PIP - UK Poland Syndrome Support

PIP - UK Poland Syndrome Support UK charity for Poland Syndrome a rare birth difference. Find us on Instagram, TikTok, Twitter & Lin Well we're here to tell you that's not the case.

PIP-UK is dedicated to providing a network of support and education for Poland Syndrome. This is a rare syndrome, so rare that is frequently not diagnosed until late into a child's life. We have already met a lot of adults who didn't find out they had Poland Syndrome until they were well into adulthood. People with Poland Syndrome or friends and family members have often felt like they are the only person in the world or in their location who have this. Come see our website! We'll introduce you to lots of different people who tell their own stories, share their experiences and give some great tips for how to overcome some day to day obstacles. If you'd like to support PIP-UK you can make a donation by clicking on this link http://pip-uk.org/donate

Thanks for your support

Thank you so much to everyone for their wonderful support.Aaron has completed 23k so far and your support is really keep...
08/10/2025

Thank you so much to everyone for their wonderful support.

Aaron has completed 23k so far and your support is really keeping him going. Aaron is so blown away he wants to increase his fundraising target to ยฃ1,000 to help him on his way to running 100k in October.

From Aaron

"Day 4 I've had a sore hamstring today so I had to walk a bit of it but never the less I got out there and did the miles we have reached my target of ยฃ500 but I donโ€™t want to stop there LETS SMASH IT
THANK YOU!! ๐Ÿ’š"

https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron

Day 1 and 2 smashed, well done Aaron!Thanks to everyone that has already supported Aaron. Let's give him a boost of supp...
03/10/2025

Day 1 and 2 smashed, well done Aaron!

Thanks to everyone that has already supported Aaron. Let's give him a boost of support as he runs through storm Amy this weekend!

This October, Aaron is taking on an incredible challenge: running 100 kilometres to raise funds for PIP-UK. His motivati...
01/10/2025

This October, Aaron is taking on an incredible challenge: running 100 kilometres to raise funds for PIP-UK. His motivation comes from a deeply personal place - his child was born with Poland syndrome.

Lets cheer him on and lend any support we can, its a long long way to run!

Aaron says: โ€œMy child was born with Poland syndrome, and there is so much unknown about it. I want to make sure that others know they are not alone in this journey.โ€

Every donation makes a real difference. Please consider supporting Aaron and helping us continue our work with families across the UK.
https://www.justgiving.com/page/pip-uk-poland-syndrome-charity-aaron

Weโ€™re looking for some support to continue to raise funds for PIP-UKCan you spare some time to hold a community event? T...
18/09/2025

Weโ€™re looking for some support to continue to raise funds for PIP-UK

Can you spare some time to hold a community event?

This could be something small like
๐ŸŽ Guess the number of sweets in the jar
๐Ÿ Guess the name of bear

To ideas such as
๐ŸŽ Washing cars
๐Ÿ Dog walking

Right through to
๐ŸŽ Holding a coffee morning
๐Ÿ Having a bake or a book sale

Or bigger events such as
๐ŸŽ A games, quiz or movie night
๐Ÿ A sport event

All donations are very much welcome!

If this is something you have time for, weโ€™d love to see events happening all over

We can support you by providing posters etc to support your events and if youโ€™d like a chat about it please comment below or DM us and weโ€™ll be in touch

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups tonight ๐ŸŒAfter the beautiful connection...
27/07/2025

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups tonight ๐ŸŒ

After the beautiful connections made during PS Fest, weโ€™re so excited to bring back our Online Community Connect Sessions โ€“ now happening monthly! ๐ŸŽ‰

๐Ÿ—“๏ธ Upcoming dates (7โ€“8 PM UK time):

- Sun 27 July
- Sun 28 September
- Sun 26 October
- Sun 30 November

These relaxed, welcoming Zoom sessions are for anyone impacted by Poland Syndrome, no matter where you are in the world. Come to share, listen, ask questions โ€“ or just be in the company of others who truly get it.

๐Ÿ”— Booking link in Bio

Zoom details will be sent after you book!

