Royal Berkshire Maternity and Neonatal Voices

Royal Berkshire Maternity and Neonatal Voices We are here to listen to your voice and work together to drive positive change. Royal Berkshire Maternity Voices Partnership are here to listen to your voice.

We work together with the Royal Berkshire Hospital (RBH) to drive positive change and improve local maternity services. We listen, respond and act to ensure that you are supported in a safe, equitable and kind way throughout your maternity journey.

Day 4 of Black Maternal Mental Health Week 2025The focus of today's post is listening, active listening.What does listen...
25/09/2025

Day 4 of Black Maternal Mental Health Week 2025

The focus of today's post is listening, active listening.

What does listening look like for Black mothers?
It looks like giving our stories respectful attention and space.
It looks like believing our experiences as truth.
It looks like turning our words into real change.

And what is it not?
It’s not interrupting or dismissing our concerns.
It’s not demanding “proof” before taking us seriously.
It’s not listening politely but then doing nothing.

Black Maternal Mental Health Week is about making Black mothers visible by showing what true listening REALLY requires.

Royal Berkshire NHS Maternity Royal Berkshire NHS Foundation Trust Utulivu Women's Group Reading Community Learning Centre Healthwatch Reading Healthwatch Wokingham Borough Healthwatch West Berkshire

25/09/2025

This is a long read, for this I make no apologies.

Social media and the internet can be a wonderful thing... however sometimes what we see and hear is inaccurate and harmful.
I am referring specifically to the messaging around the suggested link between paracetamol and Autism Spectrum Condition.

Firstly, I would like to acknowledge our wonderful and deeply valued Autistic community who are the beautiful humans in our families, our friends and work colleagues and our neighbours in our communities.
While I am not qualified to speak for our autistic community, I so not believe that they will welcome or benefit in any way for the current narrative. This fearmongering devalues and dehumanises.

Women, birthing people, and families have enough to contend with, not one of them needs or benefits from wildly inaccurate messaging that can easily and understandably increase anxiety at a time when our health and wellbeing really really matters.
While this always matters, we know that at a time of significant change there are commonly additional stressors.

An announcement by the National Autistic Society(on their page states that they have launched a campaign to fight back about inaccurate and damaging claims about autism.

Their open letter has been signed by over 10,000 people in just 24 hours. If you value our autistic community and their voice, please consider finding out more here: https://act.autism.org.uk/page/178427/petition/1?fbclid=IwY2xjawNCBC5leHRuA2FlbQIxMABicmlkETFkNWxFQ1U1YnNJUmJ2MnU2AR4YOgVHaJ4JrKK7p3fosydJuXpfr27gVKPJHhEGJn5U2_kWzPJnUym9uiQhXQ_aem_h0eJvcdpQ5qY2pR_e5A5wA

I quote the National Autistic Society 'Truth. It matters to you – and it matters to us.'

The voice of the autistic community needs to be front and centre in this conversation.

Further to this the Department of Health and Social Care has released the following statement regarding use of paracetamol during pregnancy.

Please see the link below:
https://healthmedia.blog.gov.uk/2025/09/23/paracetamol-and-pregnancy-what-you-need-to-know/

In summary it reads:

Paracetamol and pregnancy - what you need to know

THE FACTS

There is no evidence that taking paracetamol during pregnancy causes autism in children.

A major study conducted in Sweden in 2024, involving 2.4 million children found no evidence that paracetamol causes autism in pregnancy.

Untreated pain and fever can pose real risks to the unborn baby, so it is crucial to manage these symptoms with the recommended treatment.

Paracetamol continues to be the recommended pain relief option for pregnant women when used as directed.

Patients should not swap to alternatives such as ibuprofen, as non-steroidal anti-inflammatory drugs (NSAIDs) are generally not recommended during pregnancy

Q&A

Is paracetamol safe to use during pregnancy?

Yes. Current evidence supports the safe use of paracetamol during pregnancy when used as directed. This advice has been consistent for many years.

The MHRA (Medicines and Healthcare Products Regulatory Authority) regularly reviews the safety of paracetamol during pregnancy to ensure that the benefits to the paint and unborn baby outweigh any risks.

Paracetamol is recommended by NHS guidance as the first-choice painkiller for pregnant women, to be used at the lowest dose and for the shortest duration. If pain does not resolve then patients are advised to seek advice from their healthcare professional.

Should pregnant women stop taking paracetamol?

No. Pregnant women should continue to follow current medical guidance. Paracetamol remains a recommended painkiller during pregnancy when used as directed. Women with concerns should speak to their healthcare professional rather than stopping medication without medical advice.

Will the MHRA review its guidance following the US announcement?

No.

The MHRA carefully monitors new evidence on the safety of medicines and takes action when evidence shows a potential risk to patients.

