My Penelope

06/05/2026

Meltdowns can feel sudden. But often there is more going on underneath.

Poor sleep. Stress. Sensory overload. A difficult school day. Changes in routine. Things building up over time.

Tracking meltdowns can help families start to notice patterns and possible triggers more clearly.

It does not make everything easy.
But it can make the bigger picture easier to understand.

Track meltdowns for free with My Penelope.

02/05/2026

This is the reality some people do not see.

A sunny day.

Siblings outside playing.

And Penny asleep at 1 in the afternoon because her body simply cannot keep up.

When you are raising a child with complex needs, the hard parts are not always the loud parts. Sometimes, it is this.

The exhaustion.

The missed moments.

The way one child’s needs can quietly change the rhythm of the whole day.

People talk a lot about the visible side of disability and complex conditions, but not enough about the fatigue, the recovery, the after-effects, and the things a child misses through no fault of their own.

This is real life, too.

30/04/2026

One of the hardest things is trying to explain a difficult pattern clearly when it has built slowly over time.

You know it is not just one moment.
You know there is a bigger picture.
But that bigger picture can be hard to put into words later.

That is why simple tracking can be so helpful.

Download My Penelope free today.

26/04/2026

Huge congratulations to the incredible team of runners at Shakespeare Martineau who took on the Stratford Half Marathon today! 🏃‍♀️🏃‍♂️

They’ve gone the extra mile (literally!) to raise money for in honour of Penny, supporting an amazing cause that makes a real difference to young people like her and families like us.

Epilepsy Action highlighted this marathon weekend that experiencing just one seizure can be like running a marathon. Penny faces around 15 seizures every single week — a powerful reminder of why this challenge matters so much.

We couldn’t be prouder of the team’s determination, resilience, and commitment. 👏

If you’d like to show your support, it’s not too late to donate and help make an impact 💜 Link is in our stories.

23/04/2026

Trying to explain seizures weeks later can be incredibly hard.

Not because they do not matter, but because so much else is happening around them, too.

What happened.
When it happened.
How long it lasted.
What recovery looked like.
What changed afterwards.

That is why clear, simple tracking can make such a difference.

Start tracking seizures with My Penelope free.

22/04/2026

Seizure tracking is about more than counting seizures.

It is also about when it happened,

how long it lasted,

what recovery looked like,

and what changed afterwards.

Those details matter — but they are hard to hold onto over time. Tracking can help families build a clearer picture between appointments.

My Penelope includes free seizure tracking as part of its five essential trackers.

Download free today.


Track seizures for free with My Penelope.

21/04/2026

A bad night does not just affect the night.

It affects the next morning. The next day. Mood. Energy. Regulation. Stress. School. The whole rhythm of family life.

And by the time an appointment comes around, it can all be hard to explain clearly.

That is why sleep tracking matters.

It helps families keep hold of the pattern, not just the memory.

Track sleep for free with My Penelope.

20/04/2026

A bad night does not stay in the night.

Poor sleep can affect mood, regulation, school, energy, stress, and how the whole next day feels.

That is one of the reasons sleep tracking matters.

It helps families keep hold of the pattern, not just the memory.

My Penelope helps families track sleep for free, alongside seizures, meltdowns, mood, and mobility.

Download My Penelope free today.

20/04/2026

When your child has epilepsy, cerebral palsy and autism, nights can be long in ways most people never see.

Broken sleep, alarms, seizures, pain, panic, repositioning, and the constant feeling that you cannot fully switch off.

Our new blog shares the reality of what night-time care can look like for families like ours — and why sleep tracking matters when you are trying to explain what daily life really looks like.

Read more here and share with a parent carer who may feel seen by it.

https://www.mypenelope.co.uk/post/the-nights-are-long-parenting-a-child-with-epilepsy-cerebral-palsy-and-autism

Sleep is meant to be basic. Essential. One of the few things you should be able to rely on, even when life feels uncertain.But for many families raising a child with complex needs, sleep does not feel basic at all. It becomes something fragile. Interrupted. Negotiated in fragments. Measured in alarm...

18/04/2026

Weekends are always busy with three children and a routine. This morning brought a new challenge with Penny moving up her ballet class - new class, new uniform. Any parent of a child with autism knows how daunting this is for the child and the parents. So incredibly proud of how she's doing, she's worked hard to be in a position to move up and we are always grateful to the ladies for supporting her so well. Tracking her mobility with the really helps us track those important milestones. We've been working on her first position pose and balance and her core strength, and seeing the little improvements make all the difference. And she's showing that cerebral palsy won't stop her dancing 💚