Tag a friend, spread the word, and mark your calendars ๐Ÿ—“๏ธ

Letโ€™s keep the global PS family connected

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups tonight ๐ŸŒAfter the beautiful connection...
27/07/2025

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups tonight ๐ŸŒ

After the beautiful connections made during PS Fest, weโ€™re so excited to bring back our Online Community Connect Sessions โ€“ now happening monthly! ๐ŸŽ‰

๐Ÿ—“๏ธ Upcoming dates (7โ€“8 PM UK time):

- Sun 27 July
- Sun 28 September
- Sun 26 October
- Sun 30 November

These relaxed, welcoming Zoom sessions are for anyone impacted by Poland Syndrome, no matter where you are in the world. Come to share, listen, ask questions โ€“ or just be in the company of others who truly get it.

๐Ÿ”— Booking link here: https://tidycal.com/sampipuk/pip-uk-community-connect

Zoom details will be sent after you book!

Tag a friend, spread the word, and mark your calendars ๐Ÿ—“๏ธ

Letโ€™s keep the global PS family connected

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups, Starts tomorrow ๐ŸŒAfter the beautiful c...
28/06/2025

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups, Starts tomorrow ๐ŸŒ

After the beautiful connections made during PS Fest, weโ€™re so excited to bring back our Online Community Connect Sessions โ€“ now happening monthly! ๐ŸŽ‰

๐Ÿ—“๏ธ Upcoming dates (7โ€“8 PM UK time):

- Sun 29 June
- Sun 27 July
- Sun 28 September
- Sun 26 October
- Sun 30 November

These relaxed, welcoming Zoom sessions are for anyone impacted by Poland Syndrome, no matter where you are in the world. Come to share, listen, ask questions โ€“ or just be in the company of others who truly get it.

๐Ÿ”— Booking link here: https://tidycal.com/sampipuk/pip-uk-community-connect

Zoom details will be sent after you book!

Tag a friend, spread the word, and mark your calendars ๐Ÿ—“๏ธ

Letโ€™s keep the global PS family connected

PiP UK Visit to Newman University Foundation Year ProjectsSupporting Awareness and Understanding of Poland SyndromeIt wa...
19/06/2025

PiP UK Visit to Newman University Foundation Year Projects
Supporting Awareness and Understanding of Poland Syndrome

It was an honour for PiP UK to be invited to Newman University to witness the incredible efforts of the Foundation Year students, who have dedicated their time and creativity to raising awareness of Poland Syndrome through a diverse range of academic and practical projects.

Over several months, Paul Preston, Chairperson of PiP UK, alongside Rachel Preston, had the privilege of visiting the university and engaging with students as their work progressed. The enthusiasm, compassion, and commitment shown by the students have been truly inspiring.

The projects showcased included:

Website designs tailored to inform and support those affected by Poland Syndrome
Legal research papers exploring disability rights and protections in relation to rare conditions
Health, fitness, and wellbeing guides aimed at supporting those living with limb difference
Awareness campaigns designed to educate the public and reduce stigma
The display of interdisciplinary work not only highlighted the studentsโ€™ academic talents but also their ability to approach complex health topics with empathy and social awareness. Their contributions represent a significant step forward in amplifying the voices of those affected by Poland Syndrome.

We at PiP UK are deeply grateful to
Newman University for integrating this meaningful cause into their curriculum. The collaboration has created lasting impact, and we look forward to sharing the final results of the studentsโ€™ efforts very soon.

Thank you to all the students and staff involved for your dedication and for helping to create a more informed, inclusive world.

โ€“ PiP UK Team

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups ๐ŸŒAfter the beautiful connections made d...
06/06/2025

๐ŸŒWeโ€™re Back! Poland Syndrome Community Connect Sessions โ€“ Monthly Online Meetups ๐ŸŒ

After the beautiful connections made during PS Fest, weโ€™re so excited to bring back our Online Community Connect Sessions โ€“ now happening monthly! ๐ŸŽ‰

๐Ÿ—“๏ธ Upcoming dates (7โ€“8 PM UK time):

- Sun 29 June
- Sun 27 July
- Sun 28 September
- Sun 26 October
- Sun 30 November

These relaxed, welcoming Zoom sessions are for anyone impacted by Poland Syndrome, no matter where you are in the world. Come to share, listen, ask questions โ€“ or just be in the company of others who truly get it.

๐Ÿ”— Booking link here: https://tidycal.com/sampipuk/pip-uk-community-connect

Zoom details will be sent after you book!

Tag a friend, spread the word, and mark your calendars ๐Ÿ—“๏ธ

Letโ€™s keep the global PS family connected

Address

Stockport
SK38JE

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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