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💬 Tell us about a time when you worked with someone to manage your lung health.For Global Voices 2026, we are inviting p...
01/05/2026

💬 Tell us about a time when you worked with someone to manage your lung health.

For Global Voices 2026, we are inviting patients and caregivers to share real experiences of partnership in lung health. Your voice can help improve understanding of what works well (or not!) in respiratory care, and how we can improve treatment for people living with lung conditions.

Please share a short reflection alongside an image or video as part of your submission. Selected submissions will be featured at this year’s ERS Congress.

👉 https://europeanlung.org/en/projects-and-campaigns/global-voices-2026/

European Respiratory Society

📢 Thinking about attending the ERS Congress 2026? This is the year to join us.The ERS Congress 2026 theme, “United for b...
29/04/2026

📢 Thinking about attending the ERS Congress 2026? This is the year to join us.

The ERS Congress 2026 theme, “United for better breathing: partnership between patients, clinicians and researchers,” focuses on collaboration across the respiratory community.

The programme and Congress activities are currently being developed with patient representatives to ensure patient priorities are embedded throughout. There will also be increased opportunities for patient involvement, with more representatives than ever invited to speak, chair sessions or contribute testimonial videos across sessions.

Join us in Barcelona 🇪🇸 or online from 5–9 September 2026.

Learn more and register here: https://europeanlung.org/en/get-involved/events/ers-congress-2026/

European Respiratory Society

💡 Help improve care and understanding of Alpha-1The Alpha‑1 Patient Advisory Group brings together people with Alpha‑1 a...
28/04/2026

💡 Help improve care and understanding of Alpha-1

The Alpha‑1 Patient Advisory Group brings together people with Alpha‑1 antitrypsin deficiency ( ), and those who support them, from across Europe. Members can share their experience and take part in a range of activities, from research and projects to patient information and awareness work.

By joining the group, you can help ensure patient and family perspectives are included in projects and priorities. There are flexible ways to take part, depending on your time and interests.

🔗 Find out more: https://europeanlung.org/en/people-and-partners/patient-advisory-groups/alpha-1-patient-advisory-group/

Alpha-1 Europe Alliance asbl, Alpha-1 UK

You can share your experiences at the European Respiratory Society Congress and ELF Patient Organisation Networking Day ...
28/04/2026

You can share your experiences at the European Respiratory Society Congress and ELF Patient Organisation Networking Day 2026!

Each year, patient organisations from across Europe help shape the programme by sharing their real-world experiences. This is an opportunity to learn from one another, connect with peers and strengthen collaboration with healthcare professionals.

This year, we want to hear how patient organisations are building and improving partnerships with healthcare professionals. Your insights can inspire others and support meaningful change.
In 2026, patient organisations can take part in three ways:

🎤 Give a 10‑minute presentation at the ERS Congress in Barcelona
💬 Join a panel discussion at the ELF Patient Organisation Networking Day
🎥 Submit a short video (1–3 minutes)

If your organisation would like to take part, please follow the instructions on the form to express your interest.

🔗: https://www.surveymonkey.com/r/KZ9BR5K

27/04/2026

What does it take to protect public health? Sophia Schiza shares the actions that European and national leaders must take to keep science safe and trustworthy.

When researchers are able to work together across borders, lives are saved. Blocking that collaboration means the treatments and solutions that people need take longer to reach them.

That is why ELF and European Respiratory Society are urging leaders to and .

Learn more and support this campaign: https://www.ersnet.org/advocacy/campaign-defend-science

Today is Alpha-1 Awareness Day and a chance to learn more about alpha-1 antitrypsin deficiency ( ) and raise awareness o...
25/04/2026

Today is Alpha-1 Awareness Day and a chance to learn more about alpha-1 antitrypsin deficiency ( ) and raise awareness of this rare lung condition.

Understanding Alpha-1 is an important step towards earlier diagnosis, better care and stronger support for people affected.

At ELF, we are also marking the day by starting a new patient advisory group (PAG) for people living with Alpha-1, as well as family members and carers from across Europe.

You can be part of the group and help shape what it focuses on from the very beginning.

🔗 Learn more about Alpha-1: https://europeanlung.org/en/information-hub/lung-conditions/alpha-1-antitrypsin-deficiency/

🔗 Find out more or express your interest: https://europeanlung.org/en/people-and-partners/patient-advisory-groups/alpha-1-patient-advisory-group/

Alpha-1 Europe Alliance asbl, Alpha-1 UK

💙 “One of the best things that has happened for the TB community is UNITE4TB.” — Blessi Kumar, member of the ELF Communi...
24/04/2026

💙 “One of the best things that has happened for the TB community is UNITE4TB.” — Blessi Kumar, member of the ELF Community Advisory Group (CAG).

This week, ELF and CAG members, Blessi Kumar, Yvan Jean Patrick Agbassi, Paul Sommerfeld and Stephan Dressler, attended the 2026 UNITE4TB Annual Meeting in Munich.

