My FND journey

My FND journey Hello I created this to try get reach on my story and to help others who are in need of a reach out

On the 1st September 2022 I got the Awnser to all my questions and finally after 3 years of suffering I got diagnosed wi...
05/09/2023

On the 1st September 2022 I got the Awnser to all my questions and finally after 3 years of suffering I got diagnosed with Functional Neurological Disorder and sat a 4hr lecture about it all

Never did I think once I walked outside of them doors my life would completely change I didn’t know what a difference them three words would mean . The amount of disrespect from medical professionals who are supposed to care about you there all for you before they find out it’s FND that you’ve got . They don’t care you will get refused treatment so you’ll be left seizing alone for hours without any anti seizure medication and told to get yourself out of . ( if you suffer from seizures side of it )
You will hear countless times before your diagnosis and even after that you are faking it ( from medical professionals themselves )
Also September I’d end the stigma of FND

Anyone who has been diagnosed with FND Hope UK - Functional Neurological Disorder I recommend this book had it for ...
05/09/2023


Anyone who has been diagnosed with FND Hope UK - Functional Neurological Disorder I recommend this book had it for a year or so now and it’s worth the read would recommend showing your friends and family as it can educate them a bit more on it too… and also show your neurologists and health care professionals because they’re the ones who need to be Because once you get the diagnosis of FND it becomes worse over time and the more you push for help the more they ignore you . You will continue to live your life with loss and disbelief you will get told off healthcare professionals you are feigning it even though you’ve never heard of it before and you’ll be left to fend for yourself you’ll not be given adequate care that you need because of them 3 simple letters many people have said they don’t feel like they matter even though FND is just as serious as MS or PARKINSONS but also can DEVELOP into one or the other as I’ve heard from people in the support groups the neurologists tell you to join because the doctors think we can help ourselves with people like us
- I’m so happy that they are getting educated on it now because the malpractice they have given people over the years is shocking and also all the energy you once had now turns into spoons of energy meaning be careful on your choices for example it’s your mates birthday or a football game make your choice wisely because ” you didn’t sleep well last night so you’re gonna be tired for the rest of the day “ getting out of bed uses energy ( look picture below) Also do you really need that shower today - getting ready- cooking breakfast brushing teeth - oh no you need to walk to the bus . Etc - anyone who has fnd please feel free to reach out to me I don’t want you feel like nobody understands what your feeling like I was like that until I met people who also have it and it’s nice to have friends but it’s nice to know someone who is going through the same thing as you

05/09/2023

Hello I created this page for awareness and hopefully to get my story across and to help others who are also affected by Functional Neurological Disorder

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Seaham
SR7

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