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European Lung Foundation

The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

21/10/2025

🫁 Do you have asthma, COPD, bronchiectasis or another long-term lung condition?

Persistent cough, extreme tiredness or repeated lung infections can be signs of aspergillosis, a lung infection you might not have heard of.

Join the ELF Aspergillosis Patient Conference on 29 November to hear real patient stories, learn what to look out for and get tips for looking after your lungs.

Register free: https://europeanlung.org/en/get-involved/events/aspergillosis-patient-conference-2025/

Aspergillosis Trust National Aspergillosis Centre

21/10/2025

🚨October’s Patient Organisation Round-up is here!

Find out what organisations from the ELF Patient Organisation Network have been up to this past month and all the ways they are fighting for better lung health across Europe and around the world.

⭐️ The PinkTree Foundation recently organised a lung health screening and awareness camp in India. More than 150 residents, ASHA workers and caregivers received free lung screenings and educational materials.

⭐️The Pulmonary Hypertension Association Europe team brought together schools, teachers and young people to raise awareness about lung health as part of the campaign. The campaign reached hundreds of students and educators across Ukraine.

⭐️The Asthma Society of Ireland hosted a special presentation for members of the National Parliament of Ireland to highlight the challenges faced by the 450,000 people living with asthma in Ireland. This was part of their World Lung Day activities.

These are just a few highlights, read the full round-up here: https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-october-2025/

20/10/2025

🌟 Knowledge is power when managing severe asthma. On 22 November 2025, ELF will host a free online Severe Asthma Patient Conference. Highlights include:

💡 Patient stories and lived experiences
💡 Insights on comorbidities and daily management
💡 Updates on the latest treatments and research
💡 Live Q&A sessions to answer your questions

Don’t miss this opportunity to connect with the severe asthma community and get practical, patient-focused information. Register now: https://europeanlung.org/en/get-involved/events/severe-asthma-patient-conference-2025/

16/10/2025

💙 A big thank you for the thoughtful questions and discussion today at our Annual Stakeholder Meeting!

It was fantastic to come together with so many of our stakeholders, patient representatives and partners to reflect on the past year and look ahead to 2026.

We heard from ELF Chair, Dimitris Kontopidis, and ELF Director, Pippa Powell, alongside valuable contributions from our ELF Council members.

✨ Liam Galvin’s presentation on the Patient Advisory Committee and Patient Organisation Networking Day, and his excitement for the 2026 Congress!
✨ Helen Parks’s update on our Patient Advisory Groups, ensuring ELF continues to be patient-driven.
✨ Natalia Maeva’s presentation on the cross-disease Working Groups, addressing key topics such as mental health and transplantation.
✨ Zena Powell, speaking on behalf of Ed Powell, shared updates from the Youth Group and its growing impact.

If you missed the meeting, you can still explore our work in the ELF Annual Report 2024/2025: https://europeanlung.org/en/about-us/about-elf/our-annual-report/

We are always open to feedback, collaboration and new faces and voices. Whether you are a patient, part of an organisation or an advocate passionate about patient involvement, we would love to hear from you. Contact us at info@europeanlung.org 📩

And if you would like to support our work, you can also donate here:
💚 https://europeanlungfoundation.enthuse.com/donate #!/

Together, we can make a difference for everyone living with lung conditions. Now, let's get to work for 2026!

16/10/2025

🌍 Our Annual Stakeholder Meeting 2025 is happening now! Join us: https://us02web.zoom.us/meeting/register/tCgqlnvJQqaUrnAe3zJPpw

Hear from ELF Chair, Dimitris Kontopidis, and ELF Director, Pippa Powell, as we reflect on this year’s achievements and shape the priorities for 2026 together.

🕛 12:00–13:30 CEST
💻 Online via Zoom

16/10/2025

⏰ Two weeks left to apply!

Have you ever wanted to make a real difference for people living with lung conditions?

The ELF Chair 2026–2029 is your chance to lead patient-focused activities, guide educational initiatives, and contribute your insights to help others like you.

If previous Chairs like Dimitris Kontopidis and Kjeld Hansen have inspired you, this is your opportunity to take on a leadership role and leave a lasting mark on the patient community.

🗓️ Applications close 1 November 2025

Learn more and apply ➡️ https://europeanlung.org/en/news-and-blog/elf-chair-2026-2029

15/10/2025

🚭 Youth voices and health professionals are joining forces in Kyrgyzstan!

FRESHAIR4Life is an EU-funded project working across 5 countries to reduce to***co use and air pollution exposure among young people. In Kyrgyzstan, the FRESHAIR4Life team is leading 2 inspiring actions:

✅ Very Brief Advice (VBA) training: Over 50 healthcare workers in Bishkek and the Chui region are now trained to support adolescents to quit smoking.
✅ Youth Advocacy in Action: The Youth Advocacy Team has been raising awareness through workshops and creative events including a flash mob, “Don’t smoke, don’t drop cigarette butts”, which highlighted to***co’s impact on health and the environment.

These efforts are helping to build a healthier, smoke-free future for young people.
🔗 Learn more about the project: https://europeanlung.org/lungseurope/freshair4life

15/10/2025

False information spread deliberately - called disinformation - is damaging trust in science, misleading people and harming healthcare.

That is why ELF and European Respiratory Society are asking European leaders to protect trustworthy science, take action on false information, and support health education.

Read about our campaign and find out how you can help:
https://europeanlung.org/en/news-and-blog/elf-and-ers-call-for-urgent-action-to-protect-science-and-public-health/

14/10/2025

🎉 10 years of connection, collaboration and impact! 🎉

The 10th ELF Patient Organisation Networking Day was a fantastic milestone, bringing together over 100 patient organisation representatives and patients in person and more than 300 patients and professionals joining via live stream.

If you missed it, you can now watch the full recording here: https://europeanlung.org/en/get-involved/events/patient-organisation-networking-day-2025/

This annual event is all about strengthening our community, sharing experiences and shaping the next steps in patient collaboration across Europe. You can still join the discussion and share your own thoughts in our upcoming stakeholder meeting this week, register here: https://europeanlung.org/en/get-involved/events/annual-stakeholder-meeting-2025/

Here’s to another decade of partnership and progress for people with lung conditions 💙

13/10/2025

🫁 Help shape the future of lung cancer screening across Europe!

The EU-funded SOLACE Project has re-launched its survey on perceptions and practices in lung cancer screening to compare findings from 2023 and 2025.

We invite health professionals, researchers, patients and stakeholders to share their views and experiences. Even if you took part in the previous survey, we encourage you to respond again, your updated insights will help SOLACE understand how approaches to screening are evolving.

🕒 The survey is short, confidential and open until 31 October 2025.

👉 Take part here: https://www.surveymonkey.com/r/VSBMVT7

13/10/2025

⏰ Only 3 days to go!

There is still time to join us for the ELF Annual Stakeholder Meeting on Thursday 16 October.

This free online meeting is open to patients, carers, healthcare professionals and anyone with an interest in lung health and our activities. Your attendance and feedback will help shape ELF’s priorities for the year ahead.

Here is what to expect:

💡 Explore and suggest priority topics for patients

💡 Discover highlights from our 2024/25 Annual Report

💡 Share your ideas to help shape ELF’s 2026 strategy

Your voice matters! Join the conversation and help guide our work for the lung health community. Register here: https://europeanlung.org/en/get-involved/events/annual-stakeholder-meeting-2025/

11/10/2025

💙 Today is the European Day for Organ Donation and Transplantation.

ELF is working to increase guidance and resources for people living with lung conditions who may be considering or awaiting lung transplantation. Our Chair Dimitris leads the Chair's Campaign and is working closely with people with lived experience in our Transplantation Working Group.

Read and download our existing resources:

📄 Patient guide: www.europeanlung.org/wp-content/uploads/2024/09/Transplant-booklet-080924.pdf

🌐 Information hub: www.europeanlung.org/en/information-hub/living-with-a-lung-condition/lung-transplant/

👩‍⚕️ Patient story: www.europeanlung.org/en/people-and-partners/your-experiences/ilaria-galetti-lung-transplantation-in-2025/

If you are a patient, healthcare professional or researcher, you can help the Chair’s Campaign by getting involved in the working group, sharing your story, contributing information or making a donation to support the development of resources across Europe: www.europeanlung.org/en/projects-and-campaigns/chairs-campaign/ 🫁

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Website

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