23/09/2025
Organ Donation Week : EG's Story (consent granted)
The first time I heard that it was even possible to donate a kidney came from a link at the bottom of my local blood donation web page that I was randomly sent to by an email notification I didn’t even know I had signed up for. It was a fundraising event aimed at raising money for kidney disease research, and it came with many stories. Some about people on dialysis, some about people suffering from kidney failure and only a few about people who have received a kidney from a family member. I went down a rabbit hole and read all of them, and a quick Google search sent me to similar stories from around the country and the world.
There was one story, however, were someone had donated to someone they didn’t even know. This person was on dialysis for years and no one from his family was able to donate, leaving him waiting for a deceased donor on the waiting list for years, if he was one of the lucky ones. That was until someone he didn’t know made a choice to donate their kidney, and luckily became the best match for him. I never knew this was a possibility, to donate to a stranger, and for a long time I couldn’t get this story out of my head.
Years later the thought came to me again after hearing another similar story. I decided I was in a place where I might be able to do something like this, so I contacted my local donor centre and things happened quickly from then.
The journey towards surgery was long but necessary as I was evaluated extensively to make sure I was extremely healthy with no underlying or possible hereditary conditions. The processes may have been invasive, with scans after scans and blood tests after blood tests, meetings with specialists and so much more, but it was actually such a relief to be told that you’re completely healthy.
Throughout the process I was made aware or the possible risks of the procedure and how I may feel afterwards. It can be quite scary but knowing that most surgery can carry these risks, and that they are very rare was reassuring. I was made aware of my rights every time I saw my team and knowing I could press pause if things got too stressful, or even stop the process completely, made me feel extremely safe, and that even though all this was for someone else, I was still their patient.
Knowing that I was completely healthy and someone else wasn’t, and all they needed was this one thing, and I was able to give that one thing, is what kept me pushing through the long process of tests and assessments. Knowing that this could be the only barrier between someone seeing the outside of a hospital again made the decision the easiest I’ve ever made.
I told very few people what I intended to do. Some may have thought I was a bit mad at first and I expected as much, but that was hard for me initially, as even though it was major surgery it still seemed such a simple concept in my head, and I didn’t understand how they didn’t just know that this was a really good thing immediately. However, as time went on and the shock wore off they started to become much more positive about the idea. I was able to explain risks and reasons and show them the things I was shown. Knowing that this was a common procedure and it was something people have done many times for many decades seemed to calmed their nerves. Also, knowing I was one of the healthiest of the population and I would be monitored yearly for the rest of my life definitely eased their doubts.
My only issue being that I was an active and avid runner, and it may seem trivial but going from running six days a week to complete rest for at least three months was a hard truth. However, reminding myself of why I was doing this, giving someone their life for 12 weeks of mine, it definitely became a non issue very quickly.
Getting the call that I was a match was a feeling can’t really describe. It was relief and nervousness in way i haven’t felt before. Relief, as this meant I was finally able think of this as a real thing a not just and idea. Also nervous, as I put lots of pressure on myself to stay fit and healthy until surgery as someone I didn’t know was depending on that.
As the surgery date was set, I was very calm but anxious, mostly because I’m not a huge fan of hospitals, but who is. I knew it was the right thing to do. I knew I would never know the person who would receive my kidney so my emotional response was limited to a nameless, faceless story, and even though this was still extremely impactful, it meant I was able to focus more on how I was feeling about the surgery.
I was made to feel incredibly safe by everyone on the ward and on the surgical team. I wasn’t used to things being all about me but I was fussed over so much. Everyone wanted to make sure I was completely comfortable.
I went to theatre in the morning and woke up in the afternoon. I was sore and tired but once I was told everything went perfectly I started to relax. After I was taken back to my room I stayed there for another few days. Everything was checked once more before I was allowed to leave and I was deemed fit and health once again.
I knew recovery would be difficult for a couple weeks so I had already mentally prepared for that. The effects of medication and the anaesthesia can take a little while to wear off but it was completely manageable. I didn’t have much pain at all other than a bit of bloating. I was discharged with medication if I needed them but luckily I never did. Moving around the house was slow and frustrating and I did need help with a few simple task, but this only last for a short period of the recovery, and in comparison to what the recipient has probably been through it definitely puts things into perspective. However, I knew if I were to have any concerns about anything that was a bit too painful or if something just didn’t feel right, I had a full team of people just a phone call away.
I was checked up on multiple times during my recovery, making sure everything was progressing as normal, and everything was. I was discharged by the surgical team on my second month and passed to my donor team for all future check ups.
I am now back to my regular routine and work as normal. My body has responded really well as if nothing has even happened at all, and it’s hard to believe one of my organs alive and well in someone else somewhere.
I would definitely encourage more people to become aware of kidney donation. If not to consider doing it, but to just talk about it. Raising awareness around kidney donation I hope would make it seems like something people just do, like donating blood or running a marathon, and not some huge life event that needs to be feared. And now as someone who has been through it I definitely don’t feel like I’ve lost anything at all.
EG Non-directed altruistic donor 01/06/2024