
02/02/2025
***World Aspergillosis Day: My Story & Raising Awareness***
Tomorrow 3rd February, is World Aspergillosis Day – a day that highlights a rare condition I was diagnosed with last April. It’s something I’m still learning to navigate and come to terms with.
Aspergillosis is the name of a group of rare conditions caused by the spores from the Aspergillus fungus, which we all breathe in daily. Most people’s bodies handle it without issue, but for the small percentage who are affected (around 1% of asthma sufferers), it’s a life-changing diagnosis.
The condition causes chronic inflammation and recurrent infections, which come with significant challenges – breathing problems, chronic fatigue, difficulty maintaining a healthy weight, and the emotional strain of living with a chronic illness.
In the UK we’re fortune to have the National Aspergillosis Centre in Manchester, a world-leading centre for diagnosing and managing aspergillosis and a place that I’m fighting to get a referral to. You can read more about the condition and the work NAC are doing at the link below and check out the symptoms in case you or a loved one are at risk. Early diagnosis and treatment is key to prevent further damage to the lungs and other complications.
https://aspergillosis.org/
I shared my initial diagnosis in a journal post which you can find here - https://www.woodlandyoga.co.uk/a-different-kind-of-wilderness/
It’s a deeply personal account of my journey with this disease and I debated about sharing it. I wrote it to make sense of what was happening and to share with those closest to me as I wanted them to understand the impact. I’m feeling braver to share it and talk more widely about my experiences as I know I won’t be the only one dealing with a life changing diagnosis or condition and it may offer some solace and support.
I wish I could say that life has got easier since diagnosis but honestly every day is a struggle. I keep trying to get back to ‘normal’, how my life was before diagnosis but it’s only recently that I’ve started to accept that my life will no longer be as I once thought it would or how I would like. I do however, feel incredibly fortune to have the support that I do and want to thank friends and family and our little yoga community who've stuck by me through all this. I'm truly blessed.
If you'd like to read more I've written a full journal post here - https://www.woodlandyoga.co.uk/world-aspergillosis-day/.
Thank you for reading 💚💚💚