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Psoriasis and Psoriatic Arthritis Alliance

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Psoriasis and Psoriatic Arthritis Alliance

A principal source of advice, support and information on psoriasis and psoriatic arthritis Offers free information and advice.

A registered UK charity for people with psoriasis and psoriatic arthritis.

28/01/2026

Interested in helping with research into better understanding and treatment of psoriatic arthritis?

What is it?
The IMID (Immune-Mediated Inflammatory Diseases) BioResource is a research tissue bank of 19,000 individuals with participating in health research. This includes patients with psoriasis and psoriatic arthritis (PsA). Currently, however, the patient population is not accurately reflected, with people from Black and South Asian communities being the most under-represented. Black and South Asian patients are more likely to have severe disease and different responses to treatment. Therefore, by increasing participation of people from Black and South Asian communities, they aim to address this gap and ensure the future research findings are relevant to all people living with IMIDs.

By taking part you are helping to shape the future for better IMID treatments.

They are recruiting research volunteers who match the following criteria:
• From Black or South Asian communities
• Have an IMID condition such as rheumatoid arthritis, psoriasis, psoriatic arthritis or lupus
• Live in England

What will you have to do?
• Read the Participant Information Sheet
• Once you are happy with the information, sign the consent form
• Provide a blood sample. Fill out a Health and Lifestyle questionnaire.
• This helps researchers better understand how genetics and lifestyle affect health
• Be open to receive invitations to take part in further research studies, although you are under no obligation to take part

Who funds it? The IMID BioResource is part of the NIHR BioResource, funded by the National Institute for Health and Care Research (NIHR)

Interested?
Contact: imid@manchester.ac.uk to see if there is a centre near you.

27/01/2026

🔬 Psoriasis and psoriatic arthritis patients: Exciting research opportunities await you! 💡 Check out PAPAA's live noticeboard for clinical trials, surveys, and studies shaping better treatments—from remote questionnaires 📱 to blood sample donations 🩸 and device testing 🧪.

Current highlights include ReproRegistry for advancing therapies 🚀, BSR-PsA for long-term treatment insights 📊, and University of Oxford's remote psoriasis monitoring (20 mins every 6 months) ⏰.

Join the fight—your voice could change lives! ❤️ Browse now:
https://www.papaa.org/research/opportunities/take-part-in-research/

21/01/2026

🌡️🧠💼 As many of you know, psoriasis affects more than skin such as: Joints, mental health, work, relationships & long-term risks.

What advice did you receive when first diagnosed?
What would you have liked to have known?
What advice would you give others?
How has psoriasis touched your life beyond the visible?

16/01/2026

January is a time when many people reset their health habits. For those living with psoriasis or psoriatic arthritis, cutting back on alcohol whether that’s Dry January or simply having more alcohol-free days can be a positive step. 💙
Heavier drinking is linked with more severe psoriasis, poorer treatment response, and increased risk of related health conditions such as heart disease and fatty liver. Even a short break from alcohol can support skin, joint and overall health, and many people find they continue drinking less afterwards.
Have you cut down this month, or tried more alcohol-free days? We’d love to hear what’s helped or what’s been challenging in the comments.

14/01/2026

Thank you, Laura-Rose https://www.facebook.com/laurarose.barker, and your troupe, for raising funds for PAPAA. Your support is greatly appreciated and will go towards our research support programme https://www.papaa.org/research/ .These funds help us provide small grants to researchers seeking meaningful answers to important questions about psoriatic disease.

12/01/2026

As the new year continues, it’s a good time to refocus on wellbeing 💚
Psoriasis is a long-term immune condition affecting around 2% of people in the UK. It’s not contagious, but it can affect daily life in many ways — often beyond the skin.
Understanding triggers like stress, illness, or weather changes can help with managing flares, and the right support makes a real difference.

• What’s one thing you wish more people understood about psoriasis?
• Have you noticed any triggers that affect your symptoms?
• What helps you feel more in control?

22/12/2025

Getting through the winter maze ❄️💙

How are you coping with winter triggers this year? 🌨️ The shortest day has passed, but we've still got months of chill ahead—what's the worst thing you face next? 😩

Tips for the cold? Warm baths, heavy moisturising, or layering up? 🛁💧 How are you navigating your care?

15/12/2025

How's your skin today? Is it flaring? Some people find relief by adjusting their skincare routine 🧴, taking time to rest 🧘‍♀️, or reaching out for support 🤝 from others who understand.

For many people, flares can be triggered by stress 😔, cold weather 🥶, or even when life just gets a bit too busy. Everyone’s experience is different — and so are the ways they cope. ❤️

What helps you manage during a flare?💙

Do you have go-to tips, comfort habits, or small wins that make things a little bit easier? 🌿💬

10/12/2025

📱 Guess how much time we're spending online in 2025? (Hint: It's more than ever... but not everyone benefits equally.) 😲

Ofcom’s latest Online Nation report reveals UK adults now average over 4 hours daily online—up 10 minutes from last year—with platforms like TikTok, YouTube, and WhatsApp leading usage. For those with long-term conditions like psoriasis or psoriatic arthritis, this digital shift highlights a growing health divide, as online health services expand while millions lack the skills or access. 💻🔒

- Have online tools simplified your health management, or created barriers? 🤔

- Do you avoid digital health services due to complexity or concerns? 🚫

- What single change would improve access for you (e.g., guides, phone options, training)? 💡

- Share your experiences👇❤️

08/12/2025

What’s your view — does colder weather make it harder to stay active? ❄️

Many people say winter brings more stiffness, tiredness, and the temptation to do less. It’s completely understandable — but gentle movement can really make a difference 💙.

A few simple steps can help:
✨ Keep moving with short, daily stretches or walks.
🕯️ Rest when needed, but try not to stop completely.
💤 Prioritise warmth, pace, and self‑kindness.

If you’re looking for motivation or ideas, PAPAA’s free iPhysio programme can help. It’s designed to make staying active easier, with guided routines you can do at home — no special equipment required. 💪

💻 Take a look and try it for yourself:
👉 https://www.papaa.org/shop/interactive-physiotherapy-and-exercise-course/

What helps you keep moving through winter? Let’s share ideas and support each other below 👇

01/12/2025

Psoriasis isn’t “just a skin thing” – and a major new global study shows it is affecting more people than ever. 🌍📈 Researchers found that psoriasis cases have risen over recent decades and are likely to keep increasing beyond 2025, especially among younger adults. That means more people living with a long‑term inflammatory condition that can affect skin, joints and mental health all at the same time.

What’s your view?

We’d really like to hear from people who know what psoriasis is like in real life, not just in the statistics. 💬

Do you feel that psoriasis is taken seriously enough by health professionals and the public?

Has getting a diagnosis and treatment become easier over time, or is it still a struggle?

What do you think needs to change most – awareness, access to treatments, mental health support, or something else?

25/11/2025

🚨 Scam Safe Week (22–28 Nov) is here — and so is a hidden threat: fake medicines.

As part of BBC’s Scam Safe Week, it’s a perfect time to raise awareness of how scammers are exploiting people’s health needs by selling counterfeit or unsafe medicines online.

📌 What to watch out for:
• A website claiming “no prescription needed” or offering big discounts on medicines is a red flag.
• Unexpected social-media adverts for “miracle cures” or overseas pharmacies.
• Lack of registration, contact details, or physical address for the seller.
• Payment by strange methods (crypto, cash transfer) — especially when delivery is vague or untracked.

💡 How you can stay safe:
• Only buy medicines from a legally-registered pharmacy in your country.
• If it seems “too good to be true”, it probably is.
• Ask yourself: does this site ask for a valid prescription? Do they show a UK pharmacy registration?
• Keep an eye on older or more vulnerable family members who might fall prey.

🔊 Share this message during Scam Safe Week — let’s stop scammers who sell fake medicines in their tracks. Your one share could protect someone’s health.

Address

Unit 3 Horseshoe Business Park
Saint Albans
AL23TA

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+441923672837

Website

http://www.papaa.org/

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