Strongbones Children's Charitable Trust

Strongbones Children's Charitable Trust Helping children with scoliosis , spina bifida and all other serious bone conditions alongside complex needs . Charity Reg 1086173.

Strongbones Children’s Charitable Trust is a national registered charity set up to help alleviate the pain, suffering and financial burden of families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.The charity has now been registered for 20 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

24/09/2025

The third and final part of the Hamleys Party photographs are now live on our Instagram page… pop across and have a look, let’s see who can spot their family and friends ❤️ remember to give us a follow while you’re there 👍

0 Followers, 20 Following, 1 Posts - See Instagram photos and videos from Strongbones Children’s Charitable Trust ()

18/09/2025

🎊 Hamleys Party 2025! 🎊
In August, our Strongbones families descended to Regent Street, London, for a big, Disney themed party at Hamleys Toy Store to celebrate all of our amazing young people! What a fantastic day it was, it was great to see so many faces, old and new.
We will be sharing lots of photographs on our new Instagram page, if you’d like to head across there, the links below!
https://www.instagram.com/strongboneschildrenscharity?igsh=MTRiemUwZnkxcmhxYw%3D%3D&utm_source=qr

18/08/2025

🎶🔵 ODD ball applications are now open!!! 🔴🎵

The ODD ball is a musical instrument in the shape of a ball that allows our young people to create their own music in a playful, interactive manner. It connects to a device via Bluetooth through a free app, so the user can experience different instruments while using its motion sensing technology to trigger the sounds through bouncing, tapping, throwing and
shaking.
If you would like to apply for an ODD ball, simply email
Mylessketchley@strongbones.org.uk , with -
- Your child’s full name
- Their date of birth
- Their home address
- A contact number.

Applications will close on Wednesday 20th August 2025 at midnight.
Successful applicants will be contacted via email informing them when to expect delivery, if you do not hear from us, you have been unsuccessful.

🎉🎉🎉 Who’s excited for our Hamleys party???!!! 🎉🎉🎉🙌🏼🙌🏼🙌🏼WE ARE 🙌🏼🙌🏼🙌🏼🥳Only 6 sleeps to go!!!🥳
28/07/2025

🎉🎉🎉 Who’s excited for our Hamleys party???!!! 🎉🎉🎉
🙌🏼🙌🏼🙌🏼WE ARE 🙌🏼🙌🏼🙌🏼
🥳Only 6 sleeps to go!!!🥳

15/07/2025

🎉🎉🎉 The Hamleys Party invitations have now all been sent out via email from Myles! Please check your emails and ensure you reply to save your place! 🎉🎉🎉

30/06/2025

🎉🎉🎉Hamleys Party applications are now closed🎉🎉🎉

🎉🎉🎉 Hamleys Party Announcement!!!!! 🎉🎉🎉Strongbones Children’s Charitable Trust will be holding a party at the World Famo...
04/06/2025

🎉🎉🎉 Hamleys Party Announcement!!!!! 🎉🎉🎉

Strongbones Children’s Charitable Trust will be holding a party at the World Famous Hamleys Toy Store on London’s Regent Street. Hamleys is a multi-storey toy store, spread over seven floors, a child’s dream, made extra special with a red-carpet entrance on arrival!

Families are invited to apply for a place to our Hamleys Party on Sunday 3rd August 2025. The party will begin at 10am and finish at 12pm, when the store opens to the public.

Our party is Disney themed, please come dressed as your favourite Disney character.

The party is being held at – Hamleys Toys, 188-196 Regent Street, London, W1B 5BT. 🇬🇧

Unfortunately, there are no changing facilities at Hamleys, the closest Changing Places can be found at a brand-new IKEA store on Oxford Street, just a 6 minute walk away, however, this does not open until 12 noon.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters 🫟, clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂.

If you and your family would like a ticket 🎟️ to the hottest party 🎊 this year, please send an application email to mylessketchley@strongbones.org.uk , you must include ALL the following information, any missing information will result in your application being void.

1. Child / young person’s full name and date of birth
2. Their full address
3. A list of people attending the party, with their ages and relationship to the VIP
4. A letter confirming the VIP’s bone condition

We encourage you to apply asap.

⭐️Party Announcement!!!!!⭐️Hamleys Party Sunday 3rd August 2025 10am-12pmHamleys Toys, 188-196 Regent Street, London, W1...
29/05/2025



⭐️Party Announcement!!!!!⭐️
Hamleys Party Sunday 3rd August 2025 10am-12pm
Hamleys Toys, 188-196 Regent Street, London, W1B 5BT
Party applications are open to all young people with a bone condition.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters , clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂and we have the store to ourselves.

Please email mylessketchley@strongbones.org.uk with the amount of people you would like to attend and your home address, get your applications in ASAP!

Please try to keep adults to a minimum

⭐️Party Announcement!!!!!⭐️Hamleys Party Sunday 3rd August 2025 10am-12pmHamleys Toys, 188-196 Regent Street, London, W1...
29/05/2025

⭐️Party Announcement!!!!!⭐️
Hamleys Party Sunday 3rd August 2025 10am-12pm
Hamleys Toys, 188-196 Regent Street, London, W1B 5BT
Party applications are open to all young people with a bone condition.

Our party will have plenty of entertainment, including Owen’s Troopers, balloon modellers 🎈, face painters , clowns 🤡, magicians 🪄, unicyclist 🛞, jugglers 🤹, stilt walkers and toy demonstrators 🚂and we have the store to ourselves.

Please email mylessketchley@strongbones.org.uk with the amount of people you would like to attend and your home address, get your applications in ASAP!

Please try to keep adults to a minimum

17/04/2025

Exploring Our Emotions Pack – Applications now open!

Team Strongbones are so happy to bring you our NEXT brand-new pack, based on exploring emotions and personal development.
Each pack includes –

- A large pop-up blackout sensory den, large enough to accommodate a wheelchair with plenty of space.
- Two sets of fairy lights, one with a remote to change the colour pattern, the other on a tell to easily put away.
- A rainbow projector Bright Light Events
- A light-up Bluetooth speaker with a suction cup base to stick to tray or a strap to hang it up.
- Light-up juggling balls
- An infinity star mirror
- A set of six emotions cushions, these have a face on one side and the corresponding word on the reverse. The cushions are perfect for stacking as a stool or could be used as single cushions.
- A set of three Colour Monster books, explaining how to associate feelings with a colour.

If you would like to apply for this fantastic Exploring our Emotions pack, please email Mylessketchley@strongbones.org.uk
With ALL of the following information –

1. Young person’s full name
2. Their date of birth
3. Their home address
4. A contact number that we can pass onto the supplier for delivery
5. A short explanation on how this pack will benefit your young person
6. A recent diagnosis letter stating your young person’s bone condition

ANY MISSING INFORMATION WILL RESULT IN YOUR APPLICATION BEING VOID.

All successful applicants will need to supply Strongbones with a photograph of their young person with their Emotions pack for our funders. Please post the photograph to Facebook tagging Rachael April –
https://www.facebook.com/profile.php?id=100000286655598

Alternatively, if you do not wish for your young person’s photograph to be on social media, please email it directly to mylessketchley@strongbones.org.uk and we will only share your photograph with the funder. We also post the photographs to our website, please let us know if you do not want your child’s photograph on here.

Applications close on Tuesday 22nd April at 11:59pm, any applications received after this time will be void. We will only be contacting the successful applicants, if you do not hear from us, you have been unsuccessful.

Please DO NOT contact Myles privately regarding this pack. All correspondence will be through email only.

Strongbones Children’s Charitable Trust supports children and young people from the age of 3 to 21 with a bone condition alongside a complex health need.

Address

B9 Romford Seedbed Centre, Davidson Way
Romford
RM70AZ

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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Charity Reg 1086173. Strongbones Children’s Charitable Trust is a national registered charity set up to help families who have children with brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone. The charity has now been registered for 16 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level. Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

WHAT DO WE DO


  • We provide a online support network to over 1,000 families

  • We provide manual wheelchairs