
28/02/2025
28 February is and I have written a blog about my experience here with Menieres Disease (temporary link also in bio / find via the blogs on the main website): https://connectionstrainingtherapy.co.uk/post/living-with-a-rare-disease
Whilst it may seem there are many of us, it is unusual to find anyone who has walked the same journey, which is often fraught with difficulties in diagnosis, support and more:
300 million people worldwide living with a rare disease. Rare diseases currently affect 5% of the worldwide population. Collectively the number of people living with a rare disease is equivalent to the population of the world's 3rd largest country.
There are 6000+ identified rare diseases. 70% of genetic rare diseases start in childhood. Equity means fair access to diagnosis, treatment, care and opportunities.
rarediseaseday.org