In the case of paracetamol use in pregnancy, recent studies, including the one published in August, have not established a direct relationship between paracetamol use during pregnancy and an increased risk of autism.

Does the MHRA only act when a causal link is proven?

No. The MHRA carefully monitors new evidence on the safety of medicines and takes regulatory action when of evidence shows a potential risk to patients, which exceeds the potential benefits.

It continuously monitors emerging data and will introduce safety measures when warranted to protect public health.

How does the MHRA monitor medicine safety in pregnancy?

The MHRA has comprehensive systems including the Yellow Card Scheme for reporting suspected side effects, analysis of healthcare databases, and review of international evidence. MHRA works closely with healthcare professionals and regularly update guidance when new evidence emerges.

Two asks, if you have made it this far!
Please share this as widely as you can to get the correct messaging out there.
And...
IF YOU ARE PREGNANT AND HAVE ANY WORRIES OR FEARS ABOUT TAKING PARACETAMOL (OR ANY OTHER MEDICATION) PLEASE PLEASE PLEASE SPEAK TO YOUR MIDWIFE

Royal Berkshire NHS Maternity Royal Berkshire NHS Foundation Trust Healthwatch Reading Healthwatch Wokingham Borough Healthwatch West Berkshire

THE FACTS Q&A Is paracetamol safe to use during pregnancy?  Yes. Current evidence supports the safe use of paracetamol during pregnancy when used as directed.  This advice has been consistent for many years.  The MHRA regularly reviews the safety of

Day 3 of The Motherhood Group Black Maternal Health Week 2025We are mixing up the order of the daily posts a little, the...
24/09/2025

Day 3 of The Motherhood Group Black Maternal Health Week 2025

We are mixing up the order of the daily posts a little, the launch of the report yesterday was too important an event to miss.

The report can be downloaded for free here: https://themotherhoodgroup.org/black-maternal-mental.../

So today we are sharing yesterdays post by The Motherhood Group.

Utulivu Women's Group Reading Community Learning Centre Refugee Support Group Care4Calais

24/09/2025

📣 Use of paracetamol during pregnancy remains safe and there is no evidence it causes autism in children.

Paracetamol remains the NHS-recommended painkiller during pregnancy, when used as directed – which is at the lowest effective dose, for the shortest time needed.

Our advice is based on rigorous assessment of the best available evidence, and we continuously monitor new data to ensure our recommendations remain safe and up to date.

If you ever suspect a side effect from any medicine, please report it to us through the Yellow Card scheme – this helps us keep medicines safe for everyone.

Read the full announcement ➡️ https://bit.ly/4nl5AeS

Day 2 of Black Maternal Mental Health Week 2025Today The Motherhood Group took black women and allies to parliament to r...
23/09/2025

Day 2 of Black Maternal Mental Health Week 2025

Today The Motherhood Group took black women and allies to parliament to release their report, the largest report of its kind in the UK. Their report provides 'evidence and insights from over 18,000 black mothers across England'.

The report can be downloaded for free here: https://themotherhoodgroup.org/black-maternal-mental-health-project/

I quote The Motherhood Group, 'this is not just research - it's a call to action for urgent change'.

Utulivu Women's Group Reading Community Learning Centre Refugee Support Group Care4Calais

Important update from The Breastfeeding Network (UK) regarding the very recent media attention given to suggestions that...
23/09/2025

Important update from The Breastfeeding Network (UK) regarding the very recent media attention given to suggestions that there is a link between the use of paracetamol in pregnant people and autism spectrum condition in children.

Accurate information is critical for pregnant people to make informed choices.

Breastfeeding Network - Reading Royal Berkshire NHS Foundation Trust BIBS (Babies in Buscot Support) Breastfeeding Network - Wokingham area

In light of recent news, we would like to highlight that the Medicines & Healthcare products Regulatory Agency (MHRA) has confirmed that taking paracetamol during pregnancy remains safe and there is no evidence that it causes autism in children.

www.gov.uk/government/news/mhra-confirms-taking-paracetamol-during-pregnancy-remains-safe-and-there-is-no-evidence-it-causes-autism-in-children

You can also take the usual recommended doses of paracetamol if you are breastfeeding. Find more information in our Pain Relief (Analgesics) factsheet:
www.breastfeedingnetwork.org.uk/factsheet/analgesics/

If you need information on taking any medication while breastfeeding, please contact our The Breastfeeding Network Drugs in Breastmilk Service team on Facebook or via email: druginformation@breastfeedingnetwork.org.uk

If you are unsure about taking any medication when you are pregnant or breastfeeding, you can also talk to your GP, health visitor, or midwife.

[ID: MHRA confirms taking paracetamol during pregnancy remains safe and there is no evidence it causes autism in children. You can also take paracetamol at the normal adult dose if you are breastfeeding. Source: Pain Relief (Analgesics) and Breastfeeding Factsheet.]

Its Black Maternal Mental Health Week UK 2025The Motherhood Group is leading this national campaign from 22nd – 28th Sep...
22/09/2025

Its Black Maternal Mental Health Week UK 2025
The Motherhood Group is leading this national campaign from 22nd – 28th September.

The theme this year is 'make black women visible.'

Each day The Motherhood Group will focus on a vital theme including listening to Black mothers, digital mental health, inclusion, communication, community-led solutions and reflection.

Why are we sharing this, and why is this important you may ask.

While all women could potentially experience poor care and outcomes, national statistics consistently evidence that black women are more likely to experience negative outcomes during their perinatal journey. Every statistic represents a mother, a baby and a family.

Visibility brings into focus the disparities in women's health for black women.

It is our hope by sharing the work of The Motherhood Group and increasing visibility, we can make a difference and contribute to the changes that are needed to create equitable care for all.

As noted by Atinuke Awe and Clotilde Abe, Co-founders of Five x More, in their recent report "Our sentiment is clear. Fix it for Black women, fix it for all women". Link to the FiveXMore Black Maternity Experience Report 2025 https://fivexmore.org/black-maternity-experiences-report-2025

Utulivu Women's Group Reading Community Learning Centre Refugee Support Group Care4Calais

Could you bake for BIBS (Babies in Buscot Support) We’ll be sharing and supporting World Prematurity Day
16/09/2025

Could you bake for BIBS (Babies in Buscot Support) We’ll be sharing and supporting World Prematurity Day

World Prematurity Day, on 17th November, is a day marked globally to raise awareness for babies born too early and the impact this has on families.

Throughout November, we invite you to join us in raising awareness for the day and vital funds to help future Buscot babies at the Royal Berkshire Hospital 💜

Can you host a 🧁event at home or your workplace? Perhaps ask colleagues to pop on a splash of purple 💜 to ?

You can set up your fundraising page or make a donation to our WPD appeal via this link https://www.justgiving.com/campaign/bibsworldprematurityday2025

Pop us an email info@bibs.org.uk to share your event plans & photos!

06/09/2025

Have your experienced care at the RBH or with the homebirth team? We'd love to hear your story! Give us your feedback - what was good, what could have been better?

All feedback can be shared here - https://www.surveymonkey.co.uk/r/currentfeedback

If you want to give feedback on your care whilst pregnant, or have something that needs more urgent attention just drop us an email: feedback@royalberkshiremnvp.org.

Your voice matters. We Listen. We Act. We Respond.

03/09/2025
Have a look at what the Homebirth Team can offer 💜💜💜
02/09/2025

Have a look at what the Homebirth Team can offer 💜💜💜

Sickle Cell Awareness Month 2025Did You Know that Sickle Cell:Is inherited from both parents; sickle cell trait is inher...
02/09/2025

Sickle Cell Awareness Month 2025

Did You Know that Sickle Cell:

Is inherited from both parents; sickle cell trait is inherited from one parent.
Can affect anyone, although it predominantly affects people from African and Caribbean backgrounds.
That approximately 1 in 79 babies born in the UK carry sickle cell trait.
That approximately 17,500 people in the UK have sickle cell disorder.
Almost 300 babies are born in the UK with sickle cell each year.
A simple blood test will tell whether you have sickle cell trait or the disorder.

The World Health Organisation states that “with quality health care, women with inherited blood disorders like sickle cell disease can have safe and healthy pregnancies and births"*

And most IMPORTANT "It’s essential that women with sickle cell disease can discuss their care options EARLY in pregnancy—or ideally before—with knowledgeable providers"*

It is recommended that you should make your maternity booking appointment FOR NO LATER THAN 8 WEEKS pregnant to ensure that maternity services can provide quality care as early as possible to give you and your baby the best care and support.

To make your FREE booking appointment at the Royal Berks, you book directly with the hospital. GP'S NO LONGER REFER.

You can book online here: https://www.royalberkshire.nhs.uk/services-and-departments/maternity
Or call 0118 322 8964

For more information about Sickle Cell see here: https://www.nhsbt.nhs.uk/how-you-can-help/get-involved/download-digital-materials/sickle-cell-awareness-2025/

https://www.sicklecellsociety.org/

* https://www.who.int/news/item/19-06-2025-who-issues-first-global-guideline-to-improve-pregnancy-care-for-women-with-sickle-cell-disease

Royal Berkshire NHS Maternity Royal Berkshire NHS Foundation Trust Utulivu Women's Group Reading Community Learning Centre Refugee Support Group

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