💬 Speaking on a panel about including adolescents in future TB trial design, Blessi shared the views and experiences of people affected by TB to help make research fairer and more inclusive.
💬 Paul also co-chaired a session on community experience in TB treatment trials, reinforcing the importance of patient voices in research.

Throughout the event, discussions highlighted the full range of TB research, from new treatments and trial results to ethics, data sharing and community experience.

Through , ELF continues to support the involvement of people affected by TB in research. Learn more: www.unite4tb.org

💬 “At the time of diagnosis, I received very little information and had to educate myself. This reflects a broader issue...
23/04/2026

💬 “At the time of diagnosis, I received very little information and had to educate myself. This reflects a broader issue, particularly in rare diseases, where knowledge is limited.”

Following her Patient Voice article in ERS Breathe, we spoke again with Tanja Hedberg, who lives with primary ciliary dyskinesia (PCD) and recurrent pulmonary infections.

Tanja reflects on what it means to live with a rare lung condition, including the gap that can exist between clinical knowledge and lived experience. Her story highlights the importance of collaboration between patients, researchers and clinicians to ensure research and care reflect the needs of people living with lung conditions.

the full interview: https://europeanlung.org/en/news-and-blog/tanja-hedberg-on-sharing-her-experience-of-living-with-primary-ciliary-dyskinesia-pcd-and-recurrent-pulmonary-infections/
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European Respiratory Society

📢 Healthy Lungs for Life returns to Barcelona in 2026!ELF, European Respiratory Society and partners will bring the glob...
22/04/2026

📢 Healthy Lungs for Life returns to Barcelona in 2026!

ELF, European Respiratory Society and partners will bring the global Healthy Lungs for Life campaign to Barcelona this September as part of the ERS Congress 2026. Across the city, you can take part in:

🏥 Free public lung health testing
🏫 School outreach activities
🏃 Take the Active Option at Congress (walk/run event)

We are excited to work with our local partners, whose support is helping make this happen. Fundación Lovexair, ISGLOBAL - Barcelona Institute for Global Health, Barcelona Convention Bureau, Separ Respira, Fenaer (Federación Nacional de Asociaciones de Enfermedades Respiratorias) Asociación de Pacientes con EPOC Hospital Clínic de Barcelona, Universitat de Barcelona

🔗 https://europeanlung.org/en/get-involved/events/healthy-lungs-for-life-in-barcelona-2026/

22/04/2026

In the latest episode of the Lung Health Matters podcast from European Respiratory Society, former ELF Chair Kjeld Hansen speaks with researchers Craig Wheelock and Susanne Vijverberg about the growing pressures on independent science — and what that means for the health information and treatments we all rely on.

They discuss:
🔷 How health misinformation spreads on social media
🔷 Why cuts to research funding could slow down medical progress
🔷 The importance of scientists working together across borders

Lung Health Matters explores ERS advocacy topics and developments in respiratory health policy, aiming to help patients and clinicians understand what the latest research and policy changes mean for respiratory health. This episode is part of ELF and ERS’s and campaign.

Listen now on the ERS Respiratory Channel: https://channel.ersnet.org/channel-312-lung-health-matters-podcast

Also available on Spotify and SoundCloud.

🚨 April's Patient Organisation Round-up is here!Each month, ELF highlights the work of patient organisations across Euro...
21/04/2026

🚨 April's Patient Organisation Round-up is here!

Each month, ELF highlights the work of patient organisations across Europe and globally, showcasing how they raise awareness, support patients and advocate for better lung health.

In this month’s round‑up:

💡 Hengitysliitto – Contributing to Finland’s Nature programme, promoting wellbeing in everyday life and supporting the prevention of lung disease.

💡 Alpha-1 Europe Alliance asbl – Launching “The Missing Piece”, a Europe‑wide awareness campaign focused on earlier diagnosis and better understanding of Alpha‑1 Antitrypsin Deficiency (AATD).

💡 Associazione Apnoici Italiani APS & Alliance of Sleep Apnea Partners - ASAP – Have launched “One Billion Voices for Sleep Apnea”, a global awareness campaign with a live streaming event on 7 May 2026 to raise awareness of sleep apnoea and support earlier diagnosis.

🔗 Learn more: https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-april-2026/

Global Voices 2026: united for better breathing!This year, we are sharing how we breathe better together through real-wo...
20/04/2026

Global Voices 2026: united for better breathing!

This year, we are sharing how we breathe better together through real-world reflections on partnership in lung health! We are inviting patients, caregivers, clinicians and researchers to share what collaboration means to them, and how it shapes care, research and understanding of lung conditions.

Images and short videos are also welcome! Selected contributions will be shared across ELF and European Respiratory Society channels and showcased at the ERS Congress 2026.

👉 Share your experience: https://europeanlung.org/en/projects-and-campaigns/global-voices-2026/

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