Strongbones Children's Charitable Trust

Strongbones Children's Charitable Trust Helping children with scoliosis , spina bifida and all other serious bone conditions alongside complex needs . Charity Reg 1086173.

Strongbones Children’s Charitable Trust is a national registered charity set up to help alleviate the pain, suffering and financial burden of families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.The charity has now been registered for 20 years, which gives us years of experience in our field. This experience

has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

15/07/2025

🎉🎉🎉 The Hamleys Party invitations have now all been sent out via email from Myles! Please check your emails and ensure you reply to save your place! 🎉🎉🎉

30/06/2025

🎉🎉🎉Hamleys Party applications are now closed🎉🎉🎉

🎉🎉🎉 Hamleys Party Announcement!!!!! 🎉🎉🎉Strongbones Children’s Charitable Trust will be holding a party at the World Famo...
04/06/2025

🎉🎉🎉 Hamleys Party Announcement!!!!! 🎉🎉🎉

Strongbones Children’s Charitable Trust will be holding a party at the World Famous Hamleys Toy Store on London’s Regent Street. Hamleys is a multi-storey toy store, spread over seven floors, a child’s dream, made extra special with a red-carpet entrance on arrival!

Families are invited to apply for a place to our Hamleys Party on Sunday 3rd August 2025. The party will begin at 10am and finish at 12pm, when the store opens to the public.

Our party is Disney themed, please come dressed as your favourite Disney character.

The party is being held at – Hamleys Toys, 188-196 Regent Street, London, W1B 5BT. 🇬🇧

Unfortunately, there are no changing facilities at Hamleys, the closest Changing Places can be found at a brand-new IKEA store on Oxford Street, just a 6 minute walk away, however, this does not open until 12 noon.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters 🫟, clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂.

If you and your family would like a ticket 🎟️ to the hottest party 🎊 this year, please send an application email to mylessketchley@strongbones.org.uk , you must include ALL the following information, any missing information will result in your application being void.

1. Child / young person’s full name and date of birth
2. Their full address
3. A list of people attending the party, with their ages and relationship to the VIP
4. A letter confirming the VIP’s bone condition

We encourage you to apply asap.

⭐️Party Announcement!!!!!⭐️Hamleys Party Sunday 3rd August 2025 10am-12pmHamleys Toys, 188-196 Regent Street, London, W1...
29/05/2025



⭐️Party Announcement!!!!!⭐️
Hamleys Party Sunday 3rd August 2025 10am-12pm
Hamleys Toys, 188-196 Regent Street, London, W1B 5BT
Party applications are open to all young people with a bone condition.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters , clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂and we have the store to ourselves.

Please email mylessketchley@strongbones.org.uk with the amount of people you would like to attend and your home address, get your applications in ASAP!

Please try to keep adults to a minimum

⭐️Party Announcement!!!!!⭐️Hamleys Party Sunday 3rd August 2025 10am-12pmHamleys Toys, 188-196 Regent Street, London, W1...
29/05/2025

⭐️Party Announcement!!!!!⭐️
Hamleys Party Sunday 3rd August 2025 10am-12pm
Hamleys Toys, 188-196 Regent Street, London, W1B 5BT
Party applications are open to all young people with a bone condition.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters , clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂and we have the store to ourselves.

Please email mylessketchley@strongbones.org.uk with the amount of people you would like to attend and your home address, get your applications in ASAP!

Please try to keep adults to a minimum

17/04/2025

Exploring Our Emotions Pack – Applications now open!

Team Strongbones are so happy to bring you our NEXT brand-new pack, based on exploring emotions and personal development.
Each pack includes –

- A large pop-up blackout sensory den, large enough to accommodate a wheelchair with plenty of space.
- Two sets of fairy lights, one with a remote to change the colour pattern, the other on a tell to easily put away.
- A rainbow projector Bright Light Events
- A light-up Bluetooth speaker with a suction cup base to stick to tray or a strap to hang it up.
- Light-up juggling balls
- An infinity star mirror
- A set of six emotions cushions, these have a face on one side and the corresponding word on the reverse. The cushions are perfect for stacking as a stool or could be used as single cushions.
- A set of three Colour Monster books, explaining how to associate feelings with a colour.

If you would like to apply for this fantastic Exploring our Emotions pack, please email Mylessketchley@strongbones.org.uk
With ALL of the following information –

1. Young person’s full name
2. Their date of birth
3. Their home address
4. A contact number that we can pass onto the supplier for delivery
5. A short explanation on how this pack will benefit your young person
6. A recent diagnosis letter stating your young person’s bone condition

ANY MISSING INFORMATION WILL RESULT IN YOUR APPLICATION BEING VOID.

All successful applicants will need to supply Strongbones with a photograph of their young person with their Emotions pack for our funders. Please post the photograph to Facebook tagging Rachael April –
https://www.facebook.com/profile.php?id=100000286655598

Alternatively, if you do not wish for your young person’s photograph to be on social media, please email it directly to mylessketchley@strongbones.org.uk and we will only share your photograph with the funder. We also post the photographs to our website, please let us know if you do not want your child’s photograph on here.

Applications close on Tuesday 22nd April at 11:59pm, any applications received after this time will be void. We will only be contacting the successful applicants, if you do not hear from us, you have been unsuccessful.

Please DO NOT contact Myles privately regarding this pack. All correspondence will be through email only.

Strongbones Children’s Charitable Trust supports children and young people from the age of 3 to 21 with a bone condition alongside a complex health need.

☀️Funded family break Applications for 2025 are now OPEN!!!☀️We are taking applications to stay in one of our beautiful ...
27/01/2025

☀️Funded family break Applications for 2025 are now OPEN!!!☀️

We are taking applications to stay in one of our beautiful accessible VIP caravans, at Shorefield Country Park, Milford on Sea, Downton, Lymington, SO41 0LH. Each break will run from Monday to Sunday and will include a stay in one of our caravans, digital passes to access the on-site facilities, including the Robot Restaurant (Beachcomber), arcades, evening entertainment and swimming pools, which have an indoor Changing Places, an indoor and outdoor pool hoists and swimming aids.

We will be providing breaks from Easter 2025; check in will be from 2pm, check out will be 2pm. Our times are very strict as we need to get the caravans cleaned and turned around for the next family.
Both caravans can only accommodate one wheelchair user due to space and fire evacuation procedures; it sleeps a maximum of 5 people including your VIP in the profiling bed.

If you would like to apply to have a break in one of our fabulous caravans, simply complete the PDF application form, found on our website, the link at the bottom of the post will take you directly to the ‘Apply for a Grant’ page, and return it to strongbonese7@gmail.com, you must also attach a copy of a recent diagnosis letter stating your young person’s bone condition along with the form, any missing information will result in your application being void.
We will only be contacting the successful families, so if you do not hear from us, you have been unsuccessful.

Please note, both caravans are no pets or smoking.

For the successful families, we will email you with more information including available dates, site map, Park Rules and Terms and Conditions.

Please DO NOT contact Myles privately via phone or messenger, if you have any issues with the application form, please contact us via email, and these will be answered Monday – Thursday 9.30am – 3pm. All correspondence will only be through email, any questions via messenger will not be answered.

As always, we do require photographs for our funders, and we love seeing your holidays pics, remember to share them with us!

Obviously, school holidays are extremely limited, once these have been filled, there will only be term-time available. If needed, we are happy to provide you with a supporting letter to explain the reason of absence to your child’s school. If a shorter break would be more suitable, we are happy to offer flexible check in and check out days for your respite break, within the Monday to Sunday period. We will not be offering flexible days during school holidays.

There are quite a few accessible attractions around the caravan -
- Beaulieu Car Museum
- Paultons Theme Park (Home of Peppa Pig) - this has a Changing Places
- Monkey World, Ape Rescue Centre
- Longdown Activity Farm - This has a Changing Places
- Adventure Wonderland, Bournemouth
- Swanage Railway
- Travel across the Studland Ferry
- Hengistbury Head Visitor Centre has an accessible land train
- Oceanarium Bournemouth, Aquarium
- Mudeford Quay
- The Tank Museum, Bovington

https://www.strongbones.org.uk/grant/

Don’t forget to get your applications in by Sunday 12th January!
02/01/2025

Don’t forget to get your applications in by Sunday 12th January!

24/12/2024

🎄We would like to wish all of our families, friends and funders a very Merry Christmas! 🎄
Love from Team Strongbones

Applications are being taken for the second round! Can we help?! We understand that our young people, under the age of 2...
19/12/2024

Applications are being taken for the second round!

Can we help?!

We understand that our young people, under the age of 21, are facing much longer waiting times for vital equipment that is usually provided through other services. We may be able to help!

If there is something you need, ie bed, shower trolley / chair, comfortable/ activity chair, mobile hoist, standing frame, walking aids, postural support, therapy bench, sensory therapy equipment etc, please send an email to mylessketchley@strongbones.org.uk with all of the following information -

- Young person’s full name and date of birth
- Their home address
- Piece of equipment needed
- A quote for the exact piece of equipment
- A recent diagnosis letter stating their bone condition

If your application is successful, we will also require a supporting letter from your OT. We understand that this can sometimes take a while to get, therefore we suggest contacting your OT as soon as possible.

The second round of applications will go to panel on the week beginning Monday 13th January 2025, please ensure you have your application to us by Sunday 12th January 2025 to be discussed at panel.

We will only contact the successful applicants in the New Year.
Please ensure your application is with us ASAP!

We hope you all have a happy, healthy and merry Christmas!
Team Strongbones

Can we help?! We understand that our young people, under the age of 21, are facing much longer waiting times for vital e...
10/12/2024

Can we help?!

We understand that our young people, under the age of 21, are facing much longer waiting times for vital equipment that is usually provided through other services. We may be able to help!

If there is something you need, ie bed, shower trolley / chair, comfortable/ activity chair, mobile hoist, standing frame, walking aids, postural support, therapy bench, sensory therapy equipment etc, please send an email to mylessketchley@strongbones.org.uk with all of the following information -

- Young person’s full name and date of birth
- Their home address
- Piece of equipment needed
- A quote for the exact piece of equipment
- A recent diagnosis letter stating their bone condition

If your application is successful, we will also require a supporting letter from your OT. We understand that this can sometimes take a while to get, therefore we suggest contacting your OT as soon as possible.

The first round of applications will go to panel on the week beginning Monday 16th December, please ensure you have your application to us by Sunday 15th December to be discussed at panel. We will then open a second round of applications, which will go to panel on Monday 13th January 2025.

We will only contact the successful applicants in the New Year.
Please ensure your application is with us ASAP!

We hope you all have a happy, healthy and merry Christmas!
Team Strongbones

Has anyone ever tried a vibroacoustic chair or bed? What are your thoughts and experiences?
04/12/2024

Has anyone ever tried a vibroacoustic chair or bed? What are your thoughts and experiences?

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Romford

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Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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Charity Reg 1086173. Strongbones Children’s Charitable Trust is a national registered charity set up to help families who have children with brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone. The charity has now been registered for 16 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level. Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

WHAT DO WE DO


  • We provide a online support network to over 1,000 families

  • We provide manual wheelchairs