European Lung Foundation

European Lung Foundation The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

Aspergillosis: learn more about this under-recognised lung condition. We have published a new aspergillosis information ...
25/07/2025

Aspergillosis: learn more about this under-recognised lung condition.

We have published a new aspergillosis information page, now available in 9 languages: www.europeanlung.org/en/information-hub/lung-conditions/aspergillosis/

Aspergillosis is a group of conditions caused by a common type of mould. It can affect people with an existing lung condition, weakened immune systems or sometimes without any clear cause.

The page includes:
🦠 4 different types of aspergilloses
😷 Symptoms and causes
🫁 Risk factors
🚫 Prevention methods
💊 Diagnosis and treatment options

People with living with aspergillosis can get involved in the ELF Aspergillosis Patient Advisory Group (PAG), helping to improve awareness and support: www.europeanlung.org/en/people-and-partners/patient-advisory-groups/aspergillosis/

💙 Today is Living with a lung condition or supporting someone with a long-term illness can affect your mental health....
24/07/2025

💙 Today is

Living with a lung condition or supporting someone with a long-term illness can affect your mental health. Taking care of your mental wellbeing is an important part of any patient or carer journey. Good self-care can help you cope and improve your quality of life.

💛 Self-care can look different for everyone. It might mean taking a short walk, doing breathing exercises, or taking time to rest.

At ELF, patients and experts have helped to create resources that offer practical advice and emotional support:

📝Pulmonary fibrosis supportive guide, with help from the European Pulmonary Fibrosis Federation: https://europeanlung.org/en/information-hub/lung-conditions/pulmonary-fibrosis/pulmonary-fibrosis-a-supportive-guide/

📝Bronchiectasis self-care guide, with help from EMBARC:https://europeanlung.org/wp-content/uploads/2023/06/Bronchiectasis-self-care-guide.pdf

📝Mental wellbeing and lung health information page: https://europeanlung.org/en/information-hub/living-with-a-lung-condition/mental-wellbeing-and-lung-health/

While the EU has a shared standard of rules for driving with obstructive sleep apnoea (OSA), the way countries apply the...
23/07/2025

While the EU has a shared standard of rules for driving with obstructive sleep apnoea (OSA), the way countries apply these rules can vary. For some, these rules can be very strict, while others could be stricter.

A new paper published in the European Respiratory Journal reveals gaps and inconsistencies in how OSA-related driving rules are applied across Europe, including:

💤 A lack of resources to diagnose and treat OSA

💤 Rules are not always well matched to the actual risk of accidents

💤 People may under-report sleepiness due to fear of losing their driving license, especially those in professions that require driving.

The authors recommend further research, to find a better understanding of how sleepiness can be measured, and how driving laws impact road safety.

Read more: https://europeanlung.org/en/news-and-blog/how-european-countries-are-applying-driving-laws-for-people-with-sleep-apnoea/

💬 “The inclusion of patient perspective chapters in the ERS Monograph highlights the unique and valued role of ELF withi...
22/07/2025

💬 “The inclusion of patient perspective chapters in the ERS Monograph highlights the unique and valued role of ELF within ERS... These chapters offer vital insights for healthcare professionals and reinforce our commitment to placing patients at the heart of respiratory medicine.” Professor Peter Calverley , Chief Editor of the European Respiratory Society Monograph

ELF and ERS are working together to ensure that patient perspectives shape professional education, care and research.

🔗 https://europeanlung.org/en/news-and-blog/patient-perspective-chapters-in-ers-monographs-now-free-to-access/

💬 “These chapters show what is possible when patients are treated as equal partners in respiratory care... Making these ...
21/07/2025

💬 “These chapters show what is possible when patients are treated as equal partners in respiratory care... Making these chapters free to access and visible makes this work even more meaningful.” Dimitris Kontopidis , ELF Chair

📚 The patient perspective chapters in the European Respiratory Society Monograph are now free to access. Each one brings lived experience into respected professional resources and helps shape the future of lung health.

🔗 https://europeanlung.org/en/news-and-blog/patient-perspective-chapters-in-ers-monographs-now-free-to-access/

Coming to Congress this year? Our communications drop-in is for all patient representatives attending the ERS Congress ...
19/07/2025

Coming to Congress this year?

Our communications drop-in is for all patient representatives attending the ERS Congress in September, whether you are attending remotely or in person.

This relaxed and friendly session will explore:

🤳🏻How to use events like the ERS congress to highlight key values for your organisation

🤳🏻Raising awareness of lung health and patient priorities

🤳🏻Supporting each other through social media and other communication channels, and the chance to share ideas

Register now on our website: https://europeanlung.org/en/get-involved/events/comms-drop-in-session-2025/

🔍 Lung health remains under-recognised and underfunded. A new commentary highlights the urgent need for change. A new p...
18/07/2025

🔍 Lung health remains under-recognised and underfunded. A new commentary highlights the urgent need for change.

A new paper in The Lancet Respiratory Medicine shows that conditions like COPD, asthma and pulmonary fibrosis are often overlooked when it comes to research, funding and awareness — even though they are some of the world’s leading causes of illness and death.

The authors highlight 3 ways to change this:

✔ Support national plans for lung health
✔ Amplify the voices of patients
✔ Help doctors speak more openly about lung conditions

It is time to change how we think about lung health and to give it the attention it deserves.

🔗 Read the summary and learn more: https://europeanlung.org/en/news-and-blog/breathing-barriers-a-new-paper-calls-for-action-to-reframe-lung-health/

July’s Patient Organisation Round-up is here! This month, the ELF Patient Organization Network has been busy advocating ...
17/07/2025

July’s Patient Organisation Round-up is here!

This month, the ELF Patient Organization Network has been busy advocating for better lung health across Europe.

⭐️The ILFA Ireland launched a new strategy calling for better access to diagnosis and care.

⭐️Respiriamo Insieme launched Europe’s first High Altitude Health Campus for childhood asthma.

⭐️The PinkTree Foundation introduced a new AI-voice test that can screen for early lung problems in Mumbai’s slums.

And much more!

Find out what they have been up to on our website: Patient Organisation Round-up: July 2025 - European Lung Foundation

Patient perspective chapters in ERS Monographs are now free to access! Thanks to the unique partnership between the Euro...
16/07/2025

Patient perspective chapters in ERS Monographs are now free to access!

Thanks to the unique partnership between the European Lung Foundation (ELF) and the European Respiratory Society (ERS), chapters authored by people with lived experience are now openly available.

These chapters bring patient voices into important scientific literature. The ERS Monographs are highly regarded, expert-reviewed publications designed for healthcare professionals, covering key topics in lung health.

Explore patient perspective chapters including bronchiectasis, COPD and lung transplantation and see how patient priorities are driving change across Europe: https://europeanlung.org/en/news-and-blog/patient-perspective-chapters-in-ers-monographs-now-free-to-access/

📺 The Question Time recording is now available!If you missed the event on 1 July, you can now catch up on the discussi...
15/07/2025

📺 The Question Time recording is now available!

If you missed the event on 1 July, you can now catch up on the discussion via the ELF website or our YouTube channel.

Hear trusted advice from experts and members of the ELF Bronchiectasis Patient Advisory Group on managing bronchiectasis, getting a diagnosis and supporting caregivers.

🎥 Watch now: https://europeanlung.org/en/get-involved/events/world-bronchiectasis-day-question-time/

European Respiratory Society

Sue and Clive recently shared their experience of living with pulmonary fibrosis (PF) in Breathe, a European Respiratory...
14/07/2025

Sue and Clive recently shared their experience of living with pulmonary fibrosis (PF) in Breathe, a European Respiratory Society publication.

Inspired by Action for Pulmonary Fibrosis, who initially supported their efforts with a small grant, the couple started their own local community support group in 2018. Today, they have a strong community, including members from across Europe.

Sadly, Clive passed away before the article was published but Sue continues to raise awareness, honouring Clive’s legacy and encouraging others to connect through support groups.

Read more about their story on our website: https://europeanlung.org/en/news-and-blog/reflecting-on-clive-and-sues-journey-with-pulmonary-fibrosis-now-published-in-breathe/

Living with a lung condition can impact a person’s mental wellbeing. ELF is committed to raising awareness of the real-l...
14/07/2025

Living with a lung condition can impact a person’s mental wellbeing. ELF is committed to raising awareness of the real-life impact of lung conditions on mental health.

The ELF Information Hub has tips for how you can manage your wellbeing this summer. These include:

🚴 Keeping active

🌾 Spending time outdoors

💚 Practicing mindfulness

Learn more. Available in 9 languages: https://europeanlung.org/en/information-hub/living-with-a-lung-condition/mental-wellbeing-and-lung-health/

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