https://allmylinks.com/bslplus
