15/01/2026
Pizotifen, I've just experienced forced withdrawal & it was horrific, not my choice, or my GP not even my neurologist.
The pharmacy was responsible for forcing me into abrupt cessation of my migraine medication.
On several occasions now, meds have been delayed, these help me breathe, control migraines & seizures, going without or cold turkey can be dangerous. I used to order meds within the order window (3 days) this was changed to 3-5 days, they were missing their dates, had a chat & they said order a week before you need them, unfortunately the NHS app won't let you order before the apps due date.
I ordered my meds on 6th, got a message on the 14th quite late in the day to say they were ready, I picked them up today 15th & handed back the Pizotifen as the constant fluctuations caused by late delivery was doing more harm than good. The withdrawal sent me into Status Migrainous, no pain relief worked, add in the cramps, dizziness, nausea, insomnia on top of my usual migraine symptoms- I was on the floor, actually in bed. Three days of amitriptyline to try & break the cycle along with every type of pain killer I had to hand has left me with reflux & still experiencing insomnia.
When I checked the dates on my meds it appears they had the important once by the 9th, the majority by the 10th, they were waiting for my Rizatriptan before telling me I could pick up my meds 🤬 I shouldn't have been left without my meds.
17th January Withdrawal is still having an effect on my body, though not what they class as primary & its lasting linger than the week to 10 days 🥵 my hands are on fire , itching , tingling & bright red in patches, the underlying nausea is doing nothing for my appetite
18th gritty itchy blurry eyes, random itchiness & nausea still, no appetite & day 2 of another migraine & ON attack 🙄
19th Nausea seeing more if the loo than necessary, still itching, eyes gritty, nose blocking & sticky
