Helping children with scoliosis , spina bifida and all other serious bone conditions alongside complex needs . Charity Reg 1086173.
Strongbones Children’s Charitable Trust is a national registered charity set up to help alleviate the pain, suffering and financial burden of families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.The charity has now been registered for 20 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.
27/11/2025
💥APPLICATIONS CLOSE THIS SUNDAY!!!💥
Be quick if you would like to apply for a Christmas Eve baking hamper or Christmas balloon bouquet for your young person!
To apply for either pack, send an email to mylessketchley@strongbones.org.uk with all of the following information (any missing information will result in your application being automatically void)
Subject - balloons OR baking
1. Young person’s full name
2. Young person’s date of birth
3. Their home address
4. A contact number for delivery
5. A recent diagnosis letter stating young person’s bone condition
By applying for either pack, if successful, you are agreeing to provide us with photographs of your young person with / using their pack to share on our social media pages and website.
Applications close on Sunday 30th November 2025.
Any applications made after this date will automatically be void.
We are aiming to deliver both packs on Wednesday 10th December, please ensure someone is home to accept delivery on this date before applying.
We will only be contacting the successful applicants.
Good luck!
24/11/2025
Don’t forget to get your applications in soon, closing date is Sunday 30th November!
20/11/2025
🎈Strongbones Christmas Balloons or Christmas Eve Baking Hamper 🥣
🎅🏼⛄️🥧🛷⭐️☕️🥛🍫🎄
If you would like to apply for a Christmas Balloon Bouquet OR a Christmas Eve Baking Hamper for your young person simply send an email to mylessketchley@strongbones.org.uk with all of the following information (any missing information will result in your application being automatically void)
Subject - balloons OR baking
1. Young person’s full name
2. Young person’s date of birth
3. Their home address
4. A contact number for delivery
5. A recent diagnosis letter stating young person’s bone condition
By applying for either pack, if successful, you are agreeing to provide us with photographs of your young person with / using their pack to share on our social media pages and website.
Applications close on Sunday 30th November 2025.
Any applications made after this date will automatically be void.
We are aiming to deliver both packs on Wednesday 10th December, please ensure someone is home to accept delivery on this date before applying.
We will only be contacting the successful applicants.
Good luck!
19/11/2025
Head over to our Instagram page to see something exciting…
👀 What could it be??? 👀
Exciting Christmas surprise will be revealed on our Instagram page on Monday!
Head over and give us a follow to make sure you don’t miss out!
Check out one of your young people using their Delta All-terrain buggy while exploring the beach. Strongbones provide young people with essential equipment to enrich their lives, making it easier to access all terrains.
30/10/2025
Inclusive family respite breaks offer our families the opportunity to get away from home, participate in amazing activities while their young person’s needs are met. It is also the perfect chance to meet other families on similar paths to build on a supportive network.
24/09/2025
The third and final part of the Hamleys Party photographs are now live on our Instagram page… pop across and have a look, let’s see who can spot their family and friends ❤️ remember to give us a follow while you’re there 👍
0 Followers, 20 Following, 1 Posts - See Instagram photos and videos from Strongbones Children’s Charitable Trust ()
18/09/2025
🎊 Hamleys Party 2025! 🎊
In August, our Strongbones families descended to Regent Street, London, for a big, Disney themed party at Hamleys Toy Store to celebrate all of our amazing young people! What a fantastic day it was, it was great to see so many faces, old and new.
We will be sharing lots of photographs on our new Instagram page, if you’d like to head across there, the links below! https://www.instagram.com/strongboneschildrenscharity?igsh=MTRiemUwZnkxcmhxYw%3D%3D&utm_source=qr
04/09/2025
Hey guys, we’ve just created a new Instagram account, if you could pop across there and give us a follow ❤️
The ODD ball is a musical instrument in the shape of a ball that allows our young people to create their own music in a playful, interactive manner. It connects to a device via Bluetooth through a free app, so the user can experience different instruments while using its motion sensing technology to trigger the sounds through bouncing, tapping, throwing and
shaking.
If you would like to apply for an ODD ball, simply email Mylessketchley@strongbones.org.uk , with -
- Your child’s full name
- Their date of birth
- Their home address
- A contact number.
Applications will close on Wednesday 20th August 2025 at midnight.
Successful applicants will be contacted via email informing them when to expect delivery, if you do not hear from us, you have been unsuccessful.
Address
B9 Romford Seedbed Centre, Davidson Way Romford RM70AZ
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Contact The Practice
Send a message to Strongbones Children's Charitable Trust:
Charity Reg 1086173. Strongbones Children’s Charitable Trust is a national registered charity set up to help families who have children with brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone. The charity has now been registered for 16 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level. Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family.
A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children.
We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.
WHAT DO WE DO
We provide a online support network to over 1,000 families
We provide manual wheelchairs
We provide specialist buggies
We provide rainbow sensory packs
We provide adapted trikes and hand cycles.
We provide supportive seating (If refused by State funding at panel)
We provide advice to families in accessing welfare benefits. This includes disability benefits and disabled facilities grants that they may be entitled to receive.
We provide disability aids and portable hoists to enable children to have a enhanced quality of life.
We organise family days to enable parents and children to network.
We organise and fully fund a yearly superhero party in the summer to host 400-500 people.
Our Youth Ambassador Myles selects a child weekly to receive a Myles Sketchley Inspirational Award in the form of a medal, along with a certificate and a gift.
We provide balloons to children in hospital.
We organise accessible activity weekends
We support siblings through our Super Sibling project which involves exciting competitions and inclusion for the whole